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Help paying for Cushing Disease treatment

We found 4 drugmaker programs for Cushing Disease medicines and 5 charity funds (4 open at our last check). Tell us your insurance below and we'll show what to try first.

Find what fits meCharity fundsDrugmaker programs
A man reading a letter at his kitchen tablePhoto: Vitaly Gariev / Unsplash

What to try first, depending on your insurance

Help for Cushing Disease depends mostly on how you're covered. Pick the one that sounds like you. We'll name the funds and programs that fit, and what won't work, so you don't waste a phone call.

I have insurance through work or a plan I bought

4 funds and programs name private insurance
  • Apply to the Cushing's Disease or Syndrome fund at TotalAssist. It was open on Oct 19 and pays up to $9,500 a year.
  • Taking Isturisa? Ask R.A.R.E. Patient Support Program (Recordati Rare Diseases) about its copay card, which can lower what you pay each fill.
  • Taking Recorlev? Ask Xeris CareConnection about its copay card, which can lower what you pay each fill.
  • You'll find 1 more drugmaker program for you further down this page.

I'm on Medicare

1 fund or program names Medicare
  • Apply to the Cushing's Disease or Syndrome fund at TotalAssist. It was open on Oct 19 and pays up to $9,500 a year.
  • Drugmaker copay cards can't be used with Medicare. Federal rules bar them.
  • Medicare Part D caps what you pay for covered drugs at $2,100 a year in 2026.

Medicaid or CHIP covers me or my child

1 fund or program names Medicaid
  • Apply to the Cushing's Disease or Syndrome fund at TotalAssist. It was open on Oct 19 and pays up to $9,500 a year.
  • Drugmaker copay cards can't be used with Medicaid or CHIP. Federal rules bar them.
  • Federal rules keep Medicaid copays for medicine low, so most help here is with getting a prescription approved. The drugmaker's support line can help your doctor with that paperwork.

I have TRICARE or get care through the VA

1 fund or program names TRICARE or VA
  • Apply to the Cushing's Disease or Syndrome fund at TotalAssist. It was open on Oct 19 and pays up to $9,500 a year.
  • Drugmaker copay cards can't be used with TRICARE or the VA. Federal rules bar them.

I don't have insurance right now

3 funds and programs name people without insurance
  • Taking Isturisa? R.A.R.E. Patient Support Program (Recordati Rare Diseases) may give it to you free if you qualify, usually based on income.
  • Taking Korlym? Support Program for Access and Reimbursement for Korlym may give it to you free if you qualify, usually based on income.
  • You'll find 1 more drugmaker program for you further down this page.
  • Charity funds pay copays and premiums, so nearly all of them need you to have some insurance.
  • Drugmaker support lines, such as R.A.R.E. Patient Support Program (Recordati Rare Diseases) at 1-888-855-7273, can check whether you qualify for coverage you don't have yet.

Charity funds for Cushing Disease

Independent foundations pay copays, coinsurance and sometimes insurance premiums for people who already have coverage. Funds open and close as donations come in, so each one shows what the foundation said on the date we checked.

Open now4
Taking new applicants when we checked
HealthWell Foundation

Cushing's Disease or Cushing's Syndrome fund

Covers: Copays, premiums or other treatment costs.

Apply on the foundation's siteChecked October 19, 2026
NORD RareCare

Cushing's Syndrome Medical Assistance fund

Covers: Medical and medication costs.

“Accepting new applications and re-enrollments for next year”
Apply on the foundation's siteChecked October 19, 2026
NORD RareCare

Cushing's Syndrome Premium Copay Assistance fund

Covers: Insurance premiums and copays.

“Accepting new applications and re-enrollments for next year”
Apply on the foundation's siteChecked October 19, 2026
TotalAssist

Cushing's Disease or Syndrome fund

Covers: Out-of-pocket costs for approved medications. Up to $9,500 a year.

Requires health insurance (any kind)
Apply on the foundation's siteChecked October 19, 2026
Waitlist or ask0
Join the list or ask the fund
None at our last check.
Closed for now1
Sign up to hear when it reopens
Good Days

Cushing's Disease fund

Covers: Copays for FDA-approved medications (plus travel for some funds).

“Program Status: seeking. We are currently seeking funds for this disease. Please check back soon.”
Get the reopening alertChecked October 19, 2026

Help from the companies that make Cushing Disease medicines

Copay cards lower what people with private insurance pay. Federal rules bar them for Medicare, Medicaid and TRICARE. Free medicine programs are for people without enough coverage and usually have income limits. We read each program on the drugmaker's own site.

IsturisaOsilodrostat

Support program: R.A.R.E. Patient Support Program (Recordati Rare Diseases)
Copay helpInsurance and case manager helpFree medicine program
What each one covers and who qualifies
  • Copay help

    Qualified patients with commercial insurance pay a $20 co-pay. Eligibility requirements, restrictions and limitations apply.

    For: Private insurance · source
  • Insurance and case manager help

    Reimbursement team helps with prior authorization, appeals and benefit checks; nurse educators and 24/7 pharmacists support treatment.

    The drugmaker's page doesn't say who qualifies, so ask the program. · source
  • Free medicine program

    For uninsured or underinsured patients, R.A.R.E. can coordinate support from the Recordati Rare Diseases Patient Assistance Program.

    For: No insurance, underinsured · source

Patients prescribed Isturisa are automatically eligible for R.A.R.E. services; enrollment is processed with the prescription. Phone 1-888-855-RARE (7273), Mon-Fri 8AM-8PM ET. Uninsured patients who meet certain financial requirements may qualify for the Patient Assistance Program; exact income limits are not published.

