Help & Resources

Frequently Asked Questions

Everything you need to know about Trial Friend, how we source our data, and how clinical trials work.

About Trial FriendClinical TrialsRare DiseasesPrivacy & DataTrusted Sources

About Trial Friend

What is Trial Friend?

Trial Friend is a free tool that helps rare disease patients, caregivers, and families find and understand clinical trials. We pull real-time data from government databases and present it in plain language so you can make informed decisions with your care team.

Is Trial Friend a medical service?

No. Trial Friend is an informational tool. It does not provide medical advice, diagnose conditions, or recommend specific treatments. Always talk to your doctor or healthcare provider before considering participation in a clinical trial.

Is Trial Friend really free?

Yes, completely. There are no fees, no premium tiers, and no paywalls. We believe access to clinical trial information shouldn't have a price tag.

Do I need to create an account?

No. You can search and browse everything without signing up. The only optional feature is email alerts — if you want to be notified when new trials open for a condition, you can enter your email.

Who built Trial Friend?

Trial Friend was built by a small team that believes navigating rare diseases shouldn't feel so isolating. You can learn more on our About page.

Does Trial Friend sell my data?

No. We don't sell, share, or monetize your personal data. We use minimal analytics to improve the site. See our Privacy Policy for full details.

Clinical Trials

Where does the trial data come from?

All clinical trial data comes directly from ClinicalTrials.gov, the official database maintained by the U.S. National Library of Medicine. We query it in real time, so you always see the latest information.

How often is trial data updated?

We fetch trial data live from the ClinicalTrials.gov API every time you load a page. The data is as current as what's posted on ClinicalTrials.gov itself. Each trial card shows a freshness indicator based on when the trial sponsor last updated it.

What do the trial phases mean?

Phase 1 tests safety in a small group. Phase 2 tests effectiveness and side effects. Phase 3 compares the treatment to existing options in a larger group. Phase 4 happens after FDA approval to monitor long-term effects. Our Learn section has a detailed breakdown.

What does "Recruiting" mean?

A trial marked "Recruiting" is actively looking for participants. "Not Yet Recruiting" means the trial has been registered but hasn't started enrollment. These are the trials where you have the best chance of joining.

How does the AI translation work?

When you click "Translate to plain English," we send the eligibility criteria to an AI model that rewrites the medical language into everyday terms. It highlights key requirements like age ranges, prior treatments, and conditions. You can also hover or tap underlined medical terms throughout the site for instant definitions.

Can Trial Friend tell me if I qualify for a trial?

Our Match Me tool asks a few questions (condition, age, location, treatment history) and scores how well each trial fits your profile. But only the trial's research team can determine actual eligibility. Match Me helps you narrow the field so you're not reading through hundreds of irrelevant trials.

Why do some trials show no US locations?

Not all clinical trials are conducted in the United States. Some trials may only have sites in Europe, Asia, or other regions. We always show US locations first when they're available, and you can use the location filter in Match Me to focus on trials near you.

Rare Diseases

What counts as a rare disease?

In the United States, a rare disease is defined as a condition affecting fewer than 200,000 people. The European definition is fewer than 1 in 2,000. There are more than 7,000 known rare diseases, and collectively they affect roughly 30 million Americans.

How does the Symptom Finder work?

The Symptom Finder uses the Human Phenotype Ontology (HPO), a database of over 18,000 clinical features mapped to thousands of diseases. When you select symptoms, we use information-content scoring (inspired by the LIRICAL methodology) to rank diseases. Rare symptoms carry more weight than common ones, which makes the results more diagnostically useful.

What is Gene Search?

Gene Search lets you look up a gene name (like GBA or TTN) and see which diseases are associated with it, along with active clinical trials targeting that gene. It pulls data from multiple sources including ClinicalTrials.gov and the Open Targets Platform.

What is the Genetic Testing section on disease pages?

Each disease page shows labs that offer clinical genetic testing for that condition. This data comes from the NIH Genetic Testing Registry (GTR). Labs marked "Certified" meet federal CLIA quality standards. We prioritize US-based labs at the top of the list.

How is the drug pipeline information sourced?

The drug pipeline section on each disease page shows approved and investigational therapies. FDA-approved drug data comes from OpenFDA. The pipeline visualization showing drugs in various clinical trial phases is sourced from the Open Targets Platform, which aggregates data from ChEMBL, ClinicalTrials.gov, and FDA databases.

Privacy & Data

What data do you collect?

We collect minimal, anonymous usage analytics (pages visited, features used) to improve the site. If you sign up for email alerts, we store your email and selected condition. We do not track you across websites, sell data, or build advertising profiles.

Do you use cookies?

We use only essential cookies required for the site to function. We don't use advertising or third-party tracking cookies.

Is my search history saved?

No. We don't save your searches, the symptoms you select, or the trials you view. Each session starts fresh.

Trusted Sources

Trial Friend pulls data from government databases, academic institutions, and established medical organizations. Here is every source we use and how it powers the site.

Clinical Trial Data

ClinicalTrials.gov
U.S. National Library of Medicine (NLM)
The U.S. National Library of Medicine's official registry of clinical studies. Our primary data source for all trial information, including status, eligibility criteria, locations, sponsors, and results.

Rare Disease Information

Orphanet
INSERM / European Commission
European reference portal for information on rare diseases. Powers our Symptom Finder through the Human Phenotype Ontology (HPO) disease-phenotype annotations.
NIH Genetic and Rare Diseases Information Center (GARD)
National Institutes of Health (NIH)
Patient-friendly information on rare diseases from the National Institutes of Health. A trusted reference for disease overviews and patient resources.
National Organization for Rare Disorders (NORD)
NORD
Leading patient advocacy organization for rare disease communities. Provides disease guides, patient assistance programs, and research updates.
Online Mendelian Inheritance in Man (OMIM)
Johns Hopkins University
Comprehensive catalog of human genes and genetic disorders, with detailed clinical and molecular information for each condition.

Symptom & Phenotype Data

Human Phenotype Ontology (HPO)
The Jackson Laboratory / Monarch Initiative
Standardized vocabulary of over 18,000 phenotypic abnormalities. Powers our Symptom Finder's disease-matching algorithm with precise phenotype-to-disease mappings.
LIRICAL
Robinson et al., AJHG 2020
Likelihood Ratio Interpretation of Clinical Abnormalities. Our scoring algorithm is inspired by LIRICAL's information-content methodology for phenotype-driven genomic diagnostics.

Drug & Treatment Data

OpenFDA
U.S. Food & Drug Administration (FDA)
Open-access APIs from the U.S. Food and Drug Administration. We use this for FDA-approved drug information shown on disease pages.
Open Targets Platform
EMBL-EBI / Wellcome Sanger Institute / GSK
Drug pipeline and target validation data aggregated from ChEMBL, ClinicalTrials.gov, and the FDA. Powers the drug pipeline visualization on disease pages.

Genetic Testing

NIH Genetic Testing Registry (GTR)
National Center for Biotechnology Information (NCBI)
Comprehensive registry of genetic tests and laboratories. We query GTR to show which labs offer clinical genetic testing for each disease, including CLIA certification status.

Research & Publications

PubMed
National Library of Medicine (NLM)
Database of over 36 million biomedical literature citations. We surface recent research articles on each disease page to help patients and caregivers stay current.

Important: Trial Friend is not a medical service and does not provide medical advice. The information on this site is for educational purposes only. Always consult your healthcare provider before making decisions about clinical trial participation or treatment.