Patient assistance finder

Help paying for rare disease medicines

Copay cards, free medicine programs and charity funds for 219 rare disease medicines. Pick your insurance to see what fits, or what is open to you if you have none.

210

drugmaker programs, each read on the drugmaker's own site

277

charity funds covering 130 conditions

143

funds open at our last check, October 5 to October 12, 2026

Updated October 12, 2026. Trial Friend takes no money from any of these programs or drugmakers.

Photo: Centre for Ageing Better / Unsplash

1. Your medicine or condition

Try:

2. Your insurance

Your insurance

Start typing a medicine or condition above. You can also browse every program in the lists further down this page.

Which help fits your insurance

Private insurance

Start with the drugmaker's copay card; many bring the cost down to a small fixed amount, up to a yearly maximum. Ask your plan whether copay card payments count toward your deductible, since some plans don't count them. If your plan denies the drug, ask the drugmaker's support line about bridge supplies and appeal help.

Medicare

Drugmaker copay cards can't be used with Medicare (HHS Office of Inspector General). What can help: in 2026, what you pay out of pocket for Part D drugs is capped at $2,100 for the year (CMS), and the Medicare Prescription Payment Plan lets you spread those costs across the year at no charge. Charity funds are the main outside help, and some drugmaker free medicine programs accept Medicare patients who meet income limits. Medicare also lists programs that lower costs, such as Extra Help. Choosing a plan for 2027? Read our Medicare open enrollment checklist for rare disease drugs.

Medicaid, TRICARE or VA

Copay cards are excluded here too. Medicaid copays are usually small; if a drug isn't covered, the drugmaker's support line can explain the options. Some TotalAssist funds accept Medicare, Medicaid or TRICARE.

No insurance

Free medicine programs are built for you, usually with income limits. Most charity funds require some insurance, so they may not apply. The drugmaker's support line can also check whether you qualify for coverage you don't have yet.

Before you call

Call the drugmaker's support line first. Their case managers check your benefits, find the right program and often handle the forms with your doctor.
Have your insurance card, your prescription details and proof of household income ready. Free medicine programs usually ask for income.
Most programs must be renewed every year, and many copay cards reset in January.
If a charity fund is closed, sign up on the foundation's page to be told when it reopens. Funds for the same condition at another foundation may still be open.
Specialty pharmacies and hospital financial counselors know these programs well. Ask them too.

All drugmaker programs, A to Z

Every FDA-approved treatment on Trial Friend with a program or generic guidance. Type to filter, or pick a medicine above to see the details for your insurance. Each medicine's page has the official program link, who qualifies and the date we checked it.

Filter by medicine or condition222 of 222

A check means the drugmaker offers it. Free medicine is a free medicine program, bridge supply is a bridge or quick-start supply while insurance is sorted out, and case manager is insurance and case manager help.

