Also on Trial Friend:Marfan Syndrome pageMatch Me
All 10 Marfan Syndrome trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Complex Aortic Aneurysm Repair Using Physician Modified Endografts and Custom Made DevicesOnly in MassachusettsRecruitingAges 18+Andres Schanzer1US site
- Marfan Syndrome Moderate Exercise Trial IIOnly in TexasRecruitingAges 10-25Baylor College of Medicine1US site
- Adapted Physical Activity Program (APA) for Effort Rehabilitation of Children and Teenagers With Marfan SyndromeRecruitingAges 7-17University Hospital, ToulouseNo US site yet
- Biological Collection for Marfan and Related SyndromesRecruitingAges 3-99University Hospital, ToulouseNo US site yet
- Marfan Syndrome (MFS) and Facial Dysmorphism: Non-invasive 3D AssessmentRecruitingIRCCS Policlinico S. DonatoNo US site yet
- Multicentre Longitudinal Study of Bone Mineralisation Characteristics in Marfan Syndrome and Ehlers-Danlos SyndromeRecruitingIRCCS Policlinico S. DonatoNo US site yet
- National Network for Cardiovascular Genomics: Advancing Cardiovascular Healthcare for Hereditary Diseases in Brazil's Unified Health System Through a Multicenter RegistryRecruitingHospital do CoracaoNo US site yet
- Pregnancy in Women With Rare Multisystemic Vascular Diseases: COGRare5 StudyRecruitingAges 18-45Hospices Civils de LyonNo US site yet
- PregnAncy-Related Aortic DISsEction in ChinaRecruitingAges 16-55DeltaHealth Hospital · ShanghaiNo US site yet
- Psychological Support in Adult Patients With Marfan SyndromeRecruitingAges 18+IRCCS Policlinico S. DonatoNo US site yet
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Who runs the Marfan Syndrome trials in the US, and what stage they are in
None of the 2 Marfan Syndrome trials with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. The remaining 2 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Universities, hospitals, foundations and government groups run all of them, with no company leading one. The most recently listed one first appeared on ClinicalTrials.gov on April 12, 2023.
Marfan Syndrome trials in the US, state by state
Of the 2 Marfan Syndrome trials with a US site, 1 accepts children under 18. Its open sites are in Texas. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
US hospitals running the most Marfan Syndrome trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Marfan Syndrome.
- Texas Children's HospitalHouston, Texas1 trial
- UMass Memorial Health Care - University CampusWorcester, Massachusetts1 trial
Help getting to a Marfan Syndrome trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Marfan Syndrome trial near you
Are there Marfan Syndrome clinical trials near me?
As of November 13, 2026, 10 Marfan Syndrome clinical trials are recruiting now and 2 are not yet recruiting. In the US, 2 of them have at least 1 open site, across 2 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Marfan Syndrome clinical trial sites?
Recruiting Marfan Syndrome trials list open sites in Massachusetts and Texas.
Are there Marfan Syndrome trials for children near me?
Of the 2 Marfan Syndrome trials with a US site, 1 accepts children under 18. Its open sites are in Texas. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Marfan Syndrome clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Marfan Syndrome trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Marfan Syndrome trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.
