Also on Trial Friend:Alport Syndrome pageMatch Me
All 10 Alport Syndrome trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Study of Sparsentan Treatment in Pediatrics With Proteinuric Glomerular DiseasesMost sites in Florida, New Jersey and North CarolinaRecruitingPhase 2Ages 1-17Travere Therapeutics17US sites
14 states - NEPTUNE Match StudyMost sites in Washington, New York and PennsylvaniaRecruitingAges 1-80University of Michigan15US sites
11 states - EXACT Study: A Blinded Study in Patients With Alport Syndrome to Evaluate Exaluren Efficacy and SafetyMost sites in California, Colorado and MinnesotaRecruitingPhase 2Ages 12+Eloxx Pharmaceuticals7US sites
6 states - Pediatric Longitudinal Glomerular Disease: a PNRC Multi-Institutional Cohort StudyMost sites in Massachusetts and OhioRecruitingUp to age 18Pediatric Nephrology Research Consortium2US sites
2 states - ASF Alport Patient RegistryOnly in ArizonaRecruitingAges 0+Alport Syndrome Foundation1US site
- Alport Therapy Registry - European Initiative Towards Delaying Renal Failure in Alport SyndromeRecruitingUniversity Hospital GoettingenNo US site yet
- Eurbio-Alport (RaDiCo Cohort) (RaDiCo Eurbio-Alport)RecruitingInstitut National de la Santé Et de la Recherche Médicale, FranceNo US site yet
- Genotype-Phenotype Correlations in Patients With Alport SyndromeRecruitingXinhua Hospital, Shanghai Jiao Tong University School of MedicineNo US site yet
- National Registry of Rare Kidney DiseasesRecruitingUK Kidney AssociationNo US site yet
- Periodontal Disease in Rare Renal Disorders (PERIO-RA-RE)RecruitingAges 18+Stefan LujinschiNo US site yet
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Who runs the Alport Syndrome trials in the US, and what stage they are in
None of the 5 Alport Syndrome trials with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 2 of them. The remaining 3 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 2 of them, and universities, hospitals, foundations and government groups run 3. The most recently listed one first appeared on ClinicalTrials.gov on November 12, 2026.
Alport Syndrome trials in the US, state by state
All 5 Alport Syndrome trials with a US site accept children under 18. Their open sites are in 21 states, most often Ohio, Pennsylvania and California. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 11 states
US hospitals running the most Alport Syndrome trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Alport Syndrome.
- Hackensack University Medical CenterHackensack, New Jersey2 trials
- Seattle Children's HospitalSeattle, Washington2 trials
- Boston Children's HospitalBoston, Massachusetts1 trial
- C.S. Mott Children's HospitalAnn Arbor, Michigan1 trial
- Cedars-Sinai Medical CenterLos Angeles, California1 trial
- Children's Hospital of PhiladelphiaPhiladelphia, Pennsylvania1 trial
- Children's Mercy HospitalKansas City, Missouri1 trial
- Children's Mercy Hospitals and ClinicsKansas City, Missouri1 trial
- Cincinnati Children's Hospital Medical CenterCincinnati, Ohio1 trial
- Cleveland Clinic FoundationCleveland, Ohio1 trial
Help getting to an Alport Syndrome trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding an Alport Syndrome trial near you
Are there Alport Syndrome clinical trials near me?
As of November 13, 2026, 10 Alport Syndrome clinical trials are recruiting now and 3 are not yet recruiting. In the US, 5 of them have at least 1 open site, across 21 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Alport Syndrome clinical trial sites?
Recruiting Alport Syndrome trials list open sites in 21 states. Ohio, Pennsylvania and California have the most, and the table on this page lists every state.
Are there Alport Syndrome trials for children near me?
All 5 Alport Syndrome trials with a US site accept children under 18. Their open sites are in 21 states, most often Ohio, Pennsylvania and California. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to an Alport Syndrome clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Alport Syndrome trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when an Alport Syndrome trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.