We found 2 drugmaker programs for Neurofibromatosis Type 1 medicines and 4 charity funds (4 open at our last check). Tell us your insurance below and we'll show what to try first.
Help for Neurofibromatosis Type 1 depends mostly on how you're covered. Pick the one that sounds like you. We'll name the funds and programs that fit, and what won't work, so you don't waste a phone call.
Independent foundations pay copays, coinsurance and sometimes insurance premiums for people who already have coverage. Funds open and close as donations come in, so each one shows what the foundation said on the date we checked.
Covers: Medical and medication costs.
Covers: Insurance premiums and copays.
Covers: Copays, coinsurance, deductibles and other health-related expenses.
Covers: Out-of-pocket costs for approved medications. Up to $6,400 a year.
Copay cards lower what people with private insurance pay. Federal rules bar them for Medicare, Medicaid and TRICARE. Free medicine programs are for people without enough coverage and usually have income limits. We read each program on the drugmaker's own site.
Commercially insured patients may pay as little as $0 per 21-day supply; may also cover some treatment-related tests and visits. Annual maximums apply.
Patient Assistance Program may provide Gomekli at no cost to uninsured patients, those lacking coverage, or with financial hardship; household income limits apply.
Nurse Advocates help with insurance coverage, financial options and treatment questions.
Program site is springworkstxcares.com (844-CARES-55). SpringWorks is now part of Merck KGaA, Darmstadt, Germany.
Eligible commercially insured patients may pay as little as $0 for KOSELUGO through the Koselugo CoPay Program. Must enroll in OneSource. Not for government insurance.
OneSource provides help navigating health insurance, treatment education, and a local Patient Education Manager.
Official pages do not describe a free drug program for Koselugo, and Koselugo is not on the AstraZeneca AZ&Me free-drug list. Patients with Medicare or Medicaid can be connected to third-party resources.
Most of these programs start with one call, and having these ready makes it shorter. Tick them off as you go. Nothing here is saved or sent anywhere.
Call the drugmaker's support line first. Its case managers check your benefits and often fill out forms with your doctor. If a charity fund is closed, sign up on the foundation's page to hear when it reopens. Most programs need renewing every year, and many copay cards reset in January.
Yes. Trial Friend lists 2 drugmaker programs for Neurofibromatosis Type 1 medicines and 4 charity funds, 4 of them open at our last check. We checked every one at the source on or before October 19, 2026. Which ones fit depends on your insurance. Copay cards are for people with private insurance, charity funds usually need some insurance, and free medicine programs are for people without enough coverage.
No. Federal rules bar drugmaker copay cards for drugs paid by Medicare, Medicaid or TRICARE. For Neurofibromatosis Type 1, 1 charity fund on this page accepts Medicare (1 open at our last check), and 0 drugmaker free medicine programs name Medicare patients among those who may qualify. In 2026, Medicare Part D also caps yearly out-of-pocket costs for covered drugs at $2,100.
At our last check, NORD RareCare's Neurofibromatosis Type 1 Medical Assistance fund, NORD RareCare's Neurofibromatosis Type 1 Premium Copay Assistance fund, The Assistance Fund's Neurofibromatosis fund, TotalAssist's Neurofibromatosis fund were open to new applicants. Funds open and close as donations come in, so check the foundation's page before you apply.
Of the drugmaker programs for Neurofibromatosis Type 1 medicines, 1 offers free medicine to people without insurance who qualify, usually with income limits. Most charity funds pay copays and premiums, so they need some insurance. The drugmaker's support line can also check whether you qualify for coverage you don't have yet.
How we check: drugmaker programs come only from each drugmaker's own pages. Fund status is copied from each foundation's list (NORD RareCare, The Assistance Fund, TotalAssist) on the date shown. Programs change, so confirm with the program before you rely on it. Trial Friend shares information, not financial, legal or medical advice, and each program decides who qualifies. See something wrong? Email jason@trialfriend.com.
