Also on Trial Friend:Fragile X Syndrome pageMatch Me
All 15 Fragile X Syndrome trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Study of MRM-3379 in Male Participants With Fragile X Syndrome (BLOOM)Most sites in California, Massachusetts and ArizonaRecruitingPhase 2Ages 13-45Mirum Pharmaceuticals15US sites
12 states - Physical Activity and Community EmPOWERment ProjectMost sites in Arkansas and North CarolinaRecruitingAges 18+University of North Carolina, Chapel Hill2US sites
2 states - Alpha Auditory Entrainment for Cognitive Enhancement and Sensory Hypersensitivity in Youth With Developmental DisordersOnly in OhioRecruitingAges 5-10Children's Hospital Medical Center, Cincinnati1US site
- Intensive Multimodal Neurorehabilitation Targeting Neuroplasticity in Pediatric Neurodevelopmental and Chromosomal DisordersOnly in TexasRecruitingAges 4-12Healing Hope International1US site
- Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at SanfordOnly in South DakotaRecruitingSanford Health1US site
- Tracking Early Emergence of Sound Perception Impairments in FXS With Multimodal fNIRS/EEG- InfantOnly in OhioRecruitingAges 6 Months-26 MonthsChildren's Hospital Medical Center, Cincinnati1US site
- Tracking Early Emergence of Sound Perception Impairments in FXS With Multimodal fNIRS/EEG-Preschool AgeOnly in OhioRecruitingAges 24 Months-4Children's Hospital Medical Center, Cincinnati1US site
- Development of Non-Invasive Prenatal Diagnosis for Single Gene DisordersRecruitingAges 18+Assistance Publique - Hôpitaux de ParisNo US site yet
- Effect of CANnabidiol on Anxiety and GABAergic Function in Individuals With Fragile-X SyndromeRecruitingPhase 2Ages 7-40Université de SherbrookeNo US site yet
- Group CBT in Adolescents With Fragile X Syndrome and in Adolescents With Autism Spectrum DisorderRecruitingAges 13-19Bambino Gesù Hospital and Research InstituteNo US site yet
- Optical Imaging in X-linked Disorders.RecruitingAges 5-60Hospices Civils de LyonNo US site yet
- Safety, Tolerability, and Preliminary Effectiveness of CTH120 in Fragile X SyndromeRecruitingPhase 2Ages 18-45Connecta Therapeutics, S.L.No US site yet
- Sertraline vs. Placebo in the Treatment of Anxiety in Children and AdoLescents With NeurodevelopMental DisordersRecruitingPhase 2Ages 8-17Holland Bloorview Kids Rehabilitation HospitalNo US site yet
- The Neurocognitive Bases of Trust in Intellectual DisabilityRecruitingAges 3-29Hospices Civils de LyonNo US site yet
- The Psychiatric and Cognitive Phenotypes in Velocardiofacial SyndromeRecruitingPhase 4The Chaim Sheba Medical CenterNo US site yet
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Who runs the Fragile X Syndrome trials in the US, and what stage they are in
None of the 9 Fragile X Syndrome trials with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 2 of them. The remaining 7 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 2 of them, and universities, hospitals, foundations and government groups run 7. Children's Hospital Medical Center, Cincinnati runs the most, with 3. The most recently listed one first appeared on ClinicalTrials.gov on October 27, 2026.
Fragile X Syndrome trials in the US, state by state
Of the 9 Fragile X Syndrome trials with a US site, 6 accept children under 18. Their open sites are in 14 states, most often Ohio, Arizona and California. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 6 states
US hospitals running the most Fragile X Syndrome trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Fragile X Syndrome.
- Cincinnati Children's HospitalCincinnati, Ohio2 trials
- Cincinnati Children's Hospital Medical CenterCincinnati, Ohio2 trials
- Ability and BeyondThe Woodlands, Texas1 trial
- Amnova Clinical Research, LLCIrvine, California1 trial
- Boston Children's HospitalBoston, Massachusetts1 trial
- Boston University Charles River CampusBoston, Massachusetts1 trial
- Children's Hospital ColoradoAurora, Colorado1 trial
- Children's Hospital of Orange County - Pediatric SubspecialtyOrange, California1 trial
- Cincinnati Children'S HospitalCincinnati, Ohio1 trial
- Emory University - The Emory Clinic - Clifton RoadAtlanta, Georgia1 trial
Help getting to a Fragile X Syndrome trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Fragile X Syndrome trial near you
Are there Fragile X Syndrome clinical trials near me?
As of November 13, 2026, 15 Fragile X Syndrome clinical trials are recruiting now and 5 are not yet recruiting. In the US, 9 of them have at least 1 open site, across 16 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Fragile X Syndrome clinical trial sites?
Recruiting Fragile X Syndrome trials list open sites in 16 states. Ohio, California and Illinois have the most, and the table on this page lists every state.
Are there Fragile X Syndrome trials for children near me?
Of the 9 Fragile X Syndrome trials with a US site, 6 accept children under 18. Their open sites are in 14 states, most often Ohio, Arizona and California. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Fragile X Syndrome clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Fragile X Syndrome trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Fragile X Syndrome trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.