Medicine	Drugmaker program	Copay help	Free medicine	Bridge supply	Case manager	Also
Actemra (Tocilizumab)	ACTEMRA Access Solutions	✓	✓		✓
Actimmune (Interferon gamma-1b)	Amgen By Your Side (ACTIMMUNE)				✓
Adakveo (Crizanlizumab)	Novartis Patient Support	✓	✓
Adcirca (Tadalafil)	United Therapeutics Cares	✓	✓		✓
Adempas (Riociguat)	Aim Patient Support Program	✓	✓			Other
Agamree (Vamorolone)	Catalyst Pathways	✓	✓	✓	✓
Alhemo (Concizumab)	NovoCare (Rare Bleeding Disorders)	✓	✓	✓	✓	Other
Alvaiz (Eltrombopag choline)	Alvaiz Savings Program	✓
Alyftrek (Vanzacaftor / Tezacaftor / Deutivacaftor)	Vertex GPS: Guidance & Patient Support	✓			✓
Amondys 45 (Casimersen)	SareptAssist	✓	✓		✓
Amvuttra (Vutrisiran)	Alnylam Assist	✓	✓	✓	✓
Andembry (Garadacimab)	ANDEMBRY Connect	✓		✓	✓
Aqneursa (Levacetylleucine)	AQNEURSA Cares	✓			✓
Aqvesme (Mitapivat)	myAgios Patient Support Services	✓		✓	✓	Other
Atebrioz (Zilurgisertib)	Mirum Access Plus (MAP)
Attruby (Acoramidis)	ForgingBridges	✓	✓	✓	✓
Aubagio (Teriflunomide)	MS One to One (AUBAGIO Co-Pay Program and One Start)	✓	✓	✓	✓
Augtyro (Repotrectinib)	BMS Access Support	✓	✓	✓	✓
Austedo (Deutetrabenazine)	Teva Total Support	✓			✓	Other
Avlayah (Tividenofusp alfa)	Denali Patient Services	✓			✓
Ayvakit (Avapritinib)	YourBlueprint	✓	✓	✓	✓
Besremi (Ropeginterferon alfa-2b-njft)	PharmaEssentia SOURCE	✓	✓	✓		Other
Briumvi (Ublituximab)	BRIUMVI Patient Support (TG Therapeutics)	✓			✓	Other
Briviact (Brivaracetam)	BRIVIACT Patient Savings Card / UCB Patient Assistance Program	✓	✓			Other
Camzyos (Mavacamten)	MyCAMZYOS Patient Support	✓	✓	✓	✓	Other
Casgevy (Exagamglogene autotemcel)	Vertex Connects				✓	Travel, Other
Cerdelga (Eliglustat)	CareConnect Personalized Support Services	✓	✓		✓
Cerezyme (Imiglucerase)	CareConnect Personalized Support Services	✓	✓		✓
Cleocin (Clindamycin)	Generic from many makers
Copaxone (Glatiramer acetate)	COPAXONE Co-Pay Solutions	✓
Crenessity (Crinecerfont)	Neurocrine Access Support	✓	✓		✓
Ctexli (Chenodiol (chenodeoxycholic acid))	Mirum Access Plus (MAP)	✓	✓		✓
Cuprimine (Penicillamine)	Bausch Health Patient Assistance Program		✓
Cuvrior (Trientine tetrahydrochloride)	Navigator Program (Orphalan)	✓	✓	✓	✓
Darzalex Faspro (Daratumumab and hyaluronidase-fihj)	J&J withMe (DARZALEX FASPRO withMe)	✓	✓
Dawnzera (Donidalorsen)	Ionis Every Step	✓	✓	✓	✓
Daybue (Trofinetide)	Acadia Connect	✓			✓	Other
Diacomit (Stiripentol)	Biocodex By Your Side Support Team at PANTHERx	✓	✓	✓	✓
Doptelet (Avatrombopag)	Doptelet Connect	✓			✓
Droxia (Hydroxyurea)	Siklos Savings Programs and Medunik USA Patient Assistance Program (Siklos brand only)	✓	✓			Other
Duvyzat (Givinostat)	ITF ARC	✓	✓	✓	✓
Ekterly (Sebetralstat)	KalVista Cares	✓		✓	✓
Elaprase (Idursulfase)	Takeda Patient Support	✓			✓
Elelyso (Taliglucerase alfa)	Pfizer Gaucher Personal Support (GPS)	✓	✓		✓
Elevidys (Delandistrogene moxeparvovec)	SareptAssist	✓			✓
Elfabrio (Pegunigalsidase alfa)	Chiesi Total Care	✓			✓	Infusion costs
Emcitate (Tiratricol)	Egetis RareLink				✓
Emflaza (Deflazacort)	PTC Cares	✓		✓	✓
Empaveli (Pegcetacoplan)	ApellisAssist	✓	✓	✓	✓
Endari (L-glutamine)	Endari Commercial Copayment Assistance Program and Endari Support Program	✓	✓
Enjaymo (Sutimlimab-jome)	Recordati Rare Diseases Patient Solutions (RRD PS)	✓	✓		✓	Other
Enspryng (Satralizumab)	Genentech Access Solutions for Enspryng	✓	✓		✓
Epidiolex (Cannabidiol)	JazzCares for EPIDIOLEX	✓	✓	✓	✓
Esbriet (Pirfenidone)	Esbriet Co-pay Program and Legacy Patient Program (Legacy Pharma)	✓	✓
Evoxac (Cevimeline)	Generic from many makers
Evrysdi (Risdiplam)	Genentech financial assistance for Evrysdi (Evrysdi Co-pay Program and Genentech Patient Foundation)	✓	✓			Other
Exjade (Deferasirox)	Novartis Patient Assistance Foundation		✓
Exondys 51 (Eteplirsen)	SareptAssist	✓	✓		✓
Fabhalta (Iptacopan)	Novartis Patient Support	✓	✓	✓	✓
Fabrazyme (Agalsidase beta)	CareConnect Personalized Support Services (CareConnectPSS)	✓	✓		✓	Infusion costs
Fasenra (Benralizumab)	FASENRA 360	✓	✓		✓	Infusion costs
Fayuvi (Rebisufligene etisparvovec)	UltraCare (Ultragenyx)	✓			✓	Travel
Ferriprox (Deferiprone)	Chiesi Total Care	✓			✓
Filspari (Sparsentan)	Travere TotalCare	✓			✓	Other
Filsuvez (Birch triterpenes)	Chiesi Total Care	✓			✓
Fintepla (Fenfluramine)	ONWARD (UCB patient support for FINTEPLA)	✓	✓		✓	Other
Flolan (Epoprostenol)	J&J withMe (VELETRI)				✓	Other
Forzinity (Elamipretide)	Mito Assist	✓	✓		✓
Fycompa (Perampanel)	FYCOMPA Instant Savings Card Program and FYCOMPA Patient Assistance Program	✓	✓			Other
Galafold (Migalastat)	AMICUS ASSIST	✓	✓		✓
Galzin (Zinc acetate)	Eton Cares Program	✓			✓
Gamifant (Emapalumab)	Gamifant Cares	✓	✓		✓
Gilenya (Fingolimod)	Novartis Patient Assistance Foundation		✓
Gomekli (Mirdametinib)	SpringWorks CareConnections	✓	✓		✓
Hemgenix (Etranacogene dezaparvovec)	HEMGENIX Connect	✓			✓	Travel
Hemlibra (Emicizumab)	Genentech financial assistance for HEMLIBRA (Co-pay Assistance Program and Genentech Patient Foundation)	✓	✓			Other
Humira (Adalimumab)	HUMIRA Complete	✓	✓		✓
Hympavzi (Marstacimab)	Pfizer Hemophilia Connect	✓	✓	✓	✓	Other
Ilaris (Canakinumab)	ILARIS Companion	✓	✓		✓	Other
Imaavy (Nipocalimab)	IMAAVY withMe	✓	✓	✓		Infusion costs
Imbruvica (Ibrutinib)	IMBRUVICA By Your Side	✓			✓
Imfinzi (Durvalumab)	AstraZeneca Access 360	✓	✓		✓	Infusion costs
Ingrezza (Valbenazine)	Neurocrine Access Support	✓	✓			Other
Iqirvo (Elafibranor)	IPSEN CARES	✓			✓
Isembyld (Apitegromab)	Scholar Rock Supports	✓			✓	Infusion costs
Isturisa (Osilodrostat)	R.A.R.E. Patient Support Program (Recordati Rare Diseases)	✓	✓		✓
Itvisma (Onasemnogene abeparvovec-brve)	Novartis Patient Support	✓	✓		✓
Izervay (Avacincaptad pegol)	IZERVAY My Way (Astellas)	✓	✓		✓
Jakafi (Ruxolitinib)	IncyteCARES	✓	✓	✓		Other
Jascayd (Nerandomilast)	CareConnect4Me (Boehringer Ingelheim)	✓			✓
Kalydeco (Ivacaftor)	Vertex GPS: Guidance & Patient Support	✓			✓
Kebilidi (Eladocagene exuparvovec-tneq)	PTC Cares				✓	Other
Keppra (Levetiracetam)	Generic from many makers
Kesimpta (Ofatumumab)	Novartis Patient Support	✓	✓	✓	✓
Keytruda (Pembrolizumab)	The Merck Access Program		✓		✓
Kineret (Anakinra)	Kineret ON TRACK	✓	✓	✓	✓
Korlym (Mifepristone)	Support Program for Access and Reimbursement for Korlym	✓	✓	✓	✓
Koselugo (Selumetinib)	Alexion OneSource	✓			✓
Kygevvi (Doxecitine and doxribtimine)	ONWARD				✓
Lamictal (Lamotrigine)	GSK Patient Assistance Program		✓
Lenmeldy (Atidarsagene autotemcel)	Orchard Assist				✓	Other
Letairis (Ambrisentan)	LEAP (Letairis Education and Access Program)	✓	✓		✓
Lisraya (Brepocitinib)	My Compass Support	✓			✓	Other
Livdelzi (Seladelpar)	Gilead Support Path	✓	✓		✓
Lumizyme (Alglucosidase alfa)	CareConnect Personalized Support Services (CareConnectPSS)	✓	✓		✓
Lumvoa (Veligrotug)	ViridianCares (Viridian Therapeutics)	✓			✓
Luxturna (Voretigene neparvovec-rzyl)	Spark Therapeutics Generation Patient Services	✓			✓	Other
Lyfgenia (Lovotibeglogene autotemcel)	Genetix CARES (formerly my bluebird support)				✓	Travel, Other
Lynavoy (Linerixibat)	Interconnect Support Services (Intercept Pharmaceuticals)	✓			✓
