Also on Trial Friend:Friedreich Ataxia pageMatch Me
All 18 Friedreich Ataxia trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Friedreich Ataxia Global Clinical Consortium UNIFIED Natural History StudyMost sites in Florida, California and ColoradoRecruitingFriedreich's Ataxia Research Alliance9US sites
8 states - An Open-Label Study of CTI-1601 in Subjects With Friedreich's AtaxiaMost sites in California, Florida and IowaRecruitingPhase 2Ages 2-60Larimar Therapeutics7US sites
7 states - Clinical Course Of Disease In Participants With FA-CMMost sites in California, Florida and IndianaRecruitingAges 6+Lexeo Therapeutics7US sites
7 states - A Study to Evaluate the Efficacy and Safety of Subcutaneous Nomlabofusp in Subjects With Friedreich's AtaxiaMost sites in Florida, Illinois and New JerseyRecruitingPhase 3Ages 12-40Larimar Therapeutics4US sites
4 states - A Study to Learn More About the Long-Term Safety of BIIB141 (Omaveloxolone) in Participants With Friedreich's Ataxia Who Are Prescribed it by Their Own DoctorsMost sites in California, Colorado and FloridaRecruitingAges 16+Biogen4US sites
4 states - A Study of SGT-212 Gene Therapy in Friedreich's AtaxiaMost sites in California, Ohio and PennsylvaniaRecruitingPhase 1Ages 18-40Solid Biosciences3US sites
3 states - A Study to Learn How BIIB141 (Omaveloxolone) Affects the Health of Participants With Friedrich's Ataxia Who Took it During Pregnancy and/or During Breastfeeding and About the Health of Their BabiesOnly in North CarolinaRecruitingAges 16+Biogen1US site
- Biomarkers in Friedreich's AtaxiaOnly in FloridaRecruitingAges 6-70University of Florida1US site
- Cardiac Output and Fatigue in Friedreich's AtaxiaOnly in New YorkRecruitingScott Barbuto1US site
- Characterization of the Cardiac Phenotype of Friedreich's Ataxia (FRDA)Only in New YorkRecruitingAges 12-50Weill Medical College of Cornell University1US site
- Phase IA and IB Study of AAVrh.10hFXN Gene Therapy for the Cardiomyopathy of Friedreich's AtaxiaOnly in New YorkRecruitingPhase 1Ages 12-50Weill Medical College of Cornell University1US site
- Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at SanfordOnly in South DakotaRecruitingSanford Health1US site
- Study of LX2006 Gene Therapy in Friedreich Ataxia CardiomyopathyOnly in FloridaRecruitingPhase 2Ages 6+Lexeo Therapeutics1US site
- A Multiple Ascending Dose Study of DT-216P2 in Patients With Friedreich's AtaxiaRecruitingPhase 1/2Ages 18-65Design TherapeuticsNo US site yet
- Efficacy of Omaveloxolone Treatment for Dysphagia in French Patients With Friedreich's AtaxiaRecruitingAges 16+Centre Hospitalier Universitaire de NiceNo US site yet
- Electroencephalogram in Patients With Friedreich's Ataxia for the Study of the Structural and Functional Connectome.RecruitingAges 8-60IRCCS Eugenio MedeaNo US site yet
- Friedreich Ataxia Nerve UltrasundRecruitingAges 18-70Centre Hospitalier Universitaire de NiceNo US site yet
- Patient-reported, Health Economic and Psychosocial Outcomes in Friedreich AtaxiaRecruitingAges 12+German Center for Neurodegenerative Diseases (DZNE)No US site yet
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Who runs the Friedreich Ataxia trials in the US, and what stage they are in
Of the 17 Friedreich Ataxia trials with a US site, 2 are in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 7 of them. The remaining 8 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 11 of them, and universities, hospitals, foundations and government groups run 6. The sponsors with the most are Biogen (2), Larimar Therapeutics (2) and Lexeo Therapeutics (2). The most recently listed one first appeared on ClinicalTrials.gov on November 12, 2026.
Friedreich Ataxia trials in the US, state by state
Of the 17 Friedreich Ataxia trials with a US site, 15 accept children under 18. Their open sites are in 20 states, most often Florida, California and Pennsylvania. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 10 states
US hospitals running the most Friedreich Ataxia trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Friedreich Ataxia.
- Children's Hospital of PhiladelphiaPhiladelphia, Pennsylvania4 trials
- University of South FloridaTampa, Florida3 trials
- Morsani Center for Advanced Health Care, University of South Florida HealthTampa, Florida2 trials
- University of FloridaGainesville, Florida2 trials
- Weill Cornell MedicineNew York, New York2 trials
- Boston Children's HospitalBoston, Massachusetts1 trial
- Cincinnati Children's HospitalCincinnati, Ohio1 trial
- ClinilabsEatontown, New Jersey1 trial
- CLINiLABSEatontown, New Jersey1 trial
- Clinilabs Drug Development, Corp.Eatontown, New Jersey1 trial
Help getting to a Friedreich Ataxia trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Friedreich Ataxia trial near you
Are there Friedreich Ataxia clinical trials near me?
As of November 13, 2026, 18 Friedreich Ataxia clinical trials are recruiting now and 7 are not yet recruiting. In the US, 17 of them have at least 1 open site, across 20 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Friedreich Ataxia clinical trial sites?
Recruiting Friedreich Ataxia trials list open sites in 20 states. Florida, California and Pennsylvania have the most, and the table on this page lists every state.
Are there Friedreich Ataxia trials for children near me?
Of the 17 Friedreich Ataxia trials with a US site, 15 accept children under 18. Their open sites are in 20 states, most often Florida, California and Pennsylvania. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Friedreich Ataxia clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Friedreich Ataxia trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Friedreich Ataxia trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Friedreich Ataxia: Skyclarys (omaveloxolone).
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.