Facioscapulohumeral Muscular Dystrophy Clinical Trials Near Me

As of November 13, 2026, 16 Facioscapulohumeral Muscular Dystrophy clinical trials are recruiting now and 2 are not yet recruiting. In the US, 7 of them have at least 1 open site, across 10 states. Enter your ZIP code below to see which are closest to you.

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All 16 Facioscapulohumeral Muscular Dystrophy trials and their US sites

Enter your ZIP code above to sort them by how far their nearest open site is from you.

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Who runs the Facioscapulohumeral Muscular Dystrophy trials in the US, and what stage they are in

None of the 7 Facioscapulohumeral Muscular Dystrophy trials with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 3 of them. The remaining 4 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 2 of them, and universities, hospitals, foundations and government groups run 5. The most recently listed one first appeared on ClinicalTrials.gov on February 27, 2026.

Facioscapulohumeral Muscular Dystrophy trials in the US, state by state

Of the 7 Facioscapulohumeral Muscular Dystrophy trials with a US site, 5 accept children under 18. Their open sites are in 8 states, most often California, Massachusetts and New York. A trial counts once in each state where it has an open site, and some trials accept both children and adults.

StateTrialsChildrenAdultsCities with the most

New York322Rochester (3)

California221Palo Alto (2)

Kansas211Kansas City (2)

Massachusetts222Boston (1), Randolph (1)

North Carolina221Durham (1), Winston-Salem (1)

Iowa110Iowa City (1)

Pennsylvania111Pittsburgh (1)

Texas101Austin (1)

Utah110Salt Lake City (1)

Washington101Seattle (1)

US hospitals running the most Facioscapulohumeral Muscular Dystrophy trials

Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Facioscapulohumeral Muscular Dystrophy.

University of Kansas Medical CenterKansas City, Kansas2 trials
Brigham and Women's HospitalBoston, Massachusetts1 trial
Duke UniversityDurham, North Carolina1 trial
FSHD SocietyRandolph, Massachusetts1 trial
Massachusetts General HospitalBoston, Massachusetts1 trial
National Neuromuscular Research InstituteAustin, Texas1 trial
Stanford Neuroscience Health CenterPalo Alto, California1 trial
Stanford UniversityPalo Alto, California1 trial
University of IowaIowa City, Iowa1 trial
University of PittsburghPittsburgh, Pennsylvania1 trial

Help getting to a Facioscapulohumeral Muscular Dystrophy trial far from home

Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.

These nonprofits also help patients reach care, and each one sets its own rules.

Mercy Medical Angels: Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
Air Charity Network: Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
Ronald McDonald House: Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
Healthcare Hospitality Network: Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.

Program details were checked on each program's website on October 24, 2026.

Questions about finding a Facioscapulohumeral Muscular Dystrophy trial near you

Are there Facioscapulohumeral Muscular Dystrophy clinical trials near me?

Which states have Facioscapulohumeral Muscular Dystrophy clinical trial sites?

Recruiting Facioscapulohumeral Muscular Dystrophy trials list open sites in California, Iowa, Kansas, Massachusetts, New York, North Carolina, Pennsylvania, Texas, Utah and Washington.

Are there Facioscapulohumeral Muscular Dystrophy trials for children near me?

Of the 7 Facioscapulohumeral Muscular Dystrophy trials with a US site, 5 accept children under 18. Their open sites are in 8 states, most often California, Massachusetts and New York. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.

Who pays for travel to a Facioscapulohumeral Muscular Dystrophy clinical trial?

Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.

What if there is no Facioscapulohumeral Muscular Dystrophy trial near me?

Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Facioscapulohumeral Muscular Dystrophy trial opens a new site or changes status.

How is the distance to a trial site measured?

Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.

Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.