I have insurance through work or a plan I bought
1 fund or program names private insurance
- Taking Miplyffa? Ask AmplifyAssist (Zevra Therapeutics) about its copay card, which can lower what you pay each fill.
Help paying for Niemann-Pick Disease treatment
We found 1 drugmaker program for Niemann-Pick Disease medicines and 5 charity funds (4 open at our last check). Tell us your insurance below and we'll show what to try first.
What to try first, depending on your insurance
Help for Niemann-Pick Disease depends mostly on how you're covered. Pick the one that sounds like you. We'll name the funds and programs that fit, and what won't work, so you don't waste a phone call.
I'm on Medicare
Nothing published names this yet
- We didn't find a fund or drugmaker program for Niemann-Pick Disease that names your situation. Call the drugmaker's support line anyway. Case managers often know options that aren't published.
- Drugmaker copay cards can't be used with Medicare. Federal rules bar them.
- Medicare Part D caps what you pay for covered drugs at $2,100 a year in 2026.
Medicaid or CHIP covers me or my child
Nothing published names this yet
- We didn't find a fund or drugmaker program for Niemann-Pick Disease that names your situation. Call the drugmaker's support line anyway. Case managers often know options that aren't published.
- Drugmaker copay cards can't be used with Medicaid or CHIP. Federal rules bar them.
- Federal rules keep Medicaid copays for medicine low, so most help here is with getting a prescription approved. The drugmaker's support line can help your doctor with that paperwork.
I have TRICARE or get care through the VA
Nothing published names this yet
- We didn't find a fund or drugmaker program for Niemann-Pick Disease that names your situation. Call the drugmaker's support line anyway. Case managers often know options that aren't published.
- Drugmaker copay cards can't be used with TRICARE or the VA. Federal rules bar them.
I don't have insurance right now
Nothing published names this yet
- We didn't find a fund or drugmaker program for Niemann-Pick Disease that names your situation. Call the drugmaker's support line anyway. Case managers often know options that aren't published.
- Charity funds pay copays and premiums, so nearly all of them need you to have some insurance.
- Drugmaker support lines, such as AmplifyAssist (Zevra Therapeutics) at 1-888-668-4198, can check whether you qualify for coverage you don't have yet.
Charity funds for Niemann-Pick Disease
Independent foundations pay copays, coinsurance and sometimes insurance premiums for people who already have coverage. Funds open and close as donations come in, so each one shows what the foundation said on the date we checked.
Open now4
Taking new applicants when we checked
NORD RareCare
ASMD Medical Assistance fund
Covers: Medical and medication costs.
“Accepting Applications”
Apply on the foundation's siteChecked October 19, 2026
NORD RareCare
ASMD Premium Copay fund
Covers: Insurance premiums and copays.
“Accepting Applications”
Apply on the foundation's siteChecked October 19, 2026
The Assistance Fund
Acid Sphingomyelinase Deficiency (ASMD) fund
Covers: Copays, coinsurance, deductibles and other health-related expenses.
“OPEN — Accepting New Patients. TAF is currently accepting new patient enrollments for this program.”
Apply on the foundation's siteChecked October 19, 2026
The Assistance Fund
Niemann-Pick Disease Type C (NPC) fund
Covers: Copays, coinsurance, deductibles and other health-related expenses.
“OPEN — Accepting New Patients. TAF is currently accepting new patient enrollments for this program.”
Apply on the foundation's siteChecked October 19, 2026
Waitlist or ask1
Join the list or ask the fund
National Niemann-Pick Disease Foundation
Family Assistance and Support Program (FASP) fund
Covers: Equipment, durable medical goods, utilities, home and car adaptations, rent or mortgage (per 12 months; not copays, premiums or travel). Up to $1,000 a year.
“Status not shown on page”
See the fund's pageChecked October 19, 2026
Closed for now0
Sign up to hear when it reopens
None at our last check.