Lyrfigtu (Lirafugratinib)	Elevar Care Connect	✓	✓
Lysodren (Mitotane)	Lysodren financial assistance (1-844-LYSODREN)				✓	Other
Lytgobi (Futibatinib)	Taiho Oncology Patient Support	✓	✓		✓
Malarone (Atovaquone + Proguanil)	GSK Patient Assistance Program		✓
Mayzent (Siponimod)	Novartis Patient Assistance Foundation		✓
Mepron (Atovaquone)	GSK Patient Assistance Program		✓
Mimrylo (Rusfertide)	MIMRYLO Patient Support (Takeda Oncology Here2Assist)	✓	✓			Other
Miplyffa (Arimoclomol)	AmplifyAssist (Zevra Therapeutics)	✓	✓		✓
Modeyso (Dordaviprone)	JazzCares for MODEYSO Patient Support Program	✓	✓	✓	✓
Mycapssa (Octreotide (oral capsules))	Chiesi Total Care	✓			✓
Myqorzo (Aficamten)	MYQORZO & You (Cytokinetics)	✓	✓	✓	✓	Other
Neoral (Cyclosporine)	Generic from many makers
Nexviazyme (Avalglucosidase alfa)	CareConnect Personalized Support Services (CareConnectPSS)	✓	✓	✓	✓	Infusion costs
Niktimvo (Axatilimab)	IncyteCARES for Niktimvo	✓	✓		✓
Nplate (Romiplostim)	Amgen SupportPlus	✓			✓
Nucala (Mepolizumab)	Together with NUCALA	✓	✓		✓
Ocrevus (Ocrelizumab)	OCREVUS Access Solutions	✓	✓		✓	Infusion costs
Ofev (Nintedanib)	CareConnect4Me (Boehringer Ingelheim)	✓			✓
Ojjaara (Momelotinib)	Together with OJJAARA (Together with GSK)	✓	✓	✓	✓
Onpattro (Patisiran)	Alnylam Assist	✓	✓	✓	✓
Opsumit (Macitentan)	J&J withMe (Oral PAH Savings Program)	✓	✓		✓
Orkambi (Lumacaftor / Ivacaftor)	Vertex GPS: Guidance & Patient Support	✓			✓
Orladeyo (Berotralstat)	Empower Patient Services	✓			✓
Otezla (Apremilast)	Amgen SupportPlus	✓	✓	✓	✓
Palsonify (Paltusotine)	CrinetiCARE	✓	✓	✓	✓
Papzimeos (Zopapogene imadenovec)	Papzimeos SUPPORT	✓			✓
Pasatru (Garetosmab-grts)	myRARE (Regeneron)				✓
Pemazyre (Pemigatinib)	IncyteCARES for PEMAZYRE	✓	✓	✓	✓
Piasky (Crovalimab)	PiaSky Access Solutions	✓	✓		✓
Pombiliti + Opfolda (Cipaglucosidase alfa + miglustat)	AMICUS ASSIST	✓	✓		✓
Prolastin-C (Alpha-1 proteinase inhibitor (human))	Brand-specific: PROLASTIN DIRECT (Grifols), Takeda Patient Support (ARALAST NP, GLASSIA), ZEMAIRA Connect (CSL Behring)	✓			✓
Promacta (Eltrombopag)	Novartis Patient Support / Universal Co-pay Program	✓			✓
Qalsody (Tofersen)	Biogen Support Services	✓			✓	Infusion costs
Qfitlia (Fitusiran)	Sanofi HemAssist	✓	✓	✓	✓
Radicava (Edaravone)	JourneyMate Support Program	✓	✓		✓
Reblozyl (Luspatercept)	BMS Access Support	✓			✓
Recorlev (Levoketoconazole)	Xeris CareConnection	✓			✓
Redemplo (Plozasiran)	Rely On Redemplo Patient Support Program (Arrowhead)	✓			✓
Rethymic (Allogeneic processed thymus tissue-agdc)	RETHYMIC Connect	✓			✓
Revatio (Sildenafil)	REVATIO Savings Card (Viatris)	✓
Rezurock (Belumosudil)	MyROCK ASSIST	✓	✓	✓	✓
Rifadin (Rifampin)	Generic from many makers
Rilutek (Riluzole)	TIGLUTIK Copay Support	✓
Rinvoq (Upadacitinib)	RINVOQ Complete (AbbVie)	✓	✓		✓	Other
Rivfloza (Nedosiran)	NovoCare (Novo Nordisk)	✓	✓	✓	✓
Rozlytrek (Entrectinib)	Rozlytrek Access Solutions (Genentech)	✓	✓		✓
Rydapt (Midostaurin)	Novartis Oncology Universal Co-Pay Program	✓
Rystiggo (Rozanolixizumab)	ONWARD	✓	✓		✓	Infusion costs
Rytelo (Imetelstat)	REACH4RYTELO	✓	✓	✓
Salagen (Pilocarpine)	Generic from many makers
Sandostatin (Octreotide)	Novartis Patient Support	✓	✓
Sephience (Sepiapterin)	PTC Cares	✓	✓	✓
Signifor (Pasireotide)	R.A.R.E. Patient Support Program (Recordati Access, Resources, and Engagement)	✓			✓	Other
Signifor (Pasireotide)	R.A.R.E. Patient Support Program (Recordati Access, Resources, and Engagement)	✓			✓	Other
Skysona (Elivaldogene autotemcel)	Genetix CARES				✓	Other
Sohonos (Palovarotene)	IPSEN CARES	✓	✓		✓
Soliris (Eculizumab)	Alexion OneSource	✓			✓
Somatuline Depot (Lanreotide)	IPSEN CARES	✓	✓		✓
Somavert (Pegvisomant)	Pfizer Bridge Program	✓	✓		✓
Spinraza (Nusinersen)	SMA360°	✓			✓	Infusion costs
Symdeko (Tezacaftor / Ivacaftor)	Vertex GPS: Guidance & Patient Support	✓			✓
Syprine (Trientine hydrochloride)	Bausch Health Patient Assistance Program		✓
Takhzyro (Lanadelumab)	Takeda Patient Support	✓			✓
Tarpeyo (Budesonide (delayed-release))	TARPEYO Touchpoints	✓			✓
Tavalisse (Fostamatinib)	Rigel OneCare	✓			✓
Tecfidera (Dimethyl fumarate)	Biogen Support Services	✓			✓
Tepezza (Teprotumumab)	Amgen By Your Side (TEPEZZA)	✓			✓	Infusion costs
Tibsovo (Ivosidenib)	ServierONE Patient Support Services	✓	✓	✓	✓
Tracleer (Bosentan)	J&J withMe (Oral PAH Savings Program)	✓			✓
Trikafta (Elexacaftor / Tezacaftor / Ivacaftor)	Vertex GPS: Guidance & Patient Support	✓			✓
Trutakna (Atacicept)	Tru Support	✓	✓	✓	✓
Tryngolza (Olezarsen)	Ionis Every Step	✓			✓	Other
Tysabri (Natalizumab)	Biogen Support Services	✓			✓	Infusion costs
Tyvaso (Treprostinil)	United Therapeutics Cares	✓	✓		✓
Ultomiris (Ravulizumab)	Alexion OneSource	✓			✓
Uplizna (Inebilizumab)	Amgen By Your Side	✓			✓	Infusion costs
Uplizna (Inebilizumab)	Amgen By Your Side	✓			✓	Infusion costs
Uptravi (Selexipag)	J&J withMe (Oral PAH Savings Program)	✓	✓		✓
Vanrafia (Atrasentan)	Novartis Patient Support	✓	✓	✓	✓
Vibramycin (Doxycycline)	Generic from many makers
Vibramycin (Doxycycline)	Generic from many makers
Viltepso (Viltolarsen)	NS Support Patient Access Solutions	✓	✓	✓	✓
Vimpat (Lacosamide)	Generic from many makers
Vitrakvi (Larotrectinib)	Access Services by Bayer (TRAK Assist)	✓	✓		✓
Vonjo (Pacritinib)	VONJO Connect	✓	✓	✓
Voydeya (Danicopan)	Alexion OneSource	✓			✓	Other
Voyxact (Sibeprenlimab)	Otsuka Patient Services	✓	✓	✓	✓
VPRIV (Velaglucerase alfa)	Takeda Patient Support	✓		✓	✓	Other
Vyjuvek (Beremagene geperpavec-svdt)	Krystal Connect	✓	✓	✓	✓
Vykat XR (Diazoxide choline)	Soleno One	✓			✓
Vyndamax (Tafamidis)	VynAssist / VyndaLink	✓	✓		✓
Vyondys 53 (Golodirsen)	SareptAssist	✓	✓		✓
Vyvgart (Efgartigimod alfa)	My VYVGART Path	✓		✓	✓	Infusion costs
Wainua (Eplontersen)	WAINUA WAY (AstraZeneca Access 360)	✓	✓		✓
Wayrilz (Rilzabrutinib)	HemAssist Sanofi Support	✓	✓		✓	Other
Welireg (Belzutifan)	The Merck Access Program	✓	✓		✓
Winrevair (Sotatercept)	The Merck Access Program (MAP)	✓	✓		✓
Xcopri (Cenobamate)	SK Life Science Navigator	✓	✓	✓	✓	Other
Xenazine (Tetrabenazine)	Xenazine Information Center / Xenazine Copay Assistance Program	✓			✓
Yorvipath (Palopegteriparatide)	Ascendis Signature Access Program (A·S·A·P)	✓	✓		✓
Yutrepia (Treprostinil inhalation powder)	Liquidia ACCESS Program	✓	✓	✓	✓	Other
Yuviwel (Navepegritide)	Ascendis Signature Access Program (A.S.A.P)	✓	✓		✓
Zanvastro (Zilganersen)	Ionis Every Step	✓			✓	Infusion costs
Zeposia (Ozanimod)	ZEPOSIA 360 Support	✓		✓	✓	Other
Zevaskyn (Prademagene zamikeracel)	Abeona Assist				✓	Other
Ziihera (Zanidatamab)	JazzCares	✓	✓		✓
Zilbrysq (Zilucoplan)	ONWARD	✓	✓		✓
Zithromax (Azithromycin)	Generic from many makers
Zolgensma (Onasemnogene abeparvovec)	Novartis Patient Support	✓	✓		✓
Ztalmy (Ganaxolone)	ZTALMY One	✓			✓
Zycubo (Copper histidinate)	Sentynl Cares \| ZYCUBO Patient Support Services				✓
Zynteglo (Betibeglogene autotemcel)	Genetix CARES (formerly my bluebird support)				✓	Other
Zynyz (Retifanlimab-dlwr)	IncyteCARES	✓	✓		✓
No medicine matches that. Try the brand name, the generic name, or the condition.

