Also on Trial Friend:Dravet Syndrome pageMatch Me
All 11 Dravet Syndrome trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- A Study of EPX-100 (Clemizole Hydrochloride) in Participants With Dravet SyndromeMost sites in North Carolina, Ohio and AlabamaRecruitingPhase 3Ages 2+Epygenix18US sites
15 states - A Clinical Study to Evaluate the Safety and Efficacy of ETX101 in Infants and Children With SCN1A-Positive Dravet SyndromeMost sites in California, Colorado and FloridaRecruitingPhase 1/2Ages 6 Months-17Encoded Therapeutics11US sites
11 states - ASCEND: Safety and Tolerability of ION337 for the Treatment of Dravet SyndromeMost sites in Michigan, Minnesota and North CarolinaRecruitingPhase 1/2Ages 2-12Ionis Pharmaceuticals6US sites
6 states - Assessment of Safety of the Use of Fenfluramine in Children With Dravet Syndrome Under 24 Months of AgeOnly in ColoradoRecruitingPhase 4Ages 12 Months-24 MonthsUniversity of Colorado, Denver1US site
- GABA Biomarkers in Dravet SyndromeOnly in TexasRecruitingUp to age 18Cook Children's Health Care System1US site
- The FINTEPLA as an Anti-SUDEP Therapy in Dravet Syndrome ProjectOnly in TexasRecruitingPhase 4Ages 16+The University of Texas Health Science Center, Houston1US site
- A PET-MRI Study of Serotoninergic Brainstem Pathway in Patients With Dravet SyndromeRecruitingAges 18-60Hospices Civils de LyonNo US site yet
- A Study to Evaluate the Safety and Pharmacokinetics of RC001 in Children With Dravet SyndromeRecruitingEarly Phase 1Ages 2-18Second Affiliated Hospital of Guangzhou Medical UniversityNo US site yet
- BMB-101 in Absence Epilepsy and DEERecruitingPhase 2Ages 18-65Bright Minds Biosciences PtyNo US site yet
- Longitudinal Study of Phenotypic and Developmental Severity in Patients With Dravet Syndrome With SCN1A Gene MutationRecruitingAges 6 Months-21Assistance Publique - Hôpitaux de ParisNo US site yet
- Multicentre Real-life Follow-up Study of Rare Epileptic Syndromes in Children and AdolescentsRecruitingUp to age 15Assistance Publique - Hôpitaux de ParisNo US site yet
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Who runs the Dravet Syndrome trials in the US, and what stage they are in
Of the 7 Dravet Syndrome trials with a US site, 1 is in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 3 of them. Phase 4 studies of an already approved treatment make up 2. The last one has no drug phase, such as a study that follows people over time or tests a device or a way of giving care. Companies run 3 of them, and universities, hospitals, foundations and government groups run 4. The most recently listed one first appeared on ClinicalTrials.gov on April 15, 2026.
Dravet Syndrome trials in the US, state by state
All 7 Dravet Syndrome trials with a US site accept children under 18. Their open sites are in 23 states, most often Texas, North Carolina and California. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 13 states
US hospitals running the most Dravet Syndrome trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Dravet Syndrome.
- Cook Children's Medical CenterFort Worth, Texas2 trials
- Mayo ClinicRochester, Minnesota2 trials
- Seattle Children's HospitalSeattle, Washington2 trials
- Ann & Robert H. Lurie Children's Hospital of ChicagoChicago, Illinois1 trial
- Arkansas Children's HospitalLittle Rock, Arkansas1 trial
- Boston Childrens' HospitalBoston, Massachusetts1 trial
- Child Neurology Consultants of AustinAustin, Texas1 trial
- Children's Hospital ColoradoAurora, Colorado1 trial
- Children's NebraskaOmaha, Nebraska1 trial
- Cincinnati Children's Hospital Medical CenterCincinnati, Ohio1 trial
Help getting to a Dravet Syndrome trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Dravet Syndrome trial near you
Are there Dravet Syndrome clinical trials near me?
As of November 13, 2026, 11 Dravet Syndrome clinical trials are recruiting now and 3 are not yet recruiting. In the US, 7 of them have at least 1 open site, across 23 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Dravet Syndrome clinical trial sites?
Recruiting Dravet Syndrome trials list open sites in 23 states. Texas, North Carolina and California have the most, and the table on this page lists every state.
Are there Dravet Syndrome trials for children near me?
All 7 Dravet Syndrome trials with a US site accept children under 18. Their open sites are in 23 states, most often Texas, North Carolina and California. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Dravet Syndrome clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Dravet Syndrome trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Dravet Syndrome trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Dravet Syndrome: Diacomit (stiripentol), Epidiolex (cannabidiol), Fintepla (fenfluramine).
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.