Usher Syndrome Clinical Trials Near Me

As of November 13, 2026, 8 Usher Syndrome clinical trials are recruiting now and 2 are not yet recruiting. In the US, 4 of them have at least 1 open site, across 6 states. Enter your ZIP code below to see which are closest to you.

Also on Trial Friend:Usher Syndrome page Match Me

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A study site. Select it to see its trials and get directions. Several sites close together. Select the number to zoom in.

All 8 Usher Syndrome trials and their US sites

Enter your ZIP code above to sort them by how far their nearest open site is from you.

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Who runs the Usher Syndrome trials in the US, and what stage they are in

Of the 4 Usher Syndrome trials with a US site, 1 is in Phase 3, the last stage before a company can ask the FDA for approval. One more is an earlier Phase 1 or 2 test of safety and dosing. The remaining 2 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 2 of them, and universities, hospitals, foundations and government groups run 2. The most recently listed one first appeared on ClinicalTrials.gov on July 17, 2026.

Usher Syndrome trials in the US, state by state

Of the 4 Usher Syndrome trials with a US site, 1 accepts children under 18. Its open sites are in Maryland. A trial counts once in each state where it has an open site, and some trials accept both children and adults.

StateTrialsChildrenAdultsCities with the most

Maryland212Bethesda (1), Columbia (1), Silver Spring (1)

Texas202Dallas (2)

California101Los Angeles (1)

Florida101Miami (1)

Pennsylvania101Philadelphia (1)

Wisconsin101Madison (1)

US hospitals running the most Usher Syndrome trials

Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Usher Syndrome.

Retina Foundation of the SouthwestDallas, Texas2 trials
Food and Drug AdministrationSilver Spring, Maryland1 trial
Foundation Fighting BlindnessColumbia, Maryland1 trial
Mid Atlantic Retina/ Wills EyePhiladelphia, Pennsylvania1 trial
NIH Clinical CenterBethesda, Maryland1 trial
University of Miami, Bascom Palmer Eye InstituteMiami, Florida1 trial
University of Southern California /Children's Hospital of Los AngelesLos Angeles, California1 trial
University of WisconsinMadison, Wisconsin1 trial

Help getting to an Usher Syndrome trial far from home

Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.

These nonprofits also help patients reach care, and each one sets its own rules.

Mercy Medical Angels: Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
Air Charity Network: Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
Ronald McDonald House: Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
Healthcare Hospitality Network: Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.

Program details were checked on each program's website on October 24, 2026.

Questions about finding an Usher Syndrome trial near you

Are there Usher Syndrome clinical trials near me?

Which states have Usher Syndrome clinical trial sites?

Recruiting Usher Syndrome trials list open sites in California, Florida, Maryland, Pennsylvania, Texas and Wisconsin.

Are there Usher Syndrome trials for children near me?

Of the 4 Usher Syndrome trials with a US site, 1 accepts children under 18. Its open sites are in Maryland. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.

Who pays for travel to an Usher Syndrome clinical trial?

Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.

What if there is no Usher Syndrome trial near me?

Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when an Usher Syndrome trial opens a new site or changes status.

How is the distance to a trial site measured?

Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.

Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.