Try these first
- Taking Epidiolex? Ask JazzCares for EPIDIOLEX about its copay card, which can lower what you pay each fill.
Help paying for Tuberous Sclerosis treatment
We found 1 drugmaker program for Tuberous Sclerosis medicines and 2 charity funds (1 open at our last check).
What coverage do you have?
Or jump straight to charity funds or drugmaker programs.
What to try first, depending on your coverage
Pick the one that sounds like you. We'll lay out the funds and programs for Tuberous Sclerosis that fit, in the order to try them, and what won't work, so you don't waste a phone call.
Charity funds for Tuberous Sclerosis
Independent foundations pay copays, coinsurance and sometimes insurance premiums for people who already have coverage. Funds open and close as donations come in, so each one shows what the foundation said on the date we checked.
Email me when a Tuberous Sclerosis fund opens
One fund on this page isn't taking new applicants right now. We watch every foundation listed here and email you as soon as we see one open, so you can apply before the money runs out. You'll also get new Tuberous Sclerosis trial alerts. Unsubscribe from either with one click.
You'll get new recruiting trials, changes to trials, FDA decisions and condition news for Tuberous Sclerosis. Turn any of these off from the link in every email.
We never share your email. Unsubscribe anytime. Privacy policy · Check any health site
Open now1
Taking new applicants when we checked
NORD RareCare
TSC Bcureful Center of Excellence Travel & Lodging Assistance fund
Covers: Travel and lodging for care.
“Accepting Applications”
Apply on the foundation's siteChecked October 19, 2026
Waitlist or ask1
Join the list or ask the fund
NORD RareCare
TSC Copay Assistance fund
Covers: Insurance premiums and copays.
“Temporarily Waitlisting”
Join the list on the foundation's pageChecked October 19, 2026
Closed for now0
Sign up to hear when it reopens
None at our last check.
Help from the companies that make Tuberous Sclerosis medicines
Copay cards lower what people with private insurance pay. Federal rules bar them for Medicare, Medicaid and TRICARE. Free medicine programs are for people without enough coverage and usually have income limits. We read each program on the drugmaker's own site.
EpidiolexCannabidiol
Support program: JazzCares for EPIDIOLEX
Copay helpBridge or quick-start supplyFree medicine programInsurance and case manager help
What each one covers and who qualifies
- Copay help
Eligible commercially insured patients may pay as little as $0 per prescription; monthly or annual limits may apply. No enrollment needed; the pharmacy checks eligibility.
For: Private insurance · source - Bridge or quick-start supply
Quick Start Program: up to 60 days of EPIDIOLEX for eligible patients waiting on insurance coverage.
The drugmaker's page doesn't say who qualifies, so ask the program. · source - Free medicine program
Patients who are uninsured or whose insurance does not cover EPIDIOLEX may get it free through the Patient Assistance Program.
For: No insurance, underinsured · source - Insurance and case manager help
Nurse Navigators help with starting treatment, dosing questions and side effects, and insurance and financial assistance options.
The drugmaker's page doesn't say who qualifies, so ask the program. · source
Copay program excludes Medicare Part D, Medicaid, Medigap, VA/DoD/TRICARE and IHS. Mon-Fri 8 AM-8 PM ET.
Read on the drugmaker's site October 12, 2026. Programs change, so confirm before you rely on it.
Before you pick up the phone
Most of these programs start with one call, and having these ready makes it shorter. Tick them off as you go. Nothing here is saved or sent anywhere.
Call the drugmaker's support line first. Its case managers check your benefits and often fill out forms with your doctor. If a charity fund is closed, sign up on the foundation's page to hear when it reopens. Most programs need renewing every year, and many copay cards reset in January.
Questions people ask about paying for Tuberous Sclerosis treatment
Is there financial help for Tuberous Sclerosis treatment?
Yes. Trial Friend lists 1 drugmaker program for Tuberous Sclerosis medicines and 2 charity funds, 1 of them open at our last check. We checked every one at the source on or before October 19, 2026. Which ones fit depends on your insurance. Copay cards are for people with private insurance, charity funds usually need some insurance, and free medicine programs are for people without enough coverage.
Can I use a copay card for Tuberous Sclerosis medicine if I have Medicare?
No. Federal rules bar drugmaker copay cards for drugs paid by Medicare, Medicaid or TRICARE. For Tuberous Sclerosis, 0 charity funds on this page accept Medicare, and 0 drugmaker free medicine programs name Medicare patients among those who may qualify. In 2026, Medicare Part D also caps yearly out-of-pocket costs for covered drugs at $2,100.
Which Tuberous Sclerosis charity funds are open right now?
At our last check, NORD RareCare's TSC Bcureful Center of Excellence Travel & Lodging Assistance fund was open to new applicants. Funds open and close as donations come in, so check the foundation's page before you apply.
What help is there for Tuberous Sclerosis treatment without insurance?
Of the drugmaker programs for Tuberous Sclerosis medicines, 1 offers free medicine to people without insurance who qualify, usually with income limits. Most charity funds pay copays and premiums, so they need some insurance. The drugmaker's support line can also check whether you qualify for coverage you don't have yet.
Where to go next
How we check: drugmaker programs come only from each drugmaker's own pages. Fund status is copied from each foundation's list (NORD RareCare) on the date shown. Programs change, so confirm with the program before you rely on it. Trial Friend shares information, not financial, legal or medical advice, and each program decides who qualifies. See something wrong? Email jason@trialfriend.com.