Charity funds by condition

From the big independent copay charities, HealthWell, TotalAssist (formerly the PAN Foundation), NORD RareCare, The Assistance Fund, Good Days, Blood Cancer United and CancerCare, plus 31 disease foundations that run their own grants. Blood Cancer United was formerly The Leukemia & Lymphoma Society. Status is what each foundation showed on the date checked. “Apply directly” means the foundation doesn't post an open or closed status; the program was live on its site when we checked. “Any insurance” means the fund requires health insurance of some kind, and “government insurance” means Medicare, Medicaid or TRICARE. Select a condition to open its page, which links to each fund's application and shows which ones fit your insurance.

Achondroplasia

Open · Little People of America: Grant for Overall Accessible Living (GOAL)

Acromegaly

Closed · HealthWell Foundation: Acromegaly
Open · TotalAssist: Acromegaly · up to $5,000/yr · Government insurance
Waitlist · The Assistance Fund: Acromegaly

Alagille Syndrome

Open · HealthWell Foundation: Alagille Syndrome Vitamins and Supplements
Open · Alagille Syndrome Alliance: ALGSAssistance Program · up to $1,000/yr

Alexander Disease

Open · United Leukodystrophy Foundation: Hultman Memorial Fund · up to $500/yr

Alpha-1 Antitrypsin Deficiency

Open · NORD RareCare: Alpha-1 Antitrypsin Deficiency Premium Copay Assistance
Waitlist · The Assistance Fund: Alpha-1 Antitrypsin Deficiency

Amyotrophic Lateral Sclerosis

Open · HealthWell Foundation: Amyotrophic Lateral Sclerosis
Open · NORD RareCare: ALS Travel & Lodging Assistance
Waitlist · The Assistance Fund: Amyotrophic Lateral Sclerosis (ALS)
Apply directly · The ALS Association: Hoffman ALS Financial Assistance Program · up to $1,000/yr
Apply directly · Muscular Dystrophy Association: MDA Durable Medical Equipment (DME) Grant Program · up to $1,000/yr

Angelman Syndrome

Open · Angelman Syndrome Foundation: ASF Family Fund · up to $2,500/yr

Arrhythmogenic Cardiomyopathy

Open · HealthWell Foundation: Cardiomyopathy (Medicare Access) · Medicare patients only
Closed · TotalAssist: Cardiomyopathy · up to $2,000/yr · Government insurance

ATTR Amyloidosis (Transthyretin Amyloidosis)

Open · HealthWell Foundation: Amyloidosis
Open · HealthWell Foundation: Cardiomyopathy (Medicare Access) · Medicare patients only
Open · TotalAssist: Amyloidosis · up to $5,500/yr · Government insurance
Open · NORD RareCare: Amyloidosis Medical Assistance
Open · NORD RareCare: Amyloidosis Premium Copay Assistance
Waitlist · The Assistance Fund: Amyloidosis

Atypical Hemolytic Uremic Syndrome

Open · TotalAssist: Hemolytic Uremic Syndrome (HUS) · up to $9,500/yr · Any insurance
Open · NORD RareCare: aHUS Medical Assistance
Open · NORD RareCare: aHUS Premium Copay Assistance
Open · The Assistance Fund: Atypical Hemolytic Uremic Syndrome (aHUS)
Open · NORD RareCare: atypical Hemolytic Uremic Syndrome (aHUS) Emergency Relief

Barth Syndrome

Open · NORD RareCare: Barth Syndrome Travel Assistance Fund
Waitlist · NORD RareCare: Barth Syndrome Emergency Relief

Batten Disease

Open · NORD RareCare: Batten Disease Medical Assistance
Open · NORD RareCare: Batten Disease Premium Copay Assistance
Closed · NORD RareCare: Batten Disease Emergency Relief

Becker Muscular Dystrophy

Apply directly · Muscular Dystrophy Association: MDA Durable Medical Equipment (DME) Grant Program · up to $1,000/yr

Canavan Disease

Open · United Leukodystrophy Foundation: Hultman Memorial Fund · up to $500/yr

Cerebral Adrenoleukodystrophy

Open · United Leukodystrophy Foundation: Hultman Memorial Fund · up to $500/yr

Cerebrotendinous Xanthomatosis

Open · NORD RareCare: CTX Medical Assistance
Open · NORD RareCare: CTX Premium Copay Assistance

Charcot-Marie-Tooth Disease

Apply directly · Muscular Dystrophy Association: MDA Durable Medical Equipment (DME) Grant Program · up to $1,000/yr
Apply directly · Charcot-Marie-Tooth Association: CMTA Patient Support Fund · up to $5,000/yr
Open · Charcot-Marie-Tooth Association: emBRACE the Future Fund

Cholangiocarcinoma

Closed · TotalAssist: Biliary Tract Cancer · up to $6,200/yr · Government insurance
Waitlist · The Assistance Fund: Biliary Tract Cancer
Closed · CancerCare Co-Payment Assistance Foundation: Cholangiocarcinoma (Bile Duct Cancer) · Government insurance

Chronic Graft-versus-Host Disease

Open · TotalAssist: Graft-vs-Host Disease (GVHD) · up to $9,500/yr · Any insurance
Closed · Blood Cancer United: Graft-vs-Host Disease Co-Pay Fund · up to $10,000/yr · Any insurance
Apply directly · NMDP: NMDP Patient Financial Assistance Grants

Chronic Granulomatous Disease

Closed · NORD RareCare: Chronic Granulomatous Disease Copay Assistance
Closed · NORD RareCare: Chronic Granulomatous Disease Medical Assistance
Open · Good Days: Chronic Granulomatous Disease · up to $10,000/yr · Any insurance
Open · The Assistance Fund: Chronic Granulomatous Disease (CGD)

Chronic Inflammatory Demyelinating Polyneuropathy

Open · TotalAssist: Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) · up to $9,500/yr · Government insurance
Open · NORD RareCare: CIDP Medical Assistance
Open · NORD RareCare: CIDP Premium Copay Assistance
Waitlist · The Assistance Fund: Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)

Cold Agglutinin Disease

Waitlist · The Assistance Fund: Cold Agglutinin Disease (CAD)

Common Variable Immunodeficiency

Waitlist · The Assistance Fund: Primary Immunodeficiency

Corticobasal Degeneration

Open · CurePSP: Quality of Life Respite Program

Cushing Disease

Open · HealthWell Foundation: Cushing's Disease or Cushing's Syndrome
Open · TotalAssist: Cushing's Disease or Syndrome · up to $9,500/yr · Any insurance
Open · NORD RareCare: Cushing's Syndrome Medical Assistance
Open · NORD RareCare: Cushing's Syndrome Premium Copay Assistance
Closed · Good Days: Cushing's Disease

Cystic Fibrosis

Open · HealthWell Foundation: Cystic Fibrosis Treatments
Closed · HealthWell Foundation: Cystic Fibrosis Vitamins and Supplements
Closed · TotalAssist: Cystic Fibrosis · up to $5,000/yr · Any insurance
Waitlist · The Assistance Fund: Cystic Fibrosis

