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All 3 Aromatic L-Amino Acid Decarboxylase Deficiency trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- A Single-Stage, Adaptive, Open-label, Dose Escalation Safety and Efficacy Study of AADC Deficiency in Pediatric PatientsMost sites in Ohio and CaliforniaRecruitingPhase 1Ages 24 Months+Krzysztof Bankiewicz3US sites
2 states - An Early Clinical Trial to Evaluate VGN-R09b for Treatment of Aromatic L-amino Acid Decarboxylase (AADC) Deficiency.RecruitingEarly Phase 1Ages 24 Months-7Shanghai Jiao Tong University School of MedicineNo US site yet
- Newborn Screening and Early Diagnosis of AADC Deficiency in the Ligurian PopulationRecruitingAges 0 Days-3 DaysIstituto Giannina GasliniNo US site yet
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Who runs the Aromatic L-Amino Acid Decarboxylase Deficiency trials in the US, and what stage they are in
None of the 1 Aromatic L-Amino Acid Decarboxylase Deficiency trial with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. One more is an earlier Phase 1 or 2 test of safety and dosing. Universities, hospitals, foundations and government groups run all of them, with no company leading one. The most recently listed one first appeared on ClinicalTrials.gov on August 2, 2016.
Aromatic L-Amino Acid Decarboxylase Deficiency trials in the US, state by state
The only Aromatic L-Amino Acid Decarboxylase Deficiency trial with a US site accepts children under 18. Its open sites are in California and Ohio. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
US hospitals running the most Aromatic L-Amino Acid Decarboxylase Deficiency trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Aromatic L-Amino Acid Decarboxylase Deficiency.
- Nationwide Children's HospitalColumbus, Ohio1 trial
- The Ohio State University Medical CenterColumbus, Ohio1 trial
- University of California San Francisco, Benioff Children's HospitalSan Francisco, California1 trial
Help getting to an Aromatic L-Amino Acid Decarboxylase Deficiency trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding an Aromatic L-Amino Acid Decarboxylase Deficiency trial near you
Are there Aromatic L-Amino Acid Decarboxylase Deficiency clinical trials near me?
As of November 13, 2026, 3 Aromatic L-Amino Acid Decarboxylase Deficiency clinical trials are recruiting. In the US, 1 of them has at least 1 open site, across 2 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Aromatic L-Amino Acid Decarboxylase Deficiency clinical trial sites?
Recruiting Aromatic L-Amino Acid Decarboxylase Deficiency trials list open sites in California and Ohio.
Are there Aromatic L-Amino Acid Decarboxylase Deficiency trials for children near me?
The only Aromatic L-Amino Acid Decarboxylase Deficiency trial with a US site accepts children under 18. Its open sites are in California and Ohio. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to an Aromatic L-Amino Acid Decarboxylase Deficiency clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Aromatic L-Amino Acid Decarboxylase Deficiency trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when an Aromatic L-Amino Acid Decarboxylase Deficiency trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Aromatic L-Amino Acid Decarboxylase Deficiency: Kebilidi (eladocagene exuparvovec-tneq).
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.