Ehlers-Danlos Syndrome Clinical Trials Near Me

As of November 13, 2026, 15 Ehlers-Danlos Syndrome clinical trials are recruiting now and 6 are not yet recruiting. In the US, 7 of them have at least 1 open site, across 5 states. Enter your ZIP code below to see which are closest to you.

Also on Trial Friend:Ehlers-Danlos Syndrome page Match Me

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A study site. Select it to see its trials and get directions. Several sites close together. Select the number to zoom in.

All 15 Ehlers-Danlos Syndrome trials and their US sites

Enter your ZIP code above to sort them by how far their nearest open site is from you.

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Who runs the Ehlers-Danlos Syndrome trials in the US, and what stage they are in

Of the 7 Ehlers-Danlos Syndrome trials with a US site, 1 is in Phase 3, the last stage before a company can ask the FDA for approval. The remaining 6 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 1 of them, and universities, hospitals, foundations and government groups run 6. The most recently listed one first appeared on ClinicalTrials.gov on August 3, 2026.

Ehlers-Danlos Syndrome trials in the US, state by state

Of the 7 Ehlers-Danlos Syndrome trials with a US site, 4 accept children under 18. Their open sites are in Wisconsin, California and Texas. A trial counts once in each state where it has an open site, and some trials accept both children and adults.

StateTrialsChildrenAdultsCities with the most

Massachusetts202Chestnut Hill (1), Worcester (1)

Wisconsin222Delafield (1), Milwaukee (1)

California111Culver City (1)

South Carolina101Charleston (1)

Texas111Houston (1)

US hospitals running the most Ehlers-Danlos Syndrome trials

Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Ehlers-Danlos Syndrome.

Brain Inflammation CollaborativeDelafield, Wisconsin1 trial
Brigham and Women's HospitalChestnut Hill, Massachusetts1 trial
Medical College of WisconsinMilwaukee, Wisconsin1 trial
Medical University of South CarolinaCharleston, South Carolina1 trial
Science 37Culver City, California1 trial
Texas Children's HospitalHouston, Texas1 trial
UMass Memorial Health Care - University CampusWorcester, Massachusetts1 trial

Help getting to an Ehlers-Danlos Syndrome trial far from home

Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.

These nonprofits also help patients reach care, and each one sets its own rules.

Mercy Medical Angels: Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
Air Charity Network: Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
Ronald McDonald House: Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
Healthcare Hospitality Network: Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.

Program details were checked on each program's website on October 24, 2026.

Questions about finding an Ehlers-Danlos Syndrome trial near you

Are there Ehlers-Danlos Syndrome clinical trials near me?

Which states have Ehlers-Danlos Syndrome clinical trial sites?

Recruiting Ehlers-Danlos Syndrome trials list open sites in California, Massachusetts, South Carolina, Texas and Wisconsin.

Are there Ehlers-Danlos Syndrome trials for children near me?

Of the 7 Ehlers-Danlos Syndrome trials with a US site, 4 accept children under 18. Their open sites are in Wisconsin, California and Texas. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.

Who pays for travel to an Ehlers-Danlos Syndrome clinical trial?

Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.

What if there is no Ehlers-Danlos Syndrome trial near me?

Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when an Ehlers-Danlos Syndrome trial opens a new site or changes status.

How is the distance to a trial site measured?

Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.

Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.