Hunter Syndrome Clinical Trials Near Me
As of October 12, 2026, 5 Hunter Syndrome clinical trials are recruiting. 4 of them have at least 1 open site in the United States, across 3 states. Enter your ZIP code to see which are closest to you.
Also on Trial Friend:Hunter Syndrome pageMatch Me
All 5 Hunter Syndrome trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Longitudinal Study of Neurodegenerative DisordersUPMC Children's Hospital of Pittsburgh, Pittsburgh, PennsylvaniaRecruitingRun by University of Pittsburgh
- PEARL (PrEnAtal Enzyme Replacement Therapy for Lysosomal Storage Disorders)University of California, San Francisco, CaliforniaRecruitingPhase 1Ages 18 to 50Run by University of California, San Francisco
- Registry of Patients Diagnosed With Lysosomal Storage DiseasesUniversity of California San Francisco, San Francisco, CaliforniaRecruitingUp to age 64Run by University of California, San Francisco
- UCB Transplant of Inherited Metabolic Diseases With Administration of Intrathecal UCB Derived Oligodendrocyte-Like CellsDuke University Medical Center, Durham, North CarolinaRecruitingPhase 1Ages 1 Week to 22Run by Joanne Kurtzberg, MD
- MPS (RaDiCo Cohort) (RaDiCo-MPS)No open US site listed yetRecruitingRun by Institut National de la Santé Et de la Recherche Médicale, France
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Where Hunter Syndrome trials are recruiting in the US
The US cities with the most Hunter Syndrome trials recruiting are San Francisco, California (2), Durham, North Carolina (1) and Pittsburgh, Pennsylvania (1), counting trials with at least 1 open site in each city.
Hospitals that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Hunter Syndrome, even if no trial fits you.
- University of California
- University of California San Francisco
- Duke University Medical Center
- UPMC Children's Hospital of Pittsburgh
States with at least 1 open site: California, North Carolina, Pennsylvania.
Questions about finding a Hunter Syndrome trial near you
Are there Hunter Syndrome clinical trials near me?
As of October 12, 2026, 5 Hunter Syndrome clinical trials are recruiting. 4 of them have at least 1 open site in the United States, across 3 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Hunter Syndrome clinical trial sites?
As of October 12, 2026, recruiting Hunter Syndrome trials list open sites in California, North Carolina and Pennsylvania.
What if there is no Hunter Syndrome trial near me?
Some trials pay for or reimburse travel and lodging, and a few send staff or use local labs so fewer visits happen at the study site, so ask the study contact before ruling a trial out. You can also sign up on this page to get an email when a Hunter Syndrome trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Hunter Syndrome: Avlayah (tividenofusp alfa), Elaprase (idursulfase).
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of October 12, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out.