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All 16 Desmoid Tumors trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Project: Every Child for Younger Patients With CancerMost sites in Illinois, California and MichiganRecruitingUp to age 25Children's Oncology Group227US sites
49 states - FOG-001 in Locally Advanced or Metastatic Solid TumorsMost sites in California, Arizona and MassachusettsRecruitingPhase 1/2Ages 18+Parabilis Medicines30US sites
19 states - Tegavivint for the Treatment of Recurrent or Refractory Solid Tumors, Including Lymphomas and Desmoid TumorsMost sites in California, Pennsylvania and AlabamaRecruitingPhase 1/2Ages 12 Months-30Children's Oncology Group19US sites
16 states - Observing People With Desmoid-Type FibromatosisOnly in New YorkRecruitingAges 18+Memorial Sloan Kettering Cancer Center1US site
- Study of Cryoablation and Nirogacestat for Desmoid TumorOnly in CaliforniaRecruitingPhase 2Ages 18+Nam Bui1US site
- A Study in Adults With Desmoid TumorsRecruitingPhase 2Ages 18+Elpiscience (Suzhou) BiopharmaNo US site yet
- Arterial Chemoembolization for the Treatment of Desmoid FibromatosisRecruitingAges 18+Istituto Ortopedico RizzoliNo US site yet
- Assessment of Compliance With Monitoring Conducted by a Physician in Person or by a Nurse in Remote MonitoringRecruitingPhase 2Ages 18+Centre Oscar LambretNo US site yet
- Cryoablation Versus Medical Therapy in Desmoid Tumors Progressing After Watchful WaitingRecruitingAges 13+University Hospital, Strasbourg, FranceNo US site yet
- Cryotherapy in the Treatment of Desmoid TumorsRecruitingAges 18+Istituto Ortopedico RizzoliNo US site yet
- HIFU Ablation of Soft Tissue SarcomaRecruitingAges 18+Oxford University Hospitals NHS TrustNo US site yet
- Immunological Phenotype of Desmoid-fibromatosis-affected Patients.RecruitingAges 18+Fondazione IRCCS Istituto Nazionale dei Tumori, MilanoNo US site yet
- Nirogacestat in Premenopausal Females With Desmoid Tumor/Aggressive Fibromatosis (DT/AF)RecruitingPhase 4Ages 18-40SpringWorks Therapeutics, Inc., a healthcare company of Merck KGaA, Darmstadt, GermanyNo US site yet
- Radiomics Compared With Conventional Response Criteria for Predicting Progression of Desmoid Tumor After CryoablationRecruitingIstituto Ortopedico RizzoliNo US site yet
- Safety and Efficacy Study Using 5-ALA Oral Administration as an Adjuvant Therapy on the Rate of Local Tumor Recurrence in Patients Who Have Desmoids TumorsRecruitingPhase 2Ages 18+michal rollNo US site yet
- Treatment of Desmoid Fibromatosis With Arterial EmbolizationRecruitingAges 12+Istituto Ortopedico RizzoliNo US site yet
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Who runs the Desmoid Tumors trials in the US, and what stage they are in
None of the 5 Desmoid Tumors trials with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 3 of them. The remaining 2 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 1 of them, and universities, hospitals, foundations and government groups run 4. Children's Oncology Group runs the most, with 2. The most recently listed one first appeared on ClinicalTrials.gov on July 17, 2023.
Desmoid Tumors trials in the US, state by state
Of the 5 Desmoid Tumors trials with a US site, 2 accept children under 18. Their open sites are in 48 states and Washington, DC, most often Alabama, California and Colorado. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 39 states
US hospitals running the most Desmoid Tumors trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Desmoid Tumors.
- Memorial Sloan Kettering Cancer CenterNew York, New York3 trials
- Washington University School of MedicineSt Louis, Missouri3 trials
- Baylor College of Medicine/Dan L Duncan Comprehensive Cancer CenterHouston, Texas2 trials
- C S Mott Children's HospitalAnn Arbor, Michigan2 trials
- Children's Healthcare of Atlanta - Arthur M Blank HospitalAtlanta, Georgia2 trials
- Children's Hospital ColoradoAurora, Colorado2 trials
- Children's Hospital Los AngelesLos Angeles, California2 trials
- Children's Hospital of AlabamaBirmingham, Alabama2 trials
- Children's Hospital of Orange CountyOrange, California2 trials
- Children's Hospital of PhiladelphiaPhiladelphia, Pennsylvania2 trials
Help getting to a Desmoid Tumors trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Desmoid Tumors trial near you
Are there Desmoid Tumors clinical trials near me?
As of November 2, 2026, 17 Desmoid Tumors clinical trials are recruiting or about to open (16 recruiting now, 1 opening soon). In the US, 5 of them have at least 1 open site, across 48 states and Washington, DC. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Desmoid Tumors clinical trial sites?
Recruiting Desmoid Tumors trials list open sites in 48 states and Washington, DC. California, New York and Colorado have the most, and the table on this page lists every state.
Are there Desmoid Tumors trials for children near me?
Of the 5 Desmoid Tumors trials with a US site, 2 accept children under 18. Their open sites are in 48 states and Washington, DC, most often Alabama, California and Colorado. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Desmoid Tumors clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Desmoid Tumors trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Desmoid Tumors trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Desmoid Tumors: Ogsiveo (nirogacestat).
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 2, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.