Read on the drugmaker's site September 24, 2026. Programs change, so confirm before you rely on it.

KorlymMifepristone

Support program: Support Program for Access and Reimbursement for Korlym
Copay helpFree medicine programBridge or quick-start supplyInsurance and case manager help
What each one covers and who qualifies
  • Copay help

    A Co-Pay Assistance Program is available; eligibility is not stated on the page.

    The drugmaker's page doesn't say who qualifies, so ask the program. · source
  • Free medicine program

    Patient Assistance Program for qualifying patients; free medication for eligible patients who have no insurance or were denied coverage.

    For: No insurance · source
  • Bridge or quick-start supply

    Free medication for eligible patients while they seek insurance approval.

    The drugmaker's page doesn't say who qualifies, so ask the program. · source
  • Insurance and case manager help

    Patient Access Coordinator checks insurance benefits, helps with prior authorization and coordinates home delivery; 24/7 specialty pharmacist.

    The drugmaker's page doesn't say who qualifies, so ask the program. · source

Korlym is not sold at retail pharmacies. The page does not say who qualifies for the copay program or what income limits apply.

Read on the drugmaker's site September 24, 2026. Programs change, so confirm before you rely on it.

RecorlevLevoketoconazole

Support program: Xeris CareConnection
Copay helpInsurance and case manager help
What each one covers and who qualifies
  • Copay help

    Eligible commercially insured patients may pay as little as $0. Eligibility requirements, restrictions and limits apply.

    For: Private insurance · source
  • Insurance and case manager help

    A dedicated Patient Access Manager checks in regularly and helps with insurance; PANTHERx Rare Pharmacy, the only pharmacy that carries RECORLEV, delivers it to your home.

    The drugmaker's page doesn't say who qualifies, so ask the program. · source

The pages say the team helps patients with and without insurance, and can share information if you have no health insurance. They do not describe a free-drug program or its eligibility.

Read on the drugmaker's site September 24, 2026. Programs change, so confirm before you rely on it.

SigniforPasireotide

Support program: R.A.R.E. Patient Support Program (Recordati Access, Resources, and Engagement)
Copay helpOther supportInsurance and case manager help
What each one covers and who qualifies
  • Copay help

    Copay assistance is available to reduce out-of-pocket costs for eligible patients. Recordati states a $20 co-pay for eligible commercially insured patients.

    For: Private insurance · source
  • Other support

    R.A.R.E. coordinates patient assistance programs for eligible patients who are uninsured or underinsured. Restrictions apply.

    For: No insurance, underinsured · source
  • Insurance and case manager help

    Help with insurance verification, prior authorization, specialty pharmacy delivery, and a clinical nurse specialist for medication questions.

    The drugmaker's page doesn't say who qualifies, so ask the program. · source

SIGNIFOR and SIGNIFOR LAR are marketed in the US by Recordati Rare Diseases, not Novartis. The Cushing's page does not state the copay dollar amount; the $20 figure comes from the acromegaly patient page for the same program. Free-drug income rules are not published.

Read on the drugmaker's site October 5, 2026. Programs change, so confirm before you rely on it.

Before you pick up the phone

Most of these programs start with one call, and having these ready makes it shorter. Tick them off as you go. Nothing here is saved or sent anywhere.

Call the drugmaker's support line first. Its case managers check your benefits and often fill out forms with your doctor. If a charity fund is closed, sign up on the foundation's page to hear when it reopens. Most programs need renewing every year, and many copay cards reset in January.

Questions people ask about paying for Cushing Disease treatment

Is there financial help for Cushing Disease treatment?

Yes. Trial Friend lists 4 drugmaker programs for Cushing Disease medicines and 5 charity funds, 4 of them open at our last check. We checked every one at the source on or before October 19, 2026. Which ones fit depends on your insurance. Copay cards are for people with private insurance, charity funds usually need some insurance, and free medicine programs are for people without enough coverage.

Can I use a copay card for Cushing Disease medicine if I have Medicare?

No. Federal rules bar drugmaker copay cards for drugs paid by Medicare, Medicaid or TRICARE. For Cushing Disease, 1 charity fund on this page accepts Medicare (1 open at our last check), and 0 drugmaker free medicine programs name Medicare patients among those who may qualify. In 2026, Medicare Part D also caps yearly out-of-pocket costs for covered drugs at $2,100.

Which Cushing Disease charity funds are open right now?

At our last check, HealthWell Foundation's Cushing's Disease or Cushing's Syndrome fund, NORD RareCare's Cushing's Syndrome Medical Assistance fund, NORD RareCare's Cushing's Syndrome Premium Copay Assistance fund, TotalAssist's Cushing's Disease or Syndrome fund were open to new applicants. Funds open and close as donations come in, so check the foundation's page before you apply.

What help is there for Cushing Disease treatment without insurance?

Of the drugmaker programs for Cushing Disease medicines, 2 offer free medicine to people without insurance who qualify, usually with income limits. Most charity funds pay copays and premiums, so they need some insurance. The drugmaker's support line can also check whether you qualify for coverage you don't have yet.

Where to go next

Understand it
Cushing Disease guide and clinical trials →
Nearby
Cushing Disease trial sites near you →
Every condition
Help paying for all rare disease medicines →

How we check: drugmaker programs come only from each drugmaker's own pages. Fund status is copied from each foundation's list (HealthWell Foundation, NORD RareCare, TotalAssist, Good Days) on the date shown. Programs change, so confirm with the program before you rely on it. Trial Friend shares information, not financial, legal or medical advice, and each program decides who qualifies. See something wrong? Email jason@trialfriend.com.