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CDKL5 Deficiency Disorder Clinical Trials Near Me

As of October 12, 2026, 3 CDKL5 Deficiency Disorder clinical trials are recruiting or about to open (1 recruiting now, 2 opening soon). 1 of them has at least 1 open site in the United States, across 8 states. Enter your ZIP code to see which are closest to you.

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Distance
Status
Ages
Phase

The CDKL5 Deficiency Disorder trial and their US sites

Enter your ZIP code above to sort them by how far their nearest open site is from you.

  1. International CDKL5 Clinical Research Network
    University of California Los Angeles/UCLA Mattel Children's Hospital, Los Angeles, California; University of Colorado Denver/Children's Hospital Colorado, Aurora, Colorado; Harvard Medical School/Boston Children's Hospital, Boston, Massachusetts and 5 more sites
    RecruitingAges 1 Month to 100Run by University of Colorado, Denver
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Where CDKL5 Deficiency Disorder trials are recruiting in the US

The US cities with the most CDKL5 Deficiency Disorder trials recruiting are Aurora, Colorado (1), Boston, Massachusetts (1), Cleveland, Ohio (1), Houston, Texas (1) and Los Angeles, California (1), counting trials with at least 1 open site in each city.

Hospitals that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know CDKL5 Deficiency Disorder, even if no trial fits you.

Aurora, Colorado
1 trial recruiting
  • University of Colorado Denver/Children's Hospital Colorado
Boston, Massachusetts
1 trial recruiting
  • Harvard Medical School/Boston Children's Hospital
Cleveland, Ohio
1 trial recruiting
  • Cleveland Clinic Foundation
Houston, Texas
1 trial recruiting
  • Baylor College of Medicine/ Texas Children's Hospital
Los Angeles, California
1 trial recruiting
  • University of California Los Angeles/UCLA Mattel Children's Hospital
New York, New York
1 trial recruiting
  • NYU Langone Health
Philadelphia, Pennsylvania
1 trial recruiting
  • Children's Hospital of Philadelphia
St Louis, Missouri
1 trial recruiting
  • Washington University in St. Louis/St. Louis Children's Hospital

States with at least 1 open site: California, Colorado, Massachusetts, Missouri, New York, Ohio, Pennsylvania, Texas.

Questions about finding a CDKL5 Deficiency Disorder trial near you

Are there CDKL5 Deficiency Disorder clinical trials near me?

As of October 12, 2026, 3 CDKL5 Deficiency Disorder clinical trials are recruiting or about to open (1 recruiting now, 2 opening soon). 1 of them has at least 1 open site in the United States, across 8 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.

Which states have CDKL5 Deficiency Disorder clinical trial sites?

As of October 12, 2026, recruiting CDKL5 Deficiency Disorder trials list open sites in California, Colorado, Massachusetts, Missouri, New York, Ohio, Pennsylvania and Texas.

What if there is no CDKL5 Deficiency Disorder trial near me?

Some trials pay for or reimburse travel and lodging, and a few send staff or use local labs so fewer visits happen at the study site, so ask the study contact before ruling a trial out. You can also sign up on this page to get an email when a CDKL5 Deficiency Disorder trial opens a new site or changes status.

How is the distance to a trial site measured?

Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.

FDA-approved for CDKL5 Deficiency Disorder: Ztalmy (ganaxolone).

Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of October 12, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out.