Orchard Therapeutics

Orchard Therapeutics works on 9 rare diseases tracked on Trial Friend, including Cerebral Adrenoleukodystrophy, Familial Chylomicronemia Syndrome, Hunter Syndrome and 6 more, with 3 recruiting clinical trials and 1 FDA-approved rare disease drug.

Orchard Therapeutics, acquired by Kyowa Kirin in January 2024, develops hematopoietic stem cell gene therapies for rare genetic diseases. Lenmeldy (atidarsagene autotemcel) received FDA approval in March 2024 for early-onset metachromatic leukodystrophy. OTL-203 for MPS I (Hurler syndrome) is in clinical development.

Type
Rare Disease Specialist
Parent
Kyowa Kirin
Headquarters
London, United Kingdom
Founded
2015
3
Active Rare Disease Trials
1
Approved Rare Disease Drugs
9
Rare Diseases in Portfolio
11
Years Active

Focus areas at Orchard Therapeutics

As a rare disease specialist, Orchard Therapeutics has active clinical trial programs and drug development efforts across 9 rare diseases, including Cerebral Adrenoleukodystrophy, Familial Chylomicronemia Syndrome, Hunter Syndrome, Metachromatic Leukodystrophy, Mucopolysaccharidosis Type I, and 4 additional rare conditions. These programs may span orphan drug designation, novel therapeutic mechanisms, and precision medicine approaches targeting the underlying causes of each disease.

The clinical trials section below shows all active and recruiting studies sponsored by Orchard Therapeutics, sourced live from ClinicalTrials.gov. Each trial includes its current recruitment status, study phase (Phase 1 through Phase 4), conditions under investigation, and the number of active trial sites. The FDA-approved drugs section lists treatments that have received U.S. Food and Drug Administration approval, with brand names, generic names, approval dates, and matched rare disease indications from the openFDA database.

Orchard Therapeutics is headquartered in London, United Kingdom, founded in 2015, a subsidiary of Kyowa Kirin. The company dedicates its research and development resources exclusively to rare and orphan diseases, working to bring innovative treatments to patients with conditions that have historically had limited or no treatment options.

Orchard Therapeutics Drug Pipeline

Orchard Therapeutics has 3 active clinical trials across 2 development stages, with 3 currently recruiting participants. Clinical trials advance through phases: Phase 1 tests safety in a small group, Phase 2 evaluates effectiveness and side effects, Phase 3 confirms benefit in a larger population, and Phase 4 monitors long-term safety after FDA approval.

Note: This pipeline includes all of Orchard Therapeutics's active interventional trials, not only those targeting rare diseases. We show the full pipeline because a company's broader research activity, therapeutic expertise, and development infrastructure directly shape its ability to advance rare disease programs. A strong overall pipeline often signals deeper clinical operations, faster enrollment capabilities, and greater commitment to bringing new treatments to patients.

Understand Orchard Therapeutics's pipeline
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1
Phase 21 trial
Mucopolysaccharidosis IH
Recruiting
2
Phase 32 trials
Lysosomal Storage Diseases+1 more
Recruiting

Orchard Therapeutics Clinical Trials (3)

Active and recruiting clinical trials sponsored by Orchard Therapeutics, sourced live from ClinicalTrials.gov. Each trial card shows the study phase, current recruitment status, conditions under investigation, study locations, eligibility criteria, and a direct link to the full ClinicalTrials.gov record. You can also download a one-page PDF summary to share with your doctor.

Note: Recruitment statuses on ClinicalTrials.gov may not immediately reflect recent FDA decisions, sponsor announcements, or enrollment changes. Always confirm a trial's current status directly with the study coordinator.

Ask about Orchard Therapeutics's trials
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ACTIVE NOT RECRUITINGPHASE1, PHASE2Recently updatedNCT03488394

Gene Therapy With Modified Autologous Hematopoietic Stem Cells for the Treatment of Patients With Mucopolysaccharidosis Type I, Hurler Variant

Intervention: Frozen autologous CD34+ hematopoietic stem and progenitor cells genetically modified with the lentiviral vector IDUA LVV, encoding for the α-L-iduronidase cDNA, in their final formulation medium.

Mucopolysaccharidosis IH

This is a phase I/II study evaluating safety and efficacy of autologous hematopoietic stem and progenitor cells genetically modified with IDUA lentiviral vector encoding for the human α-L-iduronidase gene for the treatment of patients affected by Mucopolysaccharidosis Type I, Hurler variant

Ages 28 Days - 11 Years1 location
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ACTIVE NOT RECRUITINGPHASE3No updates in a whileNCT06149403

A Study to Investigate the Efficacy and Safety of OTL-203 in Subjects With MPS-IH Compared With Standard of Care With Allogeneic HSCT

Intervention: Experimental: OTL-203, Active Comparator: Allo-HSCT

A multi-center randomized clinical trial to compare OTL-203 (gene therapy) with stem cell transplant (standard of care) in patients with MPS-IH (Hurler syndrome).