Dermatomyositis

Closed · TotalAssist: Dermatomyositis · up to $9,000/yr · Any insurance
Open · The Assistance Fund: Myositis

Dilated Cardiomyopathy

Open · HealthWell Foundation: Cardiomyopathy (Medicare Access) · Medicare patients only
Closed · TotalAssist: Cardiomyopathy · up to $2,000/yr · Government insurance

Dravet Syndrome

Open · Dravet Syndrome Foundation: Patient Assistance Grant (PAG) Program · up to $1,500/yr

Duchenne Muscular Dystrophy

Closed · TotalAssist: Duchenne Muscular Dystrophy · up to $15,400/yr · Any insurance
Open · NORD RareCare: Duchenne Muscular Dystrophy Medical Assistance
Open · NORD RareCare: Duchenne Muscular Dystrophy Premium Copay Assistance
Closed · Good Days: Duchenne Muscular Dystrophy
Open · The Assistance Fund: Duchenne Muscular Dystrophy
Apply directly · Muscular Dystrophy Association: MDA Durable Medical Equipment (DME) Grant Program · up to $1,000/yr

Eosinophilic Esophagitis

Open · TotalAssist: Eosinophilic Esophagitis · up to $2,000/yr · Government insurance
Waitlist · The Assistance Fund: Eosinophilic Esophagitis

Eosinophilic Granulomatosis with Polyangiitis

Open · HealthWell Foundation: ANCA-Associated Vasculitis and Granulomatosis with Polyangiitis
Closed · TotalAssist: Eosinophilic Granulomatosis with Polyangiitis (EGPA) · up to $7,400/yr · Any insurance

Epidermolysis Bullosa

Open · The Assistance Fund: Epidermolysis Bullosa (EB)

Essential Thrombocythemia

Open · TotalAssist: Myeloproliferative Neoplasms · up to $9,500/yr · Any insurance
Closed · Good Days: Myeloproliferative Diseases · Government insurance
Waitlist · The Assistance Fund: Myeloproliferative Neoplasms (MPN)
Open · CancerCare Co-Payment Assistance Foundation: Myeloproliferative Neoplasms · up to $7,000/yr · Government insurance
Closed · Blood Cancer United: Myeloproliferative Neoplasms Co-Pay Fund (ET, PV, primary myelofibrosis) · up to $7,500/yr · Government insurance
Open · Blood Cancer United: Clinical Trials Co-Pay Fund (all blood cancers) · up to $3,500/yr · Any insurance
Open · Blood Cancer United: Patient Aid Program · up to $100/yr

Fabry Disease

Open · TotalAssist: Fabry Disease · up to $9,000/yr · Any insurance
Open · NORD RareCare: Fabry Disease Medical Assistance
Open · NORD RareCare: Fabry Disease Premium Copay Assistance
Closed · Good Days: Fabry Disease
Waitlist · The Assistance Fund: Fabry Disease
Apply directly · Fabry Support & Information Group: Fabry Assist

Facioscapulohumeral Muscular Dystrophy

Apply directly · Muscular Dystrophy Association: MDA Durable Medical Equipment (DME) Grant Program · up to $1,000/yr

Familial Chylomicronemia Syndrome

Open · The Assistance Fund: Familial Chylomicronemia Syndrome (FCS)

Familial Hypertrophic Cardiomyopathy

Open · HealthWell Foundation: Cardiomyopathy (Medicare Access) · Medicare patients only
Open · TotalAssist: Hypertrophic Cardiomyopathy · up to $7,200/yr · Any insurance
Apply directly · Hypertrophic Cardiomyopathy Association: HCMA Lori Fund · up to $600/yr

Familial Medullary Thyroid Carcinoma

Closed · TotalAssist: Thyroid Cancer · up to $8,200/yr · Government insurance
Closed · Good Days: Medullary Thyroid Cancer · Government insurance
Waitlist · The Assistance Fund: Thyroid Cancer

Fibrodysplasia Ossificans Progressiva

Apply directly · International FOP Association: Dental Care Travel Stipend Program · up to $1,500/yr
Closed · International FOP Association: Harold and Elaine Kaplan Quality of L.I.F.E. Awards · up to $1,800/yr

Focal Epilepsy

Waitlist · The Assistance Fund: Epilepsy

Focal Segmental Glomerulosclerosis

Open · The Assistance Fund: Focal Segmental Glomerulosclerosis (FSGS)

Friedreich Ataxia

Apply directly · Muscular Dystrophy Association: MDA Durable Medical Equipment (DME) Grant Program · up to $1,000/yr

Gastrointestinal Stromal Tumor

Closed · TotalAssist: Gastrointestinal Stromal Tumors · up to $4,200/yr · Government insurance
Closed · CancerCare Co-Payment Assistance Foundation: Gastrointestinal Stromal Tumor (GIST) · Government insurance

Gaucher Disease

Open · TotalAssist: Gaucher Disease · up to $14,000/yr · Any insurance
Waitlist · NORD RareCare: Gaucher Disease Medical Assistance
Waitlist · NORD RareCare: Gaucher Disease Premium Copay Assistance
Open · The Assistance Fund: Gaucher Disease

Giant Cell Arteritis

Closed · HealthWell Foundation: Giant Cell Arteritis (Medicare Access) · Medicare patients only

Glycogen Storage Disease Type II

Open · TotalAssist: Pompe Disease · up to $9,500/yr · Any insurance
Closed · Good Days: Pompe Disease
Waitlist · The Assistance Fund: Pompe Disease

Granulomatosis with Polyangiitis

Open · HealthWell Foundation: ANCA-Associated Vasculitis and Granulomatosis with Polyangiitis

Guillain-Barré Syndrome

Open · NORD RareCare: Guillain-Barre Emergency Relief Assistance

Hemophilia A

Open · TotalAssist: Hemophilia · up to $12,500/yr · Any insurance
Closed · Good Days: Hemophilia
Waitlist · The Assistance Fund: Hemophilia
Open · Hemophilia Federation of America: Helping Hands Program · up to $250/yr

Hemophilia B

Open · TotalAssist: Hemophilia · up to $12,500/yr · Any insurance
Closed · Good Days: Hemophilia
Waitlist · The Assistance Fund: Hemophilia
Open · Hemophilia Federation of America: Helping Hands Program · up to $250/yr

Hereditary Angioedema

Closed · Good Days: Hereditary Angioedema
Open · The Assistance Fund: Hereditary Angioedema (HAE)
Apply directly · US Hereditary Angioedema Association: Chris Whalen HAEA Compassion Fund

Hodgkin Lymphoma

Closed · Good Days: Hodgkin's Lymphoma · Government insurance
Waitlist · The Assistance Fund: Hodgkin Lymphoma
Closed · Blood Cancer United: Hodgkin Lymphoma Co-Pay Fund · up to $8,500/yr · Any insurance
Open · Blood Cancer United: Clinical Trials Co-Pay Fund (all blood cancers) · up to $3,500/yr · Any insurance
Open · Blood Cancer United: Patient Aid Program · up to $100/yr
Apply directly · Lymphoma Research Foundation: Patient Aid Grant

Homocystinuria

Closed · HealthWell Foundation: Homocystinuria and Organic Acidemias
Open · NORD RareCare: Classical Homocystinuria Medical Assistance

Hunter Syndrome

Open · NORD RareCare: Hunter Syndrome Medical Assistance
Open · NORD RareCare: Hunter Syndrome Premium Copay Assistance
Waitlist · The Assistance Fund: MPS II - Hunter Syndrome
Apply directly · National MPS Society: Family Assistance Program · up to $3,000/yr
Apply directly · National MPS Society: Medical Travel Assistance Program · up to $550/yr
Apply directly · National MPS Society: Journey Assistance Program · up to $500/yr

Huntington Disease

Closed · HealthWell Foundation: Huntington's Disease (Medicare Access) · Medicare patients only

