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All 7 Diamond-Blackfan Anemia trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Assessing the Safety, Tolerability, and Efficacy of APR-2020 in Pediatric and Adolescent Subjects With RPS19 Deficient Diamond-Blackfan AnemiaMost sites in California and MassachusettsRecruitingPhase 1Ages 2-25Apriligen2US sites
2 states - Cancer in Inherited Bone Marrow Failure SyndromesOnly in MarylandRecruitingAges 1 Day-100National Cancer Institute (NCI)2US sites
- AlloSCT for Malignant and Non-malignant Hematologic Diseases Utilizing Alpha/Beta T Cell and CD19+ B Cell DepletionOnly in New YorkRecruitingPhase 2Ages 1 Day-30Mitchell Cairo1US site
- Familial Investigations of Childhood Cancer PredispositionOnly in TennesseeRecruitingSt. Jude Children's Research Hospital1US site
- Investigation of the Genetics of Hematologic DiseasesOnly in TennesseeRecruitingSt. Jude Children's Research Hospital1US site
- Mobilization of CD34+ Peripheral Blood Stem Cells in Patients With Diamond Blackfan Anemia Syndrome (DBAS)Only in New YorkRecruitingAges 3-30Northwell Health1US site
- T-Cell Depleted Alternative Donor Bone Marrow Transplant for Sickle Cell Disease (SCD) and Other AnemiasOnly in PennsylvaniaRecruitingPhase 1/2Ages 5-40Paul Szabolcs1US site
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Who runs the Diamond-Blackfan Anemia trials in the US, and what stage they are in
None of the 7 Diamond-Blackfan Anemia trials with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 3 of them. The remaining 4 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 1 of them, and universities, hospitals, foundations and government groups run 6. St. Jude Children's Research Hospital runs the most, with 2. The most recently listed one first appeared on ClinicalTrials.gov on March 17, 2026.
Diamond-Blackfan Anemia trials in the US, state by state
All 7 Diamond-Blackfan Anemia trials with a US site accept children under 18. Their open sites are in 6 states, most often New York, Tennessee and California. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
US hospitals running the most Diamond-Blackfan Anemia trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Diamond-Blackfan Anemia.
- St. Jude Children's Research HospitalMemphis, Tennessee2 trials
- Boston Children's HospitalBoston, Massachusetts1 trial
- Children's Hospital of Pittsburgh of UPMCPittsburgh, Pennsylvania1 trial
- Cohen Children's Medical CenterNew Hyde Park, New York1 trial
- National Cancer Institute - Shady GroveRockville, Maryland1 trial
- National Institutes of Health Clinical CenterBethesda, Maryland1 trial
- New York Medical CollegeValhalla, New York1 trial
- Stanford University - Stanford Children's HealthStanford, California1 trial
Help getting to a Diamond-Blackfan Anemia trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Diamond-Blackfan Anemia trial near you
Are there Diamond-Blackfan Anemia clinical trials near me?
As of November 13, 2026, 7 Diamond-Blackfan Anemia clinical trials are recruiting. In the US, 7 of them have at least 1 open site, across 6 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Diamond-Blackfan Anemia clinical trial sites?
Recruiting Diamond-Blackfan Anemia trials list open sites in California, Maryland, Massachusetts, New York, Pennsylvania and Tennessee.
Are there Diamond-Blackfan Anemia trials for children near me?
All 7 Diamond-Blackfan Anemia trials with a US site accept children under 18. Their open sites are in 6 states, most often New York, Tennessee and California. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Diamond-Blackfan Anemia clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Diamond-Blackfan Anemia trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Diamond-Blackfan Anemia trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Diamond-Blackfan Anemia: Corticosteroids (triamcinolone, methylprednisolone, prednisolone, hydrocortisone, prednisone, dexamethasone, betamethasone).
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.