Zero ad trackers.We never sell your data.

Help paying for Pompe Disease treatment

We found 3 drugmaker programs for Pompe Disease medicines and 4 charity funds (1 open at our last check). Tell us your insurance below and we'll show what to try first.

Find what fits meCharity fundsDrugmaker programs
A family posing together for a picturePhoto: Daria Trofimova / Unsplash

What to try first, depending on your insurance

Help for Pompe Disease depends mostly on how you're covered. Pick the one that sounds like you. We'll name the funds and programs that fit, and what won't work, so you don't waste a phone call.

I have insurance through work or a plan I bought

4 funds and programs name private insurance
  • Apply to the Pompe Disease fund at TotalAssist. It was open on Oct 19 and pays up to $9,500 a year.
  • Taking Lumizyme? Ask CareConnect Personalized Support Services (CareConnectPSS) about its copay card, which can lower what you pay each fill.
  • Taking Nexviazyme? Ask CareConnect Personalized Support Services (CareConnectPSS) about its copay card, which can lower what you pay each fill.
  • You'll find 1 more drugmaker program for you further down this page.

I'm on Medicare

2 funds and programs name Medicare
  • Apply to the Pompe Disease fund at TotalAssist. It was open on Oct 19 and pays up to $9,500 a year.
  • Taking Pombiliti + Opfolda? AMICUS ASSIST offers insurance and case manager help to people with Medicare.
  • Drugmaker copay cards can't be used with Medicare. Federal rules bar them.
  • Medicare Part D caps what you pay for covered drugs at $2,100 a year in 2026.

Medicaid or CHIP covers me or my child

2 funds and programs name Medicaid
  • Apply to the Pompe Disease fund at TotalAssist. It was open on Oct 19 and pays up to $9,500 a year.
  • Taking Pombiliti + Opfolda? AMICUS ASSIST offers insurance and case manager help to people with Medicaid.
  • Drugmaker copay cards can't be used with Medicaid or CHIP. Federal rules bar them.
  • Federal rules keep Medicaid copays for medicine low, so most help here is with getting a prescription approved. The drugmaker's support line can help your doctor with that paperwork.

I have TRICARE or get care through the VA

2 funds and programs name TRICARE or VA
  • Apply to the Pompe Disease fund at TotalAssist. It was open on Oct 19 and pays up to $9,500 a year.
  • Taking Pombiliti + Opfolda? AMICUS ASSIST offers insurance and case manager help to people with TRICARE or VA coverage.
  • Drugmaker copay cards can't be used with TRICARE or the VA. Federal rules bar them.

I don't have insurance right now

3 funds and programs name people without insurance
  • Taking Lumizyme? CareConnect Personalized Support Services (CareConnectPSS) may give it to you free if you qualify, usually based on income.
  • Taking Nexviazyme? CareConnect Personalized Support Services (CareConnectPSS) may give it to you free if you qualify, usually based on income.
  • You'll find 1 more drugmaker program for you further down this page.
  • Charity funds pay copays and premiums, so nearly all of them need you to have some insurance.
  • Drugmaker support lines, such as CareConnect Personalized Support Services (CareConnectPSS) at 1-800-745-4447, can check whether you qualify for coverage you don't have yet.

Charity funds for Pompe Disease

Independent foundations pay copays, coinsurance and sometimes insurance premiums for people who already have coverage. Funds open and close as donations come in, so each one shows what the foundation said on the date we checked.

Open now1
Taking new applicants when we checked
TotalAssist

Pompe Disease fund

Covers: Out-of-pocket costs for approved medications. Up to $9,500 a year.

Requires health insurance (any kind)
Apply on the foundation's siteChecked October 19, 2026
Waitlist or ask2
Join the list or ask the fund
Muscular Dystrophy Association

MDA Durable Medical Equipment (DME) Grant Program fund

Covers: Medical equipment (wheelchairs, lifts, canes and other DME). Up to $1,000 a year.

“Status not shown on page”
See the fund's pageChecked October 19, 2026
The Assistance Fund

Pompe Disease fund

Covers: Copays, coinsurance, deductibles and other health-related expenses.

“WAITLIST — Accepting Waitlist Patients. TAF is currently accepting requests to join the enrollment waitlist for this…”
See the fund's pageChecked October 19, 2026
Closed for now1
Sign up to hear when it reopens
Good Days

Pompe Disease fund

Covers: Copays for FDA-approved medications (plus travel for some funds).

“Program Status: seeking. We are currently seeking funds for this disease. Please check back soon.”
Get the reopening alertChecked October 19, 2026

Help from the companies that make Pompe Disease medicines

Copay cards lower what people with private insurance pay. Federal rules bar them for Medicare, Medicaid and TRICARE. Free medicine programs are for people without enough coverage and usually have income limits. We read each program on the drugmaker's own site.

LumizymeAlglucosidase alfa

Support program: CareConnect Personalized Support Services (CareConnectPSS)
Insurance and case manager helpCopay helpFree medicine program
What each one covers and who qualifies
  • Insurance and case manager help

    Sanofi's CareConnectPSS offers a dedicated team for people with Pompe disease: disease education, insurance help and financial assistance options.

    The drugmaker's page doesn't say who qualifies, so ask the program. · source
  • Copay help

    CareConnect Copay Program may help with drug costs and certain infusion charges up to a program maximum for certain Sanofi therapies. Excludes Medicare, Medicaid, TRICARE.