Hypoparathyroidism

Open · The Assistance Fund: Hypoparathyroidism

Idiopathic Pulmonary Fibrosis

Closed · HealthWell Foundation: Pulmonary Fibrosis
Closed · TotalAssist: Pulmonary Fibrosis · up to $7,000/yr · Government insurance
Waitlist · The Assistance Fund: Idiopathic Pulmonary Fibrosis

IgA Nephropathy

Closed · HealthWell Foundation: IgA Nephropathy
Open · NORD RareCare: IgA Nephropathy Medical Assistance
Open · NORD RareCare: IgA Nephropathy Premium Copay Assistance
Open · The Assistance Fund: Immunoglobulin A Nephropathy (IgAN)
Apply directly · IgA Nephropathy Foundation: IgA Nephropathy Foundation Patient Aid Grant

IgG4-Related Disease

Open · NORD RareCare: IgG4-RD Medical Assistance
Open · NORD RareCare: IgG4-RD Premium Copay Assistance
Closed · Good Days: IgG4-Related Disease
Open · The Assistance Fund: Immunoglobulin G4-Related Disease (IgG4-RD)

Immune Thrombocytopenia

Closed · HealthWell Foundation: Immune Thrombocytopenia (ITP)
Closed · TotalAssist: Immune Thrombocytopenia (ITP) · up to $10,000/yr · Government insurance
Waitlist · NORD RareCare: Immune Thrombocytopenia Medical Assistance
Waitlist · NORD RareCare: Immune Thrombocytopenia Premium Copay Assistance
Waitlist · The Assistance Fund: Thrombocytopenia

Krabbe Disease

Apply directly · Hunter's Hope Foundation: Hunter's Wish Gift
Open · Hunter's Hope Foundation: Equipment and Supply Exchange Program
Open · United Leukodystrophy Foundation: Hultman Memorial Fund · up to $500/yr

Lambert-Eaton Myasthenic Syndrome

Closed · HealthWell Foundation: Lambert-Eaton Myasthenic Syndrome
Open · NORD RareCare: LEMS Premium Copay Assistance
Open · NORD RareCare: LEMS Medical Assistance
Open · The Assistance Fund: Lambert-Eaton Myasthenic Syndrome (LEMS)

Leber Congenital Amaurosis

Closed · TotalAssist: Inherited Retinal Disease · up to $8,600/yr · Any insurance

Lennox-Gastaut Syndrome

Open · NORD RareCare: Lennox-Gastaut Syndrome Medical Assistance
Open · NORD RareCare: Lennox-Gastaut Syndrome Premium Copay Assistance
Closed · LGS Foundation: Elevate Patient Assistance Program

Light Chain Amyloidosis

Open · HealthWell Foundation: Amyloidosis
Open · TotalAssist: Amyloidosis · up to $5,500/yr · Government insurance
Open · NORD RareCare: Amyloidosis Medical Assistance
Open · NORD RareCare: Amyloidosis Premium Copay Assistance
Waitlist · The Assistance Fund: Amyloidosis

Limb-Girdle Muscular Dystrophy

Apply directly · Muscular Dystrophy Association: MDA Durable Medical Equipment (DME) Grant Program · up to $1,000/yr

Marfan Syndrome

Apply directly · The Marfan Foundation: Sholton-Witte Access to Care Travel Scholarship Program

Mastocytosis

Open · Blood Cancer United: Acute Myeloid Leukemia Co-Pay Fund (covered diagnoses include Mastocytosis) · up to $4,000/yr · Any insurance

Medullary Thyroid Cancer

Closed · TotalAssist: Thyroid Cancer · up to $8,200/yr · Government insurance
Closed · Good Days: Medullary Thyroid Cancer · Government insurance
Waitlist · The Assistance Fund: Thyroid Cancer

Merkel Cell Carcinoma

Closed · CancerCare Co-Payment Assistance Foundation: Merkel Cell Carcinoma · Government insurance

Mesothelioma

Closed · CancerCare Co-Payment Assistance Foundation: Malignant Mesothelioma · Government insurance
Apply directly · Mesothelioma Applied Research Foundation: Patient Travel Grant Program · up to $6,000/yr
Apply directly · Mesothelioma Applied Research Foundation: Bret A. Rosenthal Patient Assistance Fund · up to $2,000/yr

Metachromatic Leukodystrophy

Open · United Leukodystrophy Foundation: Hultman Memorial Fund · up to $500/yr

Methylmalonic Acidemia

Closed · HealthWell Foundation: Homocystinuria and Organic Acidemias
Open · NORD RareCare: Organic Acidemia Copay Assistance
Open · NORD RareCare: Organic Acidemia Medical Assistance

Mucopolysaccharidosis Type I

Open · NORD RareCare: MPS I (Hurler Syndrome) Medical Assistance
Open · NORD RareCare: MPS I (Hurler Syndrome) Premium Copay Assistance
Open · The Assistance Fund: MPS I - Hurler Syndrome (Hurler-Scheie, Scheie)
Apply directly · National MPS Society: Family Assistance Program · up to $3,000/yr
Apply directly · National MPS Society: Medical Travel Assistance Program · up to $550/yr
Apply directly · National MPS Society: Journey Assistance Program · up to $500/yr

Mucopolysaccharidosis Type IVA

Open · NORD RareCare: Morquio A Syndrome Medical Assistance
Open · NORD RareCare: Morquio A Syndrome Premium Copay Assistance
Apply directly · National MPS Society: Family Assistance Program · up to $3,000/yr
Apply directly · National MPS Society: Medical Travel Assistance Program · up to $550/yr
Apply directly · National MPS Society: Journey Assistance Program · up to $500/yr

Mucopolysaccharidosis Type VI

Open · NORD RareCare: MPS VI Medical Assistance
Open · NORD RareCare: MPS VI Premium Copay Assistance
Apply directly · National MPS Society: Family Assistance Program · up to $3,000/yr
Apply directly · National MPS Society: Medical Travel Assistance Program · up to $550/yr
Apply directly · National MPS Society: Journey Assistance Program · up to $500/yr
Open · NORD RareCare: Mucopolysaccharidosis type VI (MPS VI) Emergency Relief

Multiple Myeloma

Open · HealthWell Foundation: Multiple Myeloma (Medicare Access) · Medicare patients only
Closed · TotalAssist: Multiple Myeloma · up to $10,000/yr · Government insurance
Closed · Good Days: Multiple Myeloma
Closed · CancerCare Co-Payment Assistance Foundation: Multiple Myeloma · Government insurance
Closed · Blood Cancer United: Myeloma Co-Pay Fund · up to $10,000/yr · Government insurance

Multiple Sclerosis

Closed · HealthWell Foundation: Multiple Sclerosis (Medicare Access) · Medicare patients only
Closed · TotalAssist: Multiple Sclerosis · up to $8,000/yr · Government insurance
Closed · Good Days: Multiple Sclerosis · Government insurance
Waitlist · The Assistance Fund: Multiple Sclerosis

Multiple System Atrophy

Open · CurePSP: Quality of Life Respite Program
Closed · Mission MSA (Multiple System Atrophy Coalition): Mission MSA Cares Grant

Myasthenia Gravis

Open · TotalAssist: Myasthenia Gravis · up to $10,000/yr · Government insurance
Open · NORD RareCare: Myasthenia Gravis Medical Assistance
Open · NORD RareCare: Myasthenia Gravis Premium Copay Assistance
Closed · Good Days: Myasthenia Gravis
Waitlist · The Assistance Fund: Myasthenia Gravis
Closed · Myasthenia Gravis Foundation of America: MGFA Food Support Program

