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All 11 Atypical Hemolytic Uremic Syndrome trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Atypical Hemolytic-Uremic Syndrome (aHUS) RegistryMost sites in Colorado, District of Columbia and FloridaRecruitingAlexion Pharmaceuticals6US sites
6 states - Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at SanfordOnly in South DakotaRecruitingSanford Health1US site
- Study of Ultomiris® (Ravulizumab) Safety in PregnancyOnly in MassachusettsRecruitingAlexion Pharmaceuticals1US site
- Complement Prospective Evaluation of Thrombotic Microangiopathy on EndotheliumRecruitingAges 18+Maastricht University Medical CenterNo US site yet
- Developing a Pipeline to Employ RNA-Seq as a Complementary Diagnostic Tool in Rare DiseasesRecruitingMario Negri Institute for Pharmacological ResearchNo US site yet
- Efficacy and Safety of Switching From Anti-C5 Antibody Treatment to Iptacopan Treatment in Study Participants With Atypical Hemolytic Uremic Syndrome (aHUS)RecruitingPhase 3Ages 18-100Novartis PharmaceuticalsNo US site yet
- Evaluate Long-term Safety, Tolerability and Efficacy of Iptacopan in Study Participants With aHUSRecruitingPhase 3Ages 18-100Novartis PharmaceuticalsNo US site yet
- Functional Implications of Rare Gene Mutations in aHUS Open the Door to Personalized TherapyRecruitingMario Negri Institute for Pharmacological ResearchNo US site yet
- National Registry of Rare Kidney DiseasesRecruitingUK Kidney AssociationNo US site yet
- Post-Marketing Clinical Study of Ravulizumab in Participants With Clinical aHUSRecruitingPhase 4Ages 18+Alexion PharmaceuticalsNo US site yet
- Ravulizumab Outcomes in Polish Patients With aHUSRecruitingAges 18+AstraZenecaNo US site yet
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Who runs the Atypical Hemolytic Uremic Syndrome trials in the US, and what stage they are in
None of the 3 Atypical Hemolytic Uremic Syndrome trials with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. The remaining 3 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 2 of them, and a university, hospital, foundation or government group runs the other. Alexion Pharmaceuticals runs the most, with 2. The most recently listed one first appeared on ClinicalTrials.gov on March 15, 2024.
Atypical Hemolytic Uremic Syndrome trials in the US, state by state
All 3 Atypical Hemolytic Uremic Syndrome trials with a US site accept children under 18. Their open sites are in 6 states and Washington, DC, most often Massachusetts, Colorado and District of Columbia. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
US hospitals running the most Atypical Hemolytic Uremic Syndrome trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Atypical Hemolytic Uremic Syndrome.
- Clinical Trial SiteAurora, Colorado1 trial
- Clinical Trial SiteWashington D.C., District of Columbia1 trial
- Clinical Trial SiteGainesville, Florida1 trial
- Clinical Trial SiteAtlanta, Georgia1 trial
- Clinical Trial SiteBoston, Massachusetts1 trial
- Clinical Trial SiteSt Louis, Missouri1 trial
- Sanford HealthSioux Falls, South Dakota1 trial
Help getting to an Atypical Hemolytic Uremic Syndrome trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding an Atypical Hemolytic Uremic Syndrome trial near you
Are there Atypical Hemolytic Uremic Syndrome clinical trials near me?
As of November 13, 2026, 11 Atypical Hemolytic Uremic Syndrome clinical trials are recruiting now and 1 is not yet recruiting. In the US, 3 of them have at least 1 open site, across 6 states and Washington, DC. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Atypical Hemolytic Uremic Syndrome clinical trial sites?
Recruiting Atypical Hemolytic Uremic Syndrome trials list open sites in Colorado, District of Columbia, Florida, Georgia, Massachusetts, Missouri and South Dakota.
Are there Atypical Hemolytic Uremic Syndrome trials for children near me?
All 3 Atypical Hemolytic Uremic Syndrome trials with a US site accept children under 18. Their open sites are in 6 states and Washington, DC, most often Massachusetts, Colorado and District of Columbia. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to an Atypical Hemolytic Uremic Syndrome clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Atypical Hemolytic Uremic Syndrome trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when an Atypical Hemolytic Uremic Syndrome trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Atypical Hemolytic Uremic Syndrome: Soliris (eculizumab), Ultomiris (ravulizumab).
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.