Zero ad trackers.We never sell your data.

Help paying for Fabry Disease treatment

We found 3 drugmaker programs for Fabry Disease medicines and 6 charity funds (3 open at our last check). Tell us your insurance below and we'll show what to try first.

Find what fits meCharity fundsDrugmaker programs
A smiling woman in a gray hoodiePhoto: Brian Wangenheim / Unsplash

What to try first, depending on your insurance

Help for Fabry Disease depends mostly on how you're covered. Pick the one that sounds like you. We'll name the funds and programs that fit, and what won't work, so you don't waste a phone call.

I have insurance through work or a plan I bought

4 funds and programs name private insurance
  • Apply to the Fabry Disease fund at TotalAssist. It was open on Oct 19 and pays up to $9,000 a year.
  • Taking Elfabrio? Ask Chiesi Total Care about its copay card, which can lower what you pay each fill.
  • Taking Fabrazyme? Ask CareConnect Personalized Support Services (CareConnectPSS) about its copay card, which can lower what you pay each fill.
  • You'll find 1 more drugmaker program for you further down this page.

I'm on Medicare

2 funds and programs name Medicare
  • Apply to the Fabry Disease fund at TotalAssist. It was open on Oct 19 and pays up to $9,000 a year.
  • Taking Galafold? AMICUS ASSIST offers insurance and case manager help to people with Medicare.
  • Drugmaker copay cards can't be used with Medicare. Federal rules bar them.
  • Medicare Part D caps what you pay for covered drugs at $2,100 a year in 2026.

Medicaid or CHIP covers me or my child

2 funds and programs name Medicaid
  • Apply to the Fabry Disease fund at TotalAssist. It was open on Oct 19 and pays up to $9,000 a year.
  • Taking Galafold? AMICUS ASSIST offers insurance and case manager help to people with Medicaid.
  • Drugmaker copay cards can't be used with Medicaid or CHIP. Federal rules bar them.
  • Federal rules keep Medicaid copays for medicine low, so most help here is with getting a prescription approved. The drugmaker's support line can help your doctor with that paperwork.

I have TRICARE or get care through the VA

2 funds and programs name TRICARE or VA
  • Apply to the Fabry Disease fund at TotalAssist. It was open on Oct 19 and pays up to $9,000 a year.
  • Taking Galafold? AMICUS ASSIST offers insurance and case manager help to people with TRICARE or VA coverage.
  • Drugmaker copay cards can't be used with TRICARE or the VA. Federal rules bar them.

I don't have insurance right now

2 funds and programs name people without insurance
  • Taking Fabrazyme? CareConnect Personalized Support Services (CareConnectPSS) may give it to you free if you qualify, usually based on income.
  • Taking Galafold? AMICUS ASSIST may give it to you free if you qualify, usually based on income.
  • Charity funds pay copays and premiums, so nearly all of them need you to have some insurance.
  • Drugmaker support lines, such as Chiesi Total Care at 1-800-784-5840, can check whether you qualify for coverage you don't have yet.

Charity funds for Fabry Disease

Independent foundations pay copays, coinsurance and sometimes insurance premiums for people who already have coverage. Funds open and close as donations come in, so each one shows what the foundation said on the date we checked.

Open now3
Taking new applicants when we checked
NORD RareCare

Fabry Disease Medical Assistance fund

Covers: Medical and medication costs.

“Accepting Applications”
Apply on the foundation's siteChecked October 19, 2026
NORD RareCare

Fabry Disease Premium Copay Assistance fund

Covers: Insurance premiums and copays.

“Accepting Applications”
Apply on the foundation's siteChecked October 19, 2026
TotalAssist

Fabry Disease fund

Covers: Out-of-pocket costs for approved medications. Up to $9,000 a year.

Requires health insurance (any kind)
Apply on the foundation's siteChecked October 19, 2026
Waitlist or ask2
Join the list or ask the fund
Fabry Support & Information Group

Fabry Assist fund

Covers: One-time help with past-due Fabry-related medical bills, non-pharmacy medical items (cooling vests, compression stockings, hearing aids), Fabry testing and limited travel.

“Status not shown on page”
See the fund's pageChecked October 19, 2026
The Assistance Fund

Fabry Disease fund

Covers: Copays, coinsurance, deductibles and other health-related expenses.

“WAITLIST — Accepting Waitlist Patients. TAF is currently accepting requests to join the enrollment waitlist for this…”
See the fund's pageChecked October 19, 2026
Closed for now1
Sign up to hear when it reopens
Good Days

Fabry Disease fund

Covers: Copays for FDA-approved medications (plus travel for some funds).

“Program Status: seeking. We are currently seeking funds for this disease. Please check back soon.”
Get the reopening alertChecked October 19, 2026

Help from the companies that make Fabry Disease medicines

Copay cards lower what people with private insurance pay. Federal rules bar them for Medicare, Medicaid and TRICARE. Free medicine programs are for people without enough coverage and usually have income limits. We read each program on the drugmaker's own site.

ElfabrioPegunigalsidase alfa

Support program: Chiesi Total Care
Copay helpInfusion cost helpInsurance and case manager help
What each one covers and who qualifies
  • Copay help

    Prescription Copay: eligible commercially insured patients may pay as little as $0 for Elfabrio. Government-funded plans are not eligible.