Myelodysplastic Syndromes

Open · HealthWell Foundation: Myelodysplastic Syndromes (Medicare Access) · Medicare patients only
Closed · TotalAssist: Myelodysplastic Syndromes · up to $8,000/yr · Government insurance
Closed · Good Days: Myelodysplastic Syndrome · Government insurance
Closed · CancerCare Co-Payment Assistance Foundation: Myelodysplastic Syndrome · Any insurance
Closed · Blood Cancer United: Myelodysplastic Syndromes Co-Pay Fund · up to $7,500/yr · Government insurance
Open · Blood Cancer United: Clinical Trials Co-Pay Fund (all blood cancers) · up to $3,500/yr · Any insurance
Open · Blood Cancer United: Patient Aid Program · up to $100/yr

Myelofibrosis

Open · TotalAssist: Myeloproliferative Neoplasms · up to $9,500/yr · Any insurance
Closed · Good Days: Myeloproliferative Diseases · Government insurance
Waitlist · The Assistance Fund: Myeloproliferative Neoplasms (MPN)
Open · CancerCare Co-Payment Assistance Foundation: Myeloproliferative Neoplasms · up to $7,000/yr · Government insurance
Closed · Blood Cancer United: Myeloproliferative Neoplasms Co-Pay Fund (ET, PV, primary myelofibrosis) · up to $7,500/yr · Government insurance
Open · Blood Cancer United: Clinical Trials Co-Pay Fund (all blood cancers) · up to $3,500/yr · Any insurance
Open · Blood Cancer United: Patient Aid Program · up to $100/yr

Myotonic Dystrophy

Apply directly · Muscular Dystrophy Association: MDA Durable Medical Equipment (DME) Grant Program · up to $1,000/yr

Narcolepsy Type 1

Open · TotalAssist: Narcolepsy · up to $5,000/yr · Any insurance
Open · NORD RareCare: Narcolepsy Medical Assistance
Open · NORD RareCare: Narcolepsy Premium Copay Assistance
Waitlist · The Assistance Fund: Narcolepsy

Neurofibromatosis Type 1

Open · TotalAssist: Neurofibromatosis · up to $6,400/yr · Any insurance
Open · NORD RareCare: Neurofibromatosis Type 1 Medical Assistance
Open · NORD RareCare: Neurofibromatosis Type 1 Premium Copay Assistance
Open · The Assistance Fund: Neurofibromatosis

Neuromyelitis Optica

Open · TotalAssist: Neuromyelitis Optica Spectrum Disorder · up to $8,000/yr · Any insurance
Open · NORD RareCare: NMOSD Medical Assistance
Open · NORD RareCare: NMOSD Premium Copay Assistance
Open · Good Days: Neuromyelitis Optica Spectrum Disorder · up to $2,100/yr · Any insurance
Open · The Assistance Fund: Neuromyelitis Optica Spectrum Disorder (NMOSD)

Niemann-Pick Disease

Open · NORD RareCare: ASMD Medical Assistance
Open · NORD RareCare: ASMD Premium Copay
Open · The Assistance Fund: Acid Sphingomyelinase Deficiency (ASMD)
Open · The Assistance Fund: Niemann-Pick Disease Type C (NPC)
Apply directly · National Niemann-Pick Disease Foundation: Family Assistance and Support Program (FASP) · up to $1,000/yr

Niemann-Pick Disease Type C

Open · The Assistance Fund: Niemann-Pick Disease Type C (NPC)
Apply directly · National Niemann-Pick Disease Foundation: Family Assistance and Support Program (FASP) · up to $1,000/yr

Paraganglioma

Closed · HealthWell Foundation: Neuroendocrine Tumors
Closed · CancerCare Co-Payment Assistance Foundation: Metastatic Pheochromocytoma and Paraganglioma · Government insurance

Paroxysmal Nocturnal Hemoglobinuria

Open · TotalAssist: Paroxysmal Nocturnal Hemoglobinuria · up to $9,500/yr · Any insurance
Open · NORD RareCare: PNH Medical Assistance
Open · NORD RareCare: PNH Premium Copay Assistance
Open · The Assistance Fund: Paroxysmal Nocturnal Hemoglobinuria (PNH)
Apply directly · Aplastic Anemia & MDS International Foundation: PNH Patient Travel Assistance Fund · up to $800/yr
Open · NORD RareCare: Paroxysmal Nocturnal Hemoglobinuria (PNH) Emergency Relief

Pemphigus Vulgaris

Closed · TotalAssist: Pemphigus Vulgaris · up to $14,600/yr · Government insurance

Peripartum Cardiomyopathy

Open · HealthWell Foundation: Cardiomyopathy (Medicare Access) · Medicare patients only
Closed · TotalAssist: Cardiomyopathy · up to $2,000/yr · Government insurance

Phenylketonuria

Open · NORD RareCare: Phenylketonuria (PKU) Medical Assistance
Open · NORD RareCare: Phenylketonuria (PKU) Premium Copay Assistance
Open · NORD RareCare: Phenylketonuria (PKU) Emergency Relief

Pheochromocytoma

Closed · HealthWell Foundation: Neuroendocrine Tumors
Closed · CancerCare Co-Payment Assistance Foundation: Metastatic Pheochromocytoma and Paraganglioma · Government insurance

Polycythemia Vera

Open · TotalAssist: Myeloproliferative Neoplasms · up to $9,500/yr · Any insurance
Closed · Good Days: Myeloproliferative Diseases · Government insurance
Waitlist · The Assistance Fund: Myeloproliferative Neoplasms (MPN)
Open · CancerCare Co-Payment Assistance Foundation: Myeloproliferative Neoplasms · up to $7,000/yr · Government insurance
Closed · Blood Cancer United: Myeloproliferative Neoplasms Co-Pay Fund (ET, PV, primary myelofibrosis) · up to $7,500/yr · Government insurance
Open · Blood Cancer United: Clinical Trials Co-Pay Fund (all blood cancers) · up to $3,500/yr · Any insurance
Open · Blood Cancer United: Patient Aid Program · up to $100/yr

Pompe Disease

Open · TotalAssist: Pompe Disease · up to $9,500/yr · Any insurance
Closed · Good Days: Pompe Disease
Waitlist · The Assistance Fund: Pompe Disease
Apply directly · Muscular Dystrophy Association: MDA Durable Medical Equipment (DME) Grant Program · up to $1,000/yr

Porphyria Cutanea Tarda

Open · HealthWell Foundation: Porphyrias
Waitlist · The Assistance Fund: Porphyria

Primary Biliary Cholangitis

Open · TotalAssist: Primary Biliary Cholangitis · up to $2,500/yr · Government insurance
Waitlist · The Assistance Fund: Primary Biliary Cholangitis (PBC)

Primary Hyperoxaluria

Open · HealthWell Foundation: Hyperoxaluria
Waitlist · The Assistance Fund: Primary Hyperoxaluria

Progeria

Open · NORD RareCare: Progeria & Progeroid Laminopathies Copay Assistance
Open · NORD RareCare: Progeria & Progeroid Laminopathies Medical Assistance

Progressive Familial Intrahepatic Cholestasis

Open · PFIC Network: PFIC Financial Assistance Program · up to $1,000/yr

Progressive Supranuclear Palsy

Open · CurePSP: Quality of Life Respite Program

Pulmonary Alveolar Proteinosis

Open · NORD RareCare: Autoimmune Pulmonary Alveolar Proteinosis (aPAP) Medical Assistance

Pulmonary Arterial Hypertension

Open · HealthWell Foundation: Pulmonary Hypertension (Medicare Access) · Medicare patients only
Open · TotalAssist: Pulmonary Hypertension · up to $9,500/yr · Any insurance
Closed · Good Days: Pulmonary Arterial Hypertension · Government insurance
Waitlist · The Assistance Fund: Pulmonary Hypertension

Retinitis Pigmentosa

Closed · TotalAssist: Inherited Retinal Disease · up to $8,600/yr · Any insurance

