I have insurance through work or a plan I bought
1 fund or program names private insurance
- Taking Forzinity? Ask Mito Assist about its copay card, which can lower what you pay each fill.
Help paying for Barth Syndrome treatment
We found 1 drugmaker program for Barth Syndrome medicines and 2 charity funds (0 open at our last check). Tell us your insurance below and we'll show what to try first.
What to try first, depending on your insurance
Help for Barth Syndrome depends mostly on how you're covered. Pick the one that sounds like you. We'll name the funds and programs that fit, and what won't work, so you don't waste a phone call.
I'm on Medicare
Nothing published names this yet
- We didn't find a fund or drugmaker program for Barth Syndrome that names your situation. Call the drugmaker's support line anyway. Case managers often know options that aren't published.
- Drugmaker copay cards can't be used with Medicare. Federal rules bar them.
- Medicare Part D caps what you pay for covered drugs at $2,100 a year in 2026.
Medicaid or CHIP covers me or my child
Nothing published names this yet
- We didn't find a fund or drugmaker program for Barth Syndrome that names your situation. Call the drugmaker's support line anyway. Case managers often know options that aren't published.
- Drugmaker copay cards can't be used with Medicaid or CHIP. Federal rules bar them.
- Federal rules keep Medicaid copays for medicine low, so most help here is with getting a prescription approved. The drugmaker's support line can help your doctor with that paperwork.
I have TRICARE or get care through the VA
Nothing published names this yet
- We didn't find a fund or drugmaker program for Barth Syndrome that names your situation. Call the drugmaker's support line anyway. Case managers often know options that aren't published.
- Drugmaker copay cards can't be used with TRICARE or the VA. Federal rules bar them.
I don't have insurance right now
Nothing published names this yet
- We didn't find a fund or drugmaker program for Barth Syndrome that names your situation. Call the drugmaker's support line anyway. Case managers often know options that aren't published.
- Charity funds pay copays and premiums, so nearly all of them need you to have some insurance.
- Drugmaker support lines, such as Mito Assist at 1-833-458-9099, can check whether you qualify for coverage you don't have yet.
Charity funds for Barth Syndrome
Independent foundations pay copays, coinsurance and sometimes insurance premiums for people who already have coverage. Funds open and close as donations come in, so each one shows what the foundation said on the date we checked.
Open now0
Taking new applicants when we checked
None at our last check.
Waitlist or ask1
Join the list or ask the fund
NORD RareCare
Barth Syndrome Emergency Relief fund
Covers: Emergency relief.
“Temporarily Waitlisting”
See the fund's pageChecked October 19, 2026
Closed for now1
Sign up to hear when it reopens
NORD RareCare
Barth Syndrome Travel Assistance Fund fund
Covers: Travel and lodging for care.
Get the reopening alertChecked October 19, 2026
Help from the companies that make Barth Syndrome medicines
Copay cards lower what people with private insurance pay. Federal rules bar them for Medicare, Medicaid and TRICARE. Free medicine programs are for people without enough coverage and usually have income limits. We read each program on the drugmaker's own site.
ForzinityElamipretide
Support program: Mito Assist
Copay helpFree medicine programInsurance and case manager help
What each one covers and who qualifies
- Copay help
Commercially insured patients may pay as little as $0; annual maximum applies. Medicare, Medicaid, TRICARE, VA and other government plans are not eligible.
For: Private insurance · source - Free medicine program
Insurance Specialists check eligibility for patient assistance. Criteria not stated on official pages.
The drugmaker's page doesn't say who qualifies, so ask the program. · source - Insurance and case manager help
Care Managers, Insurance Specialists and visiting nurses for injection education; run with specialty pharmacy AnovoRx.
The drugmaker's page doesn't say who qualifies, so ask the program. · source
Patient assistance program is mentioned but who qualifies is not stated. Copay program is for commercial insurance only.
Read on the drugmaker's site September 24, 2026. Programs change, so confirm before you rely on it.
Before you pick up the phone
Most of these programs start with one call, and having these ready makes it shorter. Tick them off as you go. Nothing here is saved or sent anywhere.
Call the drugmaker's support line first. Its case managers check your benefits and often fill out forms with your doctor. If a charity fund is closed, sign up on the foundation's page to hear when it reopens. Most programs need renewing every year, and many copay cards reset in January.
Questions people ask about paying for Barth Syndrome treatment
Is there financial help for Barth Syndrome treatment?
Yes. Trial Friend lists 1 drugmaker program for Barth Syndrome medicines and 2 charity funds, 0 of them open at our last check. We checked every one at the source on or before October 19, 2026. Which ones fit depends on your insurance. Copay cards are for people with private insurance, charity funds usually need some insurance, and free medicine programs are for people without enough coverage.
Can I use a copay card for Barth Syndrome medicine if I have Medicare?
No. Federal rules bar drugmaker copay cards for drugs paid by Medicare, Medicaid or TRICARE. For Barth Syndrome, 0 charity funds on this page accept Medicare, and 0 drugmaker free medicine programs name Medicare patients among those who may qualify. In 2026, Medicare Part D also caps yearly out-of-pocket costs for covered drugs at $2,100.
Which Barth Syndrome charity funds are open right now?
None of the 2 funds listed for Barth Syndrome was open to new applicants at our last check. Funds reopen when new donations arrive, and each foundation lets you sign up to hear when one opens.
What help is there for Barth Syndrome treatment without insurance?
None of the drugmaker programs for Barth Syndrome medicines on this page says it gives free medicine to people without insurance. Their support lines can still check what you qualify for. Most charity funds need some insurance.
Where to go next
How we check: drugmaker programs come only from each drugmaker's own pages. Fund status is copied from each foundation's list (NORD RareCare) on the date shown. Programs change, so confirm with the program before you rely on it. Trial Friend shares information, not financial, legal or medical advice, and each program decides who qualifies. See something wrong? Email jason@trialfriend.com.