Also on Trial Friend:Fanconi Anemia pageMatch Me
All 13 Fanconi Anemia trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Cancer in Inherited Bone Marrow Failure SyndromesOnly in MarylandRecruitingAges 1 Day-100National Cancer Institute (NCI)2US sites
- HSCT for Patients With Fanconi Anemia Using Risk-Adjusted ChemotherapyMost sites in Ohio and WashingtonRecruitingPhase 2Ages 3 Months+Children's Hospital Medical Center, Cincinnati2US sites
2 states - Safety and Tolerability of Metformin and Naproxen for Cancer Prevention in Fanconi AnemiaMost sites in Minnesota and New YorkRecruitingPhase 1Ages 18+Rockefeller University2US sites
2 states - Alpha/Beta TCD HCT in Patients With Inherited BMF DisordersOnly in MinnesotaRecruitingPhase 2Up to age 65Masonic Cancer Center, University of Minnesota1US site
- Defining the Natural History of Squamous Cell Carcinoma in Fanconi AnemiaOnly in MarylandRecruitingAges 8-90National Cancer Institute (NCI)1US site
- Depleted Donor Stem Cell Transplant in Children and Adults With Fanconi Anemia After Being Conditioned With a Regimen Containing BriquilimabOnly in CaliforniaRecruitingPhase 1/2Ages 2+Porteus, Matthew, MD1US site
- Familial Investigations of Childhood Cancer PredispositionOnly in TennesseeRecruitingSt. Jude Children's Research Hospital1US site
- Investigation of the Genetics of Hematologic DiseasesOnly in TennesseeRecruitingSt. Jude Children's Research Hospital1US site
- MRI as Noninvasive Innovative Approach in Detection and Monitoring of Malignant Oral Lesions in Fanconi Anemia PatientsOnly in MinnesotaRecruitingAges 18+University of Minnesota1US site
- Regenerative Medicine to Restore Hematopoiesis and Immune Function in Immunodeficiencies and Inherited Bone Marrow FailuresOnly in MarylandRecruitingPhase 2Ages 4 Months-50Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins1US site
- Role of Acetaldehyde in the Development of Oral CancerOnly in MinnesotaRecruitingAges 18-45Masonic Cancer Center, University of Minnesota1US site
- Afatinib in Patients With Fanconi Anemia (FA) and Advanced Head and Neck Squamous Cell Carcinoma (HNSCC)RecruitingPhase 1/2Ages 18+Fundació Institut de Recerca de l'Hospital de la Santa Creu i Sant PauNo US site yet
- Enhancing the Clinical Management of CMF Through a National Pediatric and Adult Network Based on Biological and Genetic DataRecruitingAges 28 Days-65Istituto Giannina GasliniNo US site yet
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Who runs the Fanconi Anemia trials in the US, and what stage they are in
None of the 13 Fanconi Anemia trials with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 6 of them. The remaining 7 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Universities, hospitals, foundations and government groups run all of them, with no company leading one. The sponsors with the most are National Cancer Institute (NCI) (3), Masonic Cancer Center, University of Minnesota (2) and St. Jude Children's Research Hospital (2). The most recently listed one first appeared on ClinicalTrials.gov on October 28, 2026.
Fanconi Anemia trials in the US, state by state
Of the 13 Fanconi Anemia trials with a US site, 10 accept children under 18. Their open sites are in 6 states, most often Maryland, California and Tennessee. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
US hospitals running the most Fanconi Anemia trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Fanconi Anemia.
- National Institutes of Health Clinical CenterBethesda, Maryland2 trials
- St. Jude Children's Research HospitalMemphis, Tennessee2 trials
- Stanford UniversityStanford, California2 trials
- Cincinnati Children's Hospital Medical CenterCincinnati, Ohio1 trial
- Fred Hutchinson Cancer Research CenterSeattle, Washington1 trial
- Johns Hopkins UniversityBaltimore, Maryland1 trial
- Masonic Cancer Center at University of MinnesotaMinneapolis, Minnesota1 trial
- Masonic Cancer Center, University of MinnesotaMinneapolis, Minnesota1 trial
- National Cancer InstituteRockville, Maryland1 trial
- National Cancer Institute - Shady GroveRockville, Maryland1 trial
Help getting to a Fanconi Anemia trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Fanconi Anemia trial near you
Are there Fanconi Anemia clinical trials near me?
As of November 13, 2026, 13 Fanconi Anemia clinical trials are recruiting now and 3 are not yet recruiting. In the US, 13 of them have at least 1 open site, across 7 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Fanconi Anemia clinical trial sites?
Recruiting Fanconi Anemia trials list open sites in California, Maryland, Minnesota, New York, Ohio, Tennessee and Washington.
Are there Fanconi Anemia trials for children near me?
Of the 13 Fanconi Anemia trials with a US site, 10 accept children under 18. Their open sites are in 6 states, most often Maryland, California and Tennessee. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Fanconi Anemia clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Fanconi Anemia trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Fanconi Anemia trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.