We found 3 charity funds (2 open at our last check). Tell us your insurance below and we'll show what to try first.
Help for Krabbe Disease depends mostly on how you're covered. Pick the one that sounds like you. We'll name the funds and programs that fit, and what won't work, so you don't waste a phone call.
Independent foundations pay copays, coinsurance and sometimes insurance premiums for people who already have coverage. Funds open and close as donations come in, so each one shows what the foundation said on the date we checked.
Covers: Donated durable medical equipment matched to families; shipping covered in the contiguous US.
Covers: Expenses directly related to the affected family member, based on demonstrated hardship (per 12 months). Up to $500 a year.
Covers: Big-ticket equipment for leukodystrophy families (wheelchair lifts, accessible vans, service dogs), case by case.
Most of these programs start with one call, and having these ready makes it shorter. Tick them off as you go. Nothing here is saved or sent anywhere.
Call the drugmaker's support line first. Its case managers check your benefits and often fill out forms with your doctor. If a charity fund is closed, sign up on the foundation's page to hear when it reopens. Most programs need renewing every year, and many copay cards reset in January.
Yes. Trial Friend lists 3 charity funds, 2 of them open at our last check. We checked every one at the source on or before October 19, 2026. Which ones fit depends on your insurance. Copay cards are for people with private insurance, charity funds usually need some insurance, and free medicine programs are for people without enough coverage.
No. Federal rules bar drugmaker copay cards for drugs paid by Medicare, Medicaid or TRICARE. For Krabbe Disease, 0 charity funds on this page accept Medicare, and 0 drugmaker free medicine programs name Medicare patients among those who may qualify. In 2026, Medicare Part D also caps yearly out-of-pocket costs for covered drugs at $2,100.
At our last check, Hunter's Hope Foundation's Equipment and Supply Exchange Program fund, United Leukodystrophy Foundation's Hultman Memorial Fund fund were open to new applicants. Funds open and close as donations come in, so check the foundation's page before you apply.
How we check: drugmaker programs come only from each drugmaker's own pages. Fund status is copied from each foundation's list (Hunter's Hope Foundation, United Leukodystrophy Foundation) on the date shown. Programs change, so confirm with the program before you rely on it. Trial Friend shares information, not financial, legal or medical advice, and each program decides who qualifies. See something wrong? Email jason@trialfriend.com.