    For: Private insurance · source
  • Infusion cost help

    Infusion Services Copay: may pay as little as $0 for infusion supplies and administration, including home infusion. Not for MA or RI.

    For: Private insurance · source
  • Insurance and case manager help

    Patient Service Managers help with coverage, finding an infusion site, and home infusion eligibility.

    The drugmaker's page doesn't say who qualifies, so ask the program. · source

Home infusion support requires a referral from your doctor. Uninsured patients may be eligible for financial assistance, but details are not given.

Read on the drugmaker's site October 12, 2026. Programs change, so confirm before you rely on it.

FabrazymeAgalsidase beta

Support program: CareConnect Personalized Support Services (CareConnectPSS)
Copay helpInfusion cost helpFree medicine programInsurance and case manager help
What each one covers and who qualifies
  • Copay help

    CareConnectPSS Copay Assistance Program helps with Fabrazyme copays, coinsurance and deductibles up to a program maximum. Excludes Medicare, Medicaid, VA, DoD, TRICARE.

    For: Private insurance · source
  • Infusion cost help

    The copay program also covers certain infusion-related costs (mixing, administration, supplies). Not covered for residents of MA or RI.

    For: Private insurance · source
  • Free medicine program

    Patient Assistance Program may provide Fabrazyme to patients with no insurance or whose insurance denied coverage; apply with your doctor.

    For: No insurance, underinsured · source
  • Insurance and case manager help

    Case Manager helps with insurance, out-of-pocket costs and claims; Patient Education Liaisons offer disease education.

    The drugmaker's page doesn't say who qualifies, so ask the program. · source

Call 1-800-745-4447, option 3. Sanofi describes the free-drug program as a temporary solution until coverage is secured. The copay program does not cover office visits, labs, premedications or travel.

Read on the drugmaker's site September 24, 2026. Programs change, so confirm before you rely on it.

GalafoldMigalastat

Support program: AMICUS ASSIST
Copay helpFree medicine programInsurance and case manager help
What each one covers and who qualifies
  • Copay help

    Eligible commercially insured patients may pay as little as $0 per month. Program maximums apply; not for Medicare, Medicaid, TRICARE or VA.

    For: Private insurance · source
  • Free medicine program

    The Amicus Patient Assistance Program provides free product to eligible uninsured or underinsured patients.

    For: No insurance, underinsured · source
  • Insurance and case manager help

    Case Managers verify and explain insurance coverage, help with prior authorization and coordinate at-home deliveries.

    For: Private insurance, Medicare, Medicaid, TRICARE or VA, No insurance, underinsured · source

Your doctor enrolls you with the Patient Referral Form. Spanish-speaking case managers available.

Read on the drugmaker's site September 24, 2026. Programs change, so confirm before you rely on it.

Before you pick up the phone

Most of these programs start with one call, and having these ready makes it shorter. Tick them off as you go. Nothing here is saved or sent anywhere.

Call the drugmaker's support line first. Its case managers check your benefits and often fill out forms with your doctor. If a charity fund is closed, sign up on the foundation's page to hear when it reopens. Most programs need renewing every year, and many copay cards reset in January.

Questions people ask about paying for Fabry Disease treatment

Is there financial help for Fabry Disease treatment?

Yes. Trial Friend lists 3 drugmaker programs for Fabry Disease medicines and 6 charity funds, 3 of them open at our last check. We checked every one at the source on or before October 19, 2026. Which ones fit depends on your insurance. Copay cards are for people with private insurance, charity funds usually need some insurance, and free medicine programs are for people without enough coverage.

Can I use a copay card for Fabry Disease medicine if I have Medicare?

No. Federal rules bar drugmaker copay cards for drugs paid by Medicare, Medicaid or TRICARE. For Fabry Disease, 1 charity fund on this page accepts Medicare (1 open at our last check), and 0 drugmaker free medicine programs name Medicare patients among those who may qualify. In 2026, Medicare Part D also caps yearly out-of-pocket costs for covered drugs at $2,100.

Which Fabry Disease charity funds are open right now?

At our last check, NORD RareCare's Fabry Disease Medical Assistance fund, NORD RareCare's Fabry Disease Premium Copay Assistance fund, TotalAssist's Fabry Disease fund were open to new applicants. Funds open and close as donations come in, so check the foundation's page before you apply.

What help is there for Fabry Disease treatment without insurance?

Of the drugmaker programs for Fabry Disease medicines, 2 offer free medicine to people without insurance who qualify, usually with income limits. Most charity funds pay copays and premiums, so they need some insurance. The drugmaker's support line can also check whether you qualify for coverage you don't have yet.

Where to go next

Understand it
Fabry Disease guide and clinical trials →
Compare
Fabry Disease treatments side by side →
Nearby
Fabry Disease trial sites near you →
Every condition
Help paying for all rare disease medicines →

How we check: drugmaker programs come only from each drugmaker's own pages. Fund status is copied from each foundation's list (NORD RareCare, TotalAssist, Fabry Support & Information Group, The Assistance Fund, Good Days) on the date shown. Programs change, so confirm with the program before you rely on it. Trial Friend shares information, not financial, legal or medical advice, and each program decides who qualifies. See something wrong? Email jason@trialfriend.com.