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All 11 Osteogenesis Imperfecta trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- BBD Longitudinal Study of Osteogenesis ImperfectaMost sites in Arizona, California and DelawareRecruitingBaylor College of Medicine11US sites
11 states - Osteogenesis Imperfecta Trial of AGA2115 for ADUlts With COL1A1 and/or COL1A2 GeNetic Variations (IDUN)Most sites in Arizona, Connecticut and DelawareRecruitingPhase 2Ages 18-75Angitia Incorporated9US sites
9 states - Effects of Bisphosphonates on OI-Related Hearing LossOnly in New YorkRecruitingPhase 4Ages 6-100Hospital for Special Surgery, New York1US site
- Pediatric Safety Follow-up Study of Prior Treatment With Romosozumab for Osteogenesis ImperfectaOnly in IndianaRecruitingPhase 3Ages 5-19Amgen1US site
- A Dose REgimen-Finding Study of AGA2115 in Chinese Patients With Osteogenesis ImpeRfecta (EIR)RecruitingPhase 2Ages 12-75Angitia Biopharmaceuticals GuangzhouNo US site yet
- Adapted Physical Activity Program (APA) for Effort Rehabilitation of Children and Teenagers With Osteogenesis ImperfectaRecruitingAges 7-18University Hospital, ToulouseNo US site yet
- An Interventional Study to Evaluate the Impact of Blood Flow Restriction Training on Muscle, Bone, and Quality of Life in Adults With Osteogenesis Imperfecta Type IRecruitingAges 18-65University Hospital, GhentNo US site yet
- Audio-vestibular Evaluation of Children and Young Adults With Osteogenesis ImperfectaRecruitingAges 12-20Assistance Publique - Hôpitaux de ParisNo US site yet
- Prospective Observational Cohort Study of Cardiac Structure and Function in Children and Adults With Osteogenesis ImperfectaRecruitingAges 5-80Istituto Ortopedico RizzoliNo US site yet
- Registry of Osteogenesis ImperfectaRecruitingLuca SangiorgiNo US site yet
- REMS25: Study on the Use of REMS Technology in Diseases Commonly Associated With Reduced Bone Mineral Density (BMD)RecruitingAges 5-18Meyer Children's Hospital IRCCSNo US site yet
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Who runs the Osteogenesis Imperfecta trials in the US, and what stage they are in
Of the 4 Osteogenesis Imperfecta trials with a US site, 1 is in Phase 3, the last stage before a company can ask the FDA for approval. One more is an earlier Phase 1 or 2 test of safety and dosing. One is a Phase 4 study of an already approved treatment. The last one has no drug phase, such as a study that follows people over time or tests a device or a way of giving care. Companies run 2 of them, and universities, hospitals, foundations and government groups run 2. The most recently listed one first appeared on ClinicalTrials.gov on January 26, 2026.
Osteogenesis Imperfecta trials in the US, state by state
Of the 4 Osteogenesis Imperfecta trials with a US site, 3 accept children under 18. Their open sites are in 11 states and Washington, DC, most often New York, Arizona and California. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 7 states
US hospitals running the most Osteogenesis Imperfecta trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Osteogenesis Imperfecta.
- Hospital for Special SurgeryNew York, New York2 trials
- AI Dupont Hospital for ChildrenWilmington, Delaware1 trial
- Baylor College of MedicineHouston, Texas1 trial
- Children's National Medical CenterWashington D.C., District of Columbia1 trial
- Indiana UniversityIndianapolis, Indiana1 trial
- Indiana University School of Medicine, Department of Medicine and Pediatrics Division of EndocrinologyIndianapolis, Indiana1 trial
- Kennedy Krieger Institute / Hugo W. Moser Research InstituteBaltimore, Maryland1 trial
- Nemours/Alfred I. duPont Hospital for ChildrenWilmington, Delaware1 trial
- New Mexico Clinical Research & Osteoporosis Center, Inc. (NMCROC)Albuquerque, New Mexico1 trial
- Oregon Health & Science University (OHSU) - The Harold Schnitzer Diabetes Health Center (HSDHC) - Endocrinology ClinicPortland, Oregon1 trial
Help getting to an Osteogenesis Imperfecta trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding an Osteogenesis Imperfecta trial near you
Are there Osteogenesis Imperfecta clinical trials near me?
As of November 13, 2026, 11 Osteogenesis Imperfecta clinical trials are recruiting now and 5 are not yet recruiting. In the US, 4 of them have at least 1 open site, across 16 states and Washington, DC. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Osteogenesis Imperfecta clinical trial sites?
Recruiting Osteogenesis Imperfecta trials list open sites in 16 states and Washington, DC. Arizona, Delaware and Indiana have the most, and the table on this page lists every state.
Are there Osteogenesis Imperfecta trials for children near me?
Of the 4 Osteogenesis Imperfecta trials with a US site, 3 accept children under 18. Their open sites are in 11 states and Washington, DC, most often New York, Arizona and California. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to an Osteogenesis Imperfecta clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Osteogenesis Imperfecta trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when an Osteogenesis Imperfecta trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.