Rett Syndrome

Open · TotalAssist: Rett Syndrome · up to $4,400/yr · Any insurance
Waitlist · NORD RareCare: Rett Syndrome Emergency Relief Assistance
Open · The Assistance Fund: Rett Syndrome

Sanfilippo Syndrome

Open · TotalAssist: Mucopolysaccharidosis Type III (Sanfilippo) · up to $2,500/yr · Any insurance
Apply directly · National MPS Society: Family Assistance Program · up to $3,000/yr
Apply directly · National MPS Society: Medical Travel Assistance Program · up to $550/yr
Apply directly · National MPS Society: Journey Assistance Program · up to $500/yr

Sarcoidosis

Waitlist · The Assistance Fund: Sarcoidosis

Severe Combined Immunodeficiency

Waitlist · The Assistance Fund: Primary Immunodeficiency

Short Bowel Syndrome

Open · TotalAssist: Short Bowel Syndrome · up to $6,000/yr · Any insurance
Open · NORD RareCare: Short Bowel Syndrome Medical Assistance
Open · NORD RareCare: Short Bowel Syndrome Premium Copay Assistance
Open · The Assistance Fund: Short Bowel Syndrome

Sickle Cell Disease

Closed · HealthWell Foundation: Sickle Cell Disease
Closed · TotalAssist: Sickle Cell Disease · up to $5,600/yr · Government insurance
Waitlist · The Assistance Fund: Sickle Cell Disease

Spinal Muscular Atrophy

Open · TotalAssist: Spinal Muscular Atrophy · up to $6,500/yr · Any insurance
Closed · Good Days: Spinal Muscular Atrophy · Any insurance
Apply directly · Cure SMA: Equipment Pool and Travel Support Package
Apply directly · Muscular Dystrophy Association: MDA Durable Medical Equipment (DME) Grant Program · up to $1,000/yr

Stargardt Disease

Closed · TotalAssist: Inherited Retinal Disease · up to $8,600/yr · Any insurance

Stiff Person Syndrome

Waitlist · NORD RareCare: Stiff Person Syndrome Research Foundation Travel and Lodging Assistance

Systemic Juvenile Idiopathic Arthritis

Waitlist · The Assistance Fund: Juvenile Arthritis

Systemic Mastocytosis

Open · Blood Cancer United: Acute Myeloid Leukemia Co-Pay Fund (covered diagnoses include Mastocytosis) · up to $4,000/yr · Any insurance

Systemic Sclerosis

Closed · HealthWell Foundation: Systemic Sclerosis with Interstitial Lung Disease
Open · The Assistance Fund: Systemic Sclerosis

Tay-Sachs Disease

Apply directly · National Tay-Sachs & Allied Diseases Association: Benton's Family Assistance Fund · up to $500/yr

Thalassemia

Apply directly · Cooley's Anemia Foundation: Support for Significant Travel to Treatment Centers · up to $500/yr
Closed · Cooley's Anemia Foundation: Support for Health Maintenance in Thalassemia Patients (age 50+) · up to $500/yr

Thyroid Eye Disease

Closed · TotalAssist: Thyroid Eye Disease · up to $9,000/yr · Any insurance
Closed · Good Days: Thyroid Eye Disease
Open · The Assistance Fund: Thyroid Eye Disease (TED)

Tuberous Sclerosis

Open · NORD RareCare: TSC Bcureful Center of Excellence Travel & Lodging Assistance
Waitlist · NORD RareCare: TSC Copay Assistance

Urea Cycle Disorders

Closed · HealthWell Foundation: Urea Cycle Disorders
Closed · Good Days: Urea Cycle Disease · Any insurance
Waitlist · The Assistance Fund: Urea Cycle Disorders (UCD)

Usher Syndrome

Closed · TotalAssist: Inherited Retinal Disease · up to $8,600/yr · Any insurance

Von Willebrand Disease

Closed · TotalAssist: Von Willebrand Disease · up to $17,600/yr · Any insurance
Open · Hemophilia Federation of America: Helping Hands Program · up to $250/yr

Waldenström Macroglobulinemia

Open · HealthWell Foundation: Waldenstrom Macroglobulinemia
Open · TotalAssist: Waldenstrom Macroglobulinemia · up to $9,500/yr · Any insurance
Open · NORD RareCare: IWMF Waldenstrom Macroglobulinemia Travel and Lodging Assistance
Closed · Blood Cancer United: Waldenstrom Macroglobulinemia Co-Pay Fund · up to $8,500/yr · Government insurance
Open · Blood Cancer United: Clinical Trials Co-Pay Fund (all blood cancers) · up to $3,500/yr · Any insurance
Open · Blood Cancer United: Patient Aid Program · up to $100/yr

Wild-Type ATTR Cardiac Amyloidosis

Open · HealthWell Foundation: Amyloidosis
Open · HealthWell Foundation: Cardiomyopathy (Medicare Access) · Medicare patients only
Open · TotalAssist: Amyloidosis · up to $5,500/yr · Government insurance
Open · NORD RareCare: Amyloidosis Medical Assistance
Open · NORD RareCare: Amyloidosis Premium Copay Assistance
Waitlist · The Assistance Fund: Amyloidosis

Wilson Disease

Closed · TotalAssist: Wilson's Disease · up to $9,000/yr · Any insurance
Apply directly · Wilson Disease Association: WDA Patient Assistance · up to $2,000/yr

Wiskott-Aldrich Syndrome

Waitlist · The Assistance Fund: Primary Immunodeficiency

X-Linked Hypophosphatemia

Open · The Assistance Fund: Hypophosphatemia

Common questions

Can I use a drugmaker copay card if I have Medicare?

No. Federal rules treat drugmaker copay coupons used for drugs paid by Medicare, Medicaid or TRICARE as a possible kickback, so copay cards say government insurance is excluded. People on Medicare usually turn to independent charity funds, a drugmaker's free medicine program if it accepts Medicare patients, and Medicare's own help: in 2026, Part D out-of-pocket costs are capped at $2,100 for the year.

What's the difference between a copay card and a free medicine program?

A copay card lowers what you pay at the pharmacy when private insurance covers the drug. A free medicine program (often called a patient assistance program) gives the drug at no cost to people without coverage, or with coverage that doesn't help enough, and usually has income limits.

Why does a charity fund say closed?

Charity funds such as HealthWell and TotalAssist run on donations for each disease. When a fund's money runs out for the year it closes to new applicants, then reopens when new donations arrive. Most foundations let you sign up to be told when a fund reopens.

Do I need insurance to get help from a charity fund?

Usually, yes. The disease funds listed here generally help insured people with out-of-pocket costs such as copays and premiums. Some TotalAssist funds require Medicare, Medicaid or TRICARE. If you have no insurance, a drugmaker's free medicine program is usually the place to start.

How do I find patient assistance for a specific medicine?

Search for the medicine on this page and pick your insurance. Each of the 219 medicines shows its drugmaker's copay card or free medicine program with the official link and the date we checked it, plus charity funds for the condition it treats. Each medicine's own page on Trial Friend has the same help listed.

Does Trial Friend list drug prices?

No. What a patient pays depends on their insurance and on the help they qualify for, so this page lists the programs that lower that cost: copay cards for private insurance, free medicine programs for people without enough coverage, and charity funds for out-of-pocket costs.

How current is this information?

Each drugmaker program shows the date we checked it on the drugmaker's own pages, and each charity fund shows its open or closed status as the foundation listed it on the date shown. The oldest check on this page is September 24, 2026. Programs change, so confirm with the program before you rely on it.

How we check

Drugmaker programs come only from the drugmaker's own brand, program or foundation pages, never from aggregator sites. Where a page doesn't say who qualifies, we say so instead of guessing. Charity fund status is copied from each foundation's fund list on the date shown. We re-check programs at least every 90 days. If something here is wrong or out of date, email jason@trialfriend.comand we'll fix it.

Trial Friend provides information only, not financial, legal or medical advice. Eligibility is decided by each program.