    For: Private insurance · source
  • Free medicine program

    CareConnect Patient Assistance Program may give certain Sanofi therapies free to eligible patients without insurance or whose plan won't cover them, temporarily.

    For: No insurance, underinsured · source

Lumizyme's patient site points to CareConnectPSS. Sanofi's Lumizyme HCP page lists the CareConnect Copay Program application. No official patient page states Lumizyme-specific copay or free-drug terms, so confirm eligibility by calling 1-800-745-4447, option 3. Myozyme is the non-US brand name.

Read on the drugmaker's site September 24, 2026. Programs change, so confirm before you rely on it.

NexviazymeAvalglucosidase alfa

Support program: CareConnect Personalized Support Services (CareConnectPSS)
Copay helpInfusion cost helpBridge or quick-start supplyFree medicine programInsurance and case manager help
What each one covers and who qualifies
  • Copay help

    Copay Assistance Program covers 100% of eligible out-of-pocket NEXVIAZYME drug costs up to a program maximum. Excludes Medicare, Medicaid, VA, DoD, TRICARE.

    For: Private insurance · source
  • Infusion cost help

    The copay program also covers certain infusion-related costs (mixing, administration, supplies). Not covered for residents of MA or RI.

    For: Private insurance · source
  • Bridge or quick-start supply

    QuickStart provides NEXVIAZYME at no charge to eligible commercially insured patients during authorization review or coverage delays or denials, typically up to 4 infusions.

    For: Private insurance · source
  • Free medicine program

    Patient Assistance Program may provide NEXVIAZYME to patients with no insurance or whose insurance denied coverage; apply with your doctor.

    For: No insurance, underinsured · source
  • Insurance and case manager help

    Patient Education Liaison and Case Manager help with benefits, insurance and financial resources.

    The drugmaker's page doesn't say who qualifies, so ask the program. · source

Detailed program terms are on Sanofi's official NEXVIAZYME HCP page; the patient page confirms CareConnectPSS support. Call 1-800-745-4447, option 3.

Read on the drugmaker's site September 24, 2026. Programs change, so confirm before you rely on it.

Pombiliti + OpfoldaCipaglucosidase alfa + miglustat

Support program: AMICUS ASSIST
Copay helpFree medicine programInsurance and case manager help
What each one covers and who qualifies
  • Copay help

    Eligible commercially insured patients may pay as little as $0 per month. Annual maximum applies; not for Medicare, Medicaid, TRICARE or VA.

    For: Private insurance · source
  • Free medicine program

    The Amicus Patient Assistance Program provides free product to eligible uninsured or underinsured patients.

    For: No insurance, underinsured · source
  • Insurance and case manager help

    Case Managers verify and explain insurance coverage, help with prior authorization and coordinate deliveries.

    For: Private insurance, Medicare, Medicaid, TRICARE or VA, No insurance, underinsured · source

Your doctor enrolls you with the Patient Referral Form. Co-pay help does not cover infusion-related costs for Rhode Island residents. Spanish-speaking case managers available.

Read on the drugmaker's site September 24, 2026. Programs change, so confirm before you rely on it.

Before you pick up the phone

Most of these programs start with one call, and having these ready makes it shorter. Tick them off as you go. Nothing here is saved or sent anywhere.

Call the drugmaker's support line first. Its case managers check your benefits and often fill out forms with your doctor. If a charity fund is closed, sign up on the foundation's page to hear when it reopens. Most programs need renewing every year, and many copay cards reset in January.

Questions people ask about paying for Pompe Disease treatment

Is there financial help for Pompe Disease treatment?

Yes. Trial Friend lists 3 drugmaker programs for Pompe Disease medicines and 4 charity funds, 1 of them open at our last check. We checked every one at the source on or before October 19, 2026. Which ones fit depends on your insurance. Copay cards are for people with private insurance, charity funds usually need some insurance, and free medicine programs are for people without enough coverage.

Can I use a copay card for Pompe Disease medicine if I have Medicare?

No. Federal rules bar drugmaker copay cards for drugs paid by Medicare, Medicaid or TRICARE. For Pompe Disease, 1 charity fund on this page accepts Medicare (1 open at our last check), and 0 drugmaker free medicine programs name Medicare patients among those who may qualify. In 2026, Medicare Part D also caps yearly out-of-pocket costs for covered drugs at $2,100.

Which Pompe Disease charity funds are open right now?

At our last check, TotalAssist's Pompe Disease fund was open to new applicants. Funds open and close as donations come in, so check the foundation's page before you apply.

What help is there for Pompe Disease treatment without insurance?

Of the drugmaker programs for Pompe Disease medicines, 3 offer free medicine to people without insurance who qualify, usually with income limits. Most charity funds pay copays and premiums, so they need some insurance. The drugmaker's support line can also check whether you qualify for coverage you don't have yet.

Where to go next

Understand it
Pompe Disease guide and clinical trials →
Nearby
Pompe Disease trial sites near you →
Every condition
Help paying for all rare disease medicines →

How we check: drugmaker programs come only from each drugmaker's own pages. Fund status is copied from each foundation's list (TotalAssist, Muscular Dystrophy Association, The Assistance Fund, Good Days) on the date shown. Programs change, so confirm with the program before you rely on it. Trial Friend shares information, not financial, legal or medical advice, and each program decides who qualifies. See something wrong? Email jason@trialfriend.com.