Zero ad trackers.We never sell your data.Healthcare professional?Clinician Resources

Cerebrotendinous Xanthomatosis Clinical Trials Near Me

As of November 13, 2026, 1 Cerebrotendinous Xanthomatosis clinical trial is recruiting. In the US, 1 of them has at least 1 open site, across 13 states and Washington, DC. Enter your ZIP code below to see which are closest to you.

Also on Trial Friend:Cerebrotendinous Xanthomatosis pageMatch Me

Trial Friend never receives or stores your ZIP code. Your browser looks up its location with a free map service.
Distance
Status
Ages
Phase
A study site. Select it to see its trials and get directions. Several sites close together. Select the number to zoom in.
+14 more

The Cerebrotendinous Xanthomatosis trial and their US sites

Enter your ZIP code above to sort them by how far their nearest open site is from you.

  1. The Myelin Disorders Biorepository Project
    Most sites in California, Pennsylvania and Minnesota
    RecruitingChildren's Hospital of Philadelphia
    24US sites
    14 states
Get an email when Cerebrotendinous Xanthomatosis trials change

New trials, status changes and new sites, straight from ClinicalTrials.gov. Unsubscribe anytime.

You'll get, for Cerebrotendinous Xanthomatosis:
  • Trial Alerts, when a new trial opens or a trial changes
  • Disease Updates, FDA decisions and condition news, usually 1 or 2 emails a month
Turn either off anytime from the link in every email.
We never share your email. Unsubscribe anytime. Privacy policy · Check any health site

Who runs the Cerebrotendinous Xanthomatosis trials in the US, and what stage they are in

None of the 1 Cerebrotendinous Xanthomatosis trial with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. The last one has no drug phase, such as a study that follows people over time or tests a device or a way of giving care. Universities, hospitals, foundations and government groups run all of them, with no company leading one. The most recently listed one first appeared on ClinicalTrials.gov on February 9, 2017.

Cerebrotendinous Xanthomatosis trials in the US, state by state

The only Cerebrotendinous Xanthomatosis trial with a US site accepts children under 18. Its open sites are in 13 states and Washington, DC, most often California, District of Columbia and Georgia. A trial counts once in each state where it has an open site, and some trials accept both children and adults.

StateTrialsChildrenAdultsCities with the most
California111Los Angeles (1), Orange (1), Palo Alto (1), plus 3 more
District of Columbia111Washington D.C. (1)
Georgia111Atlanta (1)
Illinois111Chicago (1)
Maryland111Baltimore (1)
Massachusetts111Boston (1)
Minnesota111Minneapolis (1), Rochester (1)
North Carolina111Winston-Salem (1)
Ohio111Akron (1), Columbus (1)
Pennsylvania111Philadelphia (1), Pittsburgh (1)
Show the other 4 states
Texas111Houston (1)
Utah111Salt Lake City (1)
Virginia111Charlottesville (1)
Washington111Seattle (1)

US hospitals running the most Cerebrotendinous Xanthomatosis trials

Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Cerebrotendinous Xanthomatosis.

  1. Akron Children's HospitalAkron, Ohio1 trial
  2. Ann & Robert H. Lurie Children's Hospital of ChicagoChicago, Illinois1 trial
  3. Atrium Health Wake Forest BaptistWinston-Salem, North Carolina1 trial
  4. Baylor College of Medicine (Texas Children's Hospital)Houston, Texas1 trial
  5. Children's Hospital of Los AngelesLos Angeles, California1 trial
  6. Children's Hospital of Orange CountyOrange, California1 trial
  7. Children's National Medical CenterWashington D.C., District of Columbia1 trial
  8. Emory University (Children's Healthcare of Atlanta)Atlanta, Georgia1 trial
  9. Kennedy Krieger InstituteBaltimore, Maryland1 trial
  10. Massachusetts General Hospital (MGH)Boston, Massachusetts1 trial

Help getting to a Cerebrotendinous Xanthomatosis trial far from home

Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.

These nonprofits also help patients reach care, and each one sets its own rules.

Mercy Medical Angels
Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
Air Charity Network
Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
Ronald McDonald House
Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
Healthcare Hospitality Network
Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.

Program details were checked on each program's website on October 24, 2026.

Questions about finding a Cerebrotendinous Xanthomatosis trial near you

Are there Cerebrotendinous Xanthomatosis clinical trials near me?

As of November 13, 2026, 1 Cerebrotendinous Xanthomatosis clinical trial is recruiting. In the US, 1 of them has at least 1 open site, across 13 states and Washington, DC. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.

Which states have Cerebrotendinous Xanthomatosis clinical trial sites?

Recruiting Cerebrotendinous Xanthomatosis trials list open sites in 13 states and Washington, DC. California, District of Columbia and Georgia have the most, and the table on this page lists every state.

Are there Cerebrotendinous Xanthomatosis trials for children near me?

The only Cerebrotendinous Xanthomatosis trial with a US site accepts children under 18. Its open sites are in 13 states and Washington, DC, most often California, District of Columbia and Georgia. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.

Who pays for travel to a Cerebrotendinous Xanthomatosis clinical trial?

Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.

What if there is no Cerebrotendinous Xanthomatosis trial near me?

Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Cerebrotendinous Xanthomatosis trial opens a new site or changes status.

How is the distance to a trial site measured?

Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.

FDA-approved for Cerebrotendinous Xanthomatosis: Ctexli (chenodiol (chenodeoxycholic acid)).

Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.