Ages 28 Days - 30 Months5 locations
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ACTIVE NOT RECRUITINGPHASE3Hasn't posted an update in over a yearNCT04283227

OTL-200 in Patients With Late Juvenile Metachromatic Leukodystrophy (MLD)

Intervention: OTL-200

Lysosomal Storage DiseasesMetachromatic Leukodystrophy

OTL-200 is a cryopreserved dispersion for infusion containing autologous CD34+ cell enriched population that contains haematopoietic stem and progenitor cells (HSPC) transduced ex vivo using a lentiviral vector encoding the human arylsulfatase A (ARSA) gene. MLD is an autosomal recessive lysosomal storage disorder (LSD) characterized by severe and progressive demyelination affecting the central and peripheral nervous system. The aim of this clinical study is to assess the pharmacodynamic effect and long-term clinical efficacy and safety of OTL-200 in Late Juvenile MLD patients.

Ages not specified1 location
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Orchard Therapeutics FDA-Approved Drugs (1)

Medications developed or marketed by Orchard Therapeutics that have received U.S. Food and Drug Administration approval. Drug data is sourced from the openFDA database and includes brand names, generic names, approval dates, and matched rare disease indications. Where a drug treats a condition covered by Trial Friend, the disease name links directly to that disease page.

Drug NameBrand NameRare DiseasesApproval Date
ATIDARSAGENE AUTOTEMCELLENMELDY
intravenous
—

Orchard Therapeutics Trial Locations

Orchard Therapeutics clinical trials are running at 7 sites in 4 countries. Click any country to drill down by state, city, and individual research facility. Proximity to a trial site is one of the most important factors in deciding whether to participate.

Italy
3▼
Netherlands
2▼
United States
1▼
United Kingdom
1▼

Rare Disease Focus Areas (9)

Diseases targeted by Orchard Therapeutics's clinical trial and drug development programs

Cerebral AdrenoleukodystrophyNeurological & Neuromuscular

Cerebral adrenoleukodystrophy is the most severe form of X-linked adrenoleukodystrophy, caused by mutations in the ABCD1 gene that impair breakdown of very-long-chain fatty acids. These accumulate in ...

Prevalence: 1 in 20,000 males worldwide; cerebral form develops in approximately 35-40% of boys with X-ALD
Familial Chylomicronemia SyndromeMetabolic & Lysosomal

Familial Chylomicronemia Syndrome is a rare inherited metabolic disorder where the body cannot break down certain fats (triglycerides) normally, causing dangerously high blood fat levels. People with ...

Prevalence: 1 to 2 per 1,000,000 people globally
Hunter SyndromeMetabolic & Lysosomal

Hunter syndrome is an X-linked lysosomal storage disorder caused by deficiency of iduronate-2-sulfatase enzyme, leading to accumulation of glycosaminoglycans in cells and tissues. This multisystem dis...

Prevalence: 1 in 100,000 to 150,000 males; females with disease are rare
Metachromatic LeukodystrophyMetabolic & Lysosomal

Metachromatic Leukodystrophy (MLD) is a lysosomal storage disorder resulting from deficiency of the enzyme arylsulfatase A (ARSA), which breaks down sulfatides, critical components of myelin. Deficien...

Prevalence: Approximately 1 per 40,000 to 1 per 160,000 live births globally; variable by region
Mucopolysaccharidosis Type IMetabolic & Lysosomal

Mucopolysaccharidosis Type I (MPS I) is a lysosomal storage disorder caused by deficiency of the enzyme alpha-L-iduronidase, which breaks down glycosaminoglycans (GAGs). This results in accumulation o...

Prevalence: Approximately 1 per 100,000 live births; Hurler form is the most common phenotype
Sanfilippo SyndromeMetabolic & Lysosomal

Sanfilippo syndrome, formally mucopolysaccharidosis type III (MPS III), is a lysosomal storage disorder in which the body cannot break down a sugar chain called heparan sulfate. It builds up mainly in...

Prevalence: Approximately 1 per 70,000 to 1 per 100,000 live births; highest prevalence in certain populations including Australia and Scandinavia

Patient Resources

Organizations and resources related to Orchard Therapeutics's rare disease focus areas

Frequently Asked Questions About Orchard Therapeutics

Common questions about Orchard Therapeutics's rare disease programs, clinical trials, and treatments.