We found 3 drugmaker programs for Dravet Syndrome medicines and 1 charity fund (1 open at our last check). Tell us your insurance below and we'll show what to try first.
Help for Dravet Syndrome depends mostly on how you're covered. Pick the one that sounds like you. We'll name the funds and programs that fit, and what won't work, so you don't waste a phone call.
Independent foundations pay copays, coinsurance and sometimes insurance premiums for people who already have coverage. Funds open and close as donations come in, so each one shows what the foundation said on the date we checked.
Covers: Medical equipment, therapy devices and educational aids. Up to $1,500 a year.
Copay cards lower what people with private insurance pay. Federal rules bar them for Medicare, Medicaid and TRICARE. Free medicine programs are for people without enough coverage and usually have income limits. We read each program on the drugmaker's own site.
Eligible commercially insured patients pay $0 per prescription. Not available for government plans such as Medicare or Medicaid.
Quick Start Program: up to 60 days of Diacomit at no cost for new patients facing delays getting access to treatment.
Bridge Program: up to 60 days of Diacomit at no cost for current patients with changes or lapses in insurance coverage.
Long-Term Patient Assistance Program provides Diacomit at no cost to eligible uninsured or underinsured patients.
Support team at PANTHERx Rare Pharmacy helps with insurance coverage and savings eligibility, refills and delivery.
Diacomit is dispensed only through PANTHERx Rare Pharmacy.
Eligible commercially insured patients may pay as little as $0 per prescription; monthly or annual limits may apply. No enrollment needed; the pharmacy checks eligibility.
Quick Start Program: up to 60 days of EPIDIOLEX for eligible patients waiting on insurance coverage.
Patients who are uninsured or whose insurance does not cover EPIDIOLEX may get it free through the Patient Assistance Program.
Nurse Navigators help with starting treatment, dosing questions and side effects, and insurance and financial assistance options.
Copay program excludes Medicare Part D, Medicaid, Medigap, VA/DoD/TRICARE and IHS. Mon-Fri 8 AM-8 PM ET.
Eligible commercially insured patients may pay as little as $0 and no more than $25 per refill; limits apply. Not for Medicare, Medicaid or other government plans.
If you have no insurance or your plan does not cover FINTEPLA, ONWARD may be able to help you get access. Call ONWARD to check eligibility.
A dedicated Care Coordinator reviews insurance coverage and approval status, helps find echocardiogram locations, and connects families with the program pharmacy for refills.
At-Home Echo Program: a sonographer can come to your home for required heart echocardiograms if you cannot reach an echo facility because of location or disability.
UCB's pricing page says the copay program can also cover the echocardiograms FINTEPLA requires. UCB also runs a general UCB Patient Assistance Program (1-844-599-2273) that gives some UCB medicines at no cost to eligible uninsured or underinsured patients; that page does not list which medicines are included.
Most of these programs start with one call, and having these ready makes it shorter. Tick them off as you go. Nothing here is saved or sent anywhere.
Call the drugmaker's support line first. Its case managers check your benefits and often fill out forms with your doctor. If a charity fund is closed, sign up on the foundation's page to hear when it reopens. Most programs need renewing every year, and many copay cards reset in January.
Yes. Trial Friend lists 3 drugmaker programs for Dravet Syndrome medicines and 1 charity fund, 1 of them open at our last check. We checked every one at the source on or before October 19, 2026. Which ones fit depends on your insurance. Copay cards are for people with private insurance, charity funds usually need some insurance, and free medicine programs are for people without enough coverage.
No. Federal rules bar drugmaker copay cards for drugs paid by Medicare, Medicaid or TRICARE. For Dravet Syndrome, 0 charity funds on this page accept Medicare, and 0 drugmaker free medicine programs name Medicare patients among those who may qualify. In 2026, Medicare Part D also caps yearly out-of-pocket costs for covered drugs at $2,100.
At our last check, Dravet Syndrome Foundation's Patient Assistance Grant (PAG) Program fund was open to new applicants. Funds open and close as donations come in, so check the foundation's page before you apply.
Of the drugmaker programs for Dravet Syndrome medicines, 3 offer free medicine to people without insurance who qualify, usually with income limits. Most charity funds pay copays and premiums, so they need some insurance. The drugmaker's support line can also check whether you qualify for coverage you don't have yet.
How we check: drugmaker programs come only from each drugmaker's own pages. Fund status is copied from each foundation's list (Dravet Syndrome Foundation) on the date shown. Programs change, so confirm with the program before you rely on it. Trial Friend shares information, not financial, legal or medical advice, and each program decides who qualifies. See something wrong? Email jason@trialfriend.com.
