We found 3 drugmaker programs for Paroxysmal Nocturnal Hemoglobinuria medicines and 6 charity funds (5 open at our last check). Tell us your insurance below and we'll show what to try first.
Help for Paroxysmal Nocturnal Hemoglobinuria depends mostly on how you're covered. Pick the one that sounds like you. We'll name the funds and programs that fit, and what won't work, so you don't waste a phone call.
Independent foundations pay copays, coinsurance and sometimes insurance premiums for people who already have coverage. Funds open and close as donations come in, so each one shows what the foundation said on the date we checked.
Covers: Medical and medication costs.
Covers: Insurance premiums and copays.
Covers: Emergency relief.
Covers: Copays, coinsurance, deductibles and other health-related expenses.
Covers: Out-of-pocket costs for approved medications. Up to $9,500 a year.
Covers: Travel to a PNH specialist or second opinion (patient plus one companion). Up to $800 a year.
Copay cards lower what people with private insurance pay. Federal rules bar them for Medicare, Medicaid and TRICARE. Free medicine programs are for people without enough coverage and usually have income limits. We read each program on the drugmaker's own site.
Co-Pay Plus: eligible privately insured patients may pay as little as $0; up to $20,000 a year for Fabhalta plus up to $1,000 for required vaccinations. Not for government insurance.
Privately insured patients with a prior authorization or initial denial may get up to 12 months of Fabhalta free while coverage is pursued.
A dedicated Novartis Patient Support team helps with coverage and ongoing support. Mon-Fri 8 AM-8 PM ET.
Novartis Patient Assistance Foundation provides Fabhalta free to eligible patients who are uninsured or have government insurance and meet income limits.
Free drug is through the separate Novartis Patient Assistance Foundation (1-800-277-2254); income limits apply.
PiaSky Co-pay Program: eligible commercially insured patients may pay as little as $0 per 30-day supply, with up to $15,000 in assistance per calendar year (resets January 1). Not for Medicare, Medicare Advantage, Medigap, Medicaid, TRICARE, DoD or VA.
The Genentech Patient Foundation (888-941-3331) may provide Piasky free to eligible patients who are uninsured, whose insurance does not cover Piasky, or whose out-of-pocket costs are high relative to income. Household income limits apply.
PiaSky Access Solutions helps with coverage and financial assistance options at 855-2-PIASKY (855-274-2759), Monday to Friday, 6 AM to 5 PM Pacific time.
Brand site spells it PiaSky. The page also refers patients with public insurance to independent foundations (PAN Foundation, The Assistance Fund); those are not Genentech programs. A second Genentech Access number, 866-4ACCESS (866-422-2377), is also listed. Exact income cutoffs for the Genentech Patient Foundation were not copied here; check the page.
Alexion OneSource CoPay Program: eligible commercially insured patients enrolled in OneSource may pay as little as $0. Not for Medicare (Parts B and D), Medicare Advantage, Medigap, Medicaid, VA, DoD or TRICARE.
30-day free trial of Voydeya for eligible patients who have not tried it before for extravascular hemolysis.
Alexion OneSource case management helps with insurance and access questions at 1-888-765-4747, Monday to Friday, 8:30 AM to 8 PM ET. Medicare, Medicaid and other government plan members are referred to third-party resources.
The patient page and current copay terms (alexiononesource.com/allpay) do not state an annual maximum; the terms say maximums may vary by patient. An older doctors' page (voydeyahcp.com/support-programs, dated 11/2024) lists up to $15,000 per calendar year, so that figure was left out. No Alexion free-drug program for uninsured patients was found on the pages checked. The same phone number is listed in the label for the VOYDEYA REMS.
Most of these programs start with one call, and having these ready makes it shorter. Tick them off as you go. Nothing here is saved or sent anywhere.
Call the drugmaker's support line first. Its case managers check your benefits and often fill out forms with your doctor. If a charity fund is closed, sign up on the foundation's page to hear when it reopens. Most programs need renewing every year, and many copay cards reset in January.
Yes. Trial Friend lists 3 drugmaker programs for Paroxysmal Nocturnal Hemoglobinuria medicines and 6 charity funds, 5 of them open at our last check. We checked every one at the source on or before October 19, 2026. Which ones fit depends on your insurance. Copay cards are for people with private insurance, charity funds usually need some insurance, and free medicine programs are for people without enough coverage.
No. Federal rules bar drugmaker copay cards for drugs paid by Medicare, Medicaid or TRICARE. For Paroxysmal Nocturnal Hemoglobinuria, 1 charity fund on this page accepts Medicare (1 open at our last check), and 1 drugmaker free medicine program names Medicare patients among those who may qualify. In 2026, Medicare Part D also caps yearly out-of-pocket costs for covered drugs at $2,100.
At our last check, NORD RareCare's PNH Medical Assistance fund, NORD RareCare's PNH Premium Copay Assistance fund, NORD RareCare's Paroxysmal Nocturnal Hemoglobinuria (PNH) Emergency Relief fund, The Assistance Fund's Paroxysmal Nocturnal Hemoglobinuria (PNH) fund, TotalAssist's Paroxysmal Nocturnal Hemoglobinuria fund were open to new applicants. Funds open and close as donations come in, so check the foundation's page before you apply.
Of the drugmaker programs for Paroxysmal Nocturnal Hemoglobinuria medicines, 2 offer free medicine to people without insurance who qualify, usually with income limits. Most charity funds pay copays and premiums, so they need some insurance. The drugmaker's support line can also check whether you qualify for coverage you don't have yet.
How we check: drugmaker programs come only from each drugmaker's own pages. Fund status is copied from each foundation's list (NORD RareCare, The Assistance Fund, TotalAssist, Aplastic Anemia & MDS International Foundation) on the date shown. Programs change, so confirm with the program before you rely on it. Trial Friend shares information, not financial, legal or medical advice, and each program decides who qualifies. See something wrong? Email jason@trialfriend.com.