Help from the companies that make Niemann-Pick Disease medicines
Copay cards lower what people with private insurance pay. Federal rules bar them for Medicare, Medicaid and TRICARE. Free medicine programs are for people without enough coverage and usually have income limits. We read each program on the drugmaker's own site.
MiplyffaArimoclomol
Support program: AmplifyAssist (Zevra Therapeutics)
Copay helpFree medicine programInsurance and case manager help
What each one covers and who qualifies
- Copay help
Commercial copay assistance program for eligible patients prescribed Miplyffa. Eligibility criteria and maximum limits apply; the copay amount is not published.
For: Private insurance · source - Free medicine program
Supply of product free of charge to eligible patients. Eligibility criteria and maximum limits apply and are not published.
The drugmaker's page doesn't say who qualifies, so ask the program. · source - Insurance and case manager help
AmplifyAssist coordinates with insurers and doctors to secure coverage, sends letter of medical necessity templates, explains coverage and out-of-pocket costs, helps find alternative funding for patients who do not qualify for copay help, and schedules home delivery and monthly refill reminders. Enrollment starts when the doctor sends a prescription enrollment form. Hours are Monday to Friday, 8 am to 6 pm CT.
The drugmaker's page doesn't say who qualifies, so ask the program. · source
Zevra launched AmplifyAssist with the Miplyffa approval on September 20, 2024 (Zevra press release). The program page lists Orsini Specialty Pharmacy as its address. Copay amount and free-drug criteria are not published.
Read on the drugmaker's site September 29, 2026. Programs change, so confirm before you rely on it.
Before you pick up the phone
Most of these programs start with one call, and having these ready makes it shorter. Tick them off as you go. Nothing here is saved or sent anywhere.
Call the drugmaker's support line first. Its case managers check your benefits and often fill out forms with your doctor. If a charity fund is closed, sign up on the foundation's page to hear when it reopens. Most programs need renewing every year, and many copay cards reset in January.
Questions people ask about paying for Niemann-Pick Disease treatment
Is there financial help for Niemann-Pick Disease treatment?
Yes. Trial Friend lists 1 drugmaker program for Niemann-Pick Disease medicines and 5 charity funds, 4 of them open at our last check. We checked every one at the source on or before October 19, 2026. Which ones fit depends on your insurance. Copay cards are for people with private insurance, charity funds usually need some insurance, and free medicine programs are for people without enough coverage.
Can I use a copay card for Niemann-Pick Disease medicine if I have Medicare?
No. Federal rules bar drugmaker copay cards for drugs paid by Medicare, Medicaid or TRICARE. For Niemann-Pick Disease, 0 charity funds on this page accept Medicare, and 0 drugmaker free medicine programs name Medicare patients among those who may qualify. In 2026, Medicare Part D also caps yearly out-of-pocket costs for covered drugs at $2,100.
Which Niemann-Pick Disease charity funds are open right now?
At our last check, NORD RareCare's ASMD Medical Assistance fund, NORD RareCare's ASMD Premium Copay fund, The Assistance Fund's Acid Sphingomyelinase Deficiency (ASMD) fund, The Assistance Fund's Niemann-Pick Disease Type C (NPC) fund were open to new applicants. Funds open and close as donations come in, so check the foundation's page before you apply.
What help is there for Niemann-Pick Disease treatment without insurance?
None of the drugmaker programs for Niemann-Pick Disease medicines on this page says it gives free medicine to people without insurance. Their support lines can still check what you qualify for. Most charity funds need some insurance.
Where to go next
How we check: drugmaker programs come only from each drugmaker's own pages. Fund status is copied from each foundation's list (NORD RareCare, The Assistance Fund, National Niemann-Pick Disease Foundation) on the date shown. Programs change, so confirm with the program before you rely on it. Trial Friend shares information, not financial, legal or medical advice, and each program decides who qualifies. See something wrong? Email jason@trialfriend.com.