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All 37 Huntington Disease trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Enroll -HD: A Prospective Registry Study in a Global Huntington's Disease CohortMost sites in California, Florida and New YorkRecruitingAges 18+CHDI Foundation52US sites
35 states - A Study to Investigate the Efficacy, Safety and Tolerability of Votoplam in Participants With Huntington's DiseaseMost sites in California, New York and FloridaRecruitingPhase 3Ages 21-70Novartis Pharmaceuticals40US sites
26 states - Pridopidine Phase 3 Study in Huntington's DiseaseMost sites in California, Ohio and FloridaRecruitingPhase 3Ages 23-65Prilenia25US sites
17 states - A Randomized Study of SPK-10001 Gene Therapy in Participants With Huntington's DiseaseMost sites in Ohio, Pennsylvania and MassachusettsRecruitingPhase 1/2Ages 25-65Hoffmann-La Roche5US sites
3 states - HDClarity: a Multi-site Cerebrospinal Fluid Collection Initiative to Facilitate Therapeutic Development for Huntington's DiseaseMost sites in Colorado, District of Columbia and MarylandRecruitingAges 11-75University College, London5US sites
5 states - Study to Evaluate the Pharmacodynamics, Safety and Efficacy of SKY-0515 in Participants With Huntington's DiseaseMost sites in Massachusetts, Colorado and OhioRecruitingPhase 2/3Ages 25+Skyhawk Therapeutics4US sites
3 states - Cognitive Assessment Tools for Huntington's Disease.Only in OhioRecruitingAges 30-65Ohio State University1US site
- Digital Measures for Clinical Trial Endpoints in Huntington's DiseaseOnly in New YorkRecruitingAges 25-65University of Rochester1US site
- Extracellular Vesicles for HDOnly in FloridaRecruitingAges 18-75University of Central Florida1US site
- Gut Microbiomes in HDOnly in FloridaRecruitingAges 18+University of Central Florida1US site
- Home-based TDCS (Transcranial Direct Current Stimulation) for Cognitive and Behavioral Symptoms in Huntington's DiseaseOnly in TexasRecruitingAges 18-85The University of Texas Health Science Center at San Antonio1US site
- Home-based Transcranial Direct Current Stimulation Open Trial for Behavioral and Cognitive Symptoms in Huntington's DiseaseOnly in TexasRecruitingAges 18-80The University of Texas Health Science Center, Houston1US site
- Huntington's Disease Biobank: Advancing Remote Monitoring and Deep PhenotypingOnly in CaliforniaRecruitingStanford University1US site
- Longitudinal Endpoint Assessment of Disease Burden in HDOnly in New YorkRecruitingAges 18+Huntington Study Group1US site
- NYSCF Scientific Discovery BiobankOnly in New YorkRecruitingAges 30 Days+New York Stem Cell Foundation Research Institute1US site
- Retinal Imaging in Neurodegenerative DiseaseOnly in North CarolinaRecruitingAges 18+Duke University1US site
- Safety and Tolerability Study of Human Neural Stem Cells for Huntington's DiseaseOnly in CaliforniaRecruitingPhase 1/2Ages 18-65Leslie Thompson1US site
- Social Cognition Training in Individuals With Huntington's DiseaseOnly in IllinoisRecruitingAges 18-65Rush University Medical Center1US site
- A First-in-human Study of the Effects of SRP-1005 in Participants With Huntington's DiseaseRecruitingPhase 1Ages 21-70Sarepta TherapeuticsNo US site yet
- A Randomised Controlled Trial, Of N-Acetyl Cysteine (NAC), for Premanifest Huntingtin Gene Expansion CarriersRecruitingPhase 2Ages 18+Western Sydney Local Health DistrictNo US site yet
New trials, status changes and new sites, straight from ClinicalTrials.gov. Unsubscribe anytime.
- Trial Alerts, when a new trial opens or a trial changes
- Disease Updates, FDA decisions and condition news, usually 1 or 2 emails a month
Who runs the Huntington Disease trials in the US, and what stage they are in
Of the 19 Huntington Disease trials with a US site, 3 are in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 2 of them. The remaining 14 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 5 of them, and universities, hospitals, foundations and government groups run 14. University of Central Florida runs the most, with 2. The most recently listed one first appeared on ClinicalTrials.gov on May 27, 2026.
Huntington Disease trials in the US, state by state
Of the 19 Huntington Disease trials with a US site, 3 accept children under 18. Their open sites are in 6 states and Washington, DC, most often California, Colorado and District of Columbia. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 26 states
US hospitals running the most Huntington Disease trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Huntington Disease.
- Georgetown UniversityWashington D.C., District of Columbia4 trials
- Rush University Medical CenterChicago, Illinois4 trials
- Vanderbilt University Medical CenterNashville, Tennessee4 trials
- Beth Israel Deaconess Medical CenterBoston, Massachusetts3 trials
- Johns Hopkins UniversityBaltimore, Maryland3 trials
- The Ohio State UniversityColumbus, Ohio3 trials
- University of PennsylvaniaPhiladelphia, Pennsylvania3 trials
- Albany Medical CollegeAlbany, New York2 trials
- Cleveland ClinicCleveland, Ohio2 trials
- Columbia UniversityNew York, New York2 trials
Help getting to a Huntington Disease trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Huntington Disease trial near you
Are there Huntington Disease clinical trials near me?
As of November 13, 2026, 37 Huntington Disease clinical trials are recruiting now and 7 are not yet recruiting. In the US, 19 of them have at least 1 open site, across 35 states and Washington, DC. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Huntington Disease clinical trial sites?
Recruiting Huntington Disease trials list open sites in 35 states and Washington, DC. New York, Ohio and Texas have the most, and the table on this page lists every state.
Are there Huntington Disease trials for children near me?
Of the 19 Huntington Disease trials with a US site, 3 accept children under 18. Their open sites are in 6 states and Washington, DC, most often California, Colorado and District of Columbia. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Huntington Disease clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Huntington Disease trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Huntington Disease trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Huntington Disease: Austedo (deutetrabenazine), Ingrezza (valbenazine), Xenazine (tetrabenazine).
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.