Alexion Pharmaceuticals

Alexion Pharmaceuticals works on 30 rare diseases tracked on Trial Friend, including Acromegaly, Amyotrophic Lateral Sclerosis, ATTR Amyloidosis (Transthyretin Amyloidosis) and 27 more, with 33 recruiting clinical trials and 4 FDA-approved rare disease drugs.

Alexion, now AstraZeneca's Rare Disease division following a $39 billion acquisition in 2021, is the pioneer of complement-targeted therapies. Key products include Soliris (eculizumab) and its successor Ultomiris (ravulizumab) for paroxysmal nocturnal hemoglobinuria (PNH), atypical hemolytic uremic syndrome, generalized myasthenia gravis, and neuromyelitis optica spectrum disorder. Voydeya (danicopan), the first oral Factor D inhibitor, was FDA-approved in March 2024 as add-on therapy to ravulizumab or eculizumab for clinically significant extravascular hemolysis in adults with PNH. The portfolio also includes Strensiq (asfotase alfa) for hypophosphatasia and Kanuma (sebelipase alfa) for lysosomal acid lipase deficiency.

Type
Rare Disease Specialist
Parent
AstraZeneca
Headquarters
Boston, United States
Founded
1992
33
Active Rare Disease Trials
4
Approved Rare Disease Drugs
30
Rare Diseases in Portfolio
34
Years Active

Alexion Pharmaceuticals Drug Pipeline

Alexion Pharmaceuticals has 33 active clinical trials across 4 development stages, with 33 currently recruiting participants. Clinical trials advance through phases: Phase 1 tests safety in a small group, Phase 2 evaluates effectiveness and side effects, Phase 3 confirms benefit in a larger population, and Phase 4 monitors long-term safety after FDA approval.

Note: This pipeline includes all of Alexion Pharmaceuticals's active interventional trials, not only those targeting rare diseases. We show the full pipeline because a company's broader research activity, therapeutic expertise, and development infrastructure directly shape its ability to advance rare disease programs. A strong overall pipeline often signals deeper clinical operations, faster enrollment capabilities, and greater commitment to bringing new treatments to patients.

Understand Alexion Pharmaceuticals's pipeline
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4
Phase 24 trials
Recruiting
Amyloid Transthyretin Cardiomyopathy
Recruiting
15
Phase 315 trials
NMOSD+1 more
Recruiting
Transthyretin Amyloid Cardiomyopathy
Recruiting
IgAN+4 more
Recruiting
Recruiting
3
Phase 4 / Post-Market3 trials
aHUS+1 more
Recruiting
Transthyretin-type Cardiac Amyloidosis
Recruiting
11
Other11 trials
Cardiomyopathy, Dilated+1 more
Recruiting
Ultomiris-exposed Pregnant/ Postpartum+4 more
Recruiting

Alexion Pharmaceuticals Clinical Trials (33)

Active and recruiting clinical trials sponsored by Alexion Pharmaceuticals, sourced live from ClinicalTrials.gov. Each trial card shows the study phase, current recruitment status, conditions under investigation, study locations, eligibility criteria, and a direct link to the full ClinicalTrials.gov record. You can also download a one-page PDF summary to share with your doctor.

Note: Recruitment statuses on ClinicalTrials.gov may not immediately reflect recent FDA decisions, sponsor announcements, or enrollment changes. Always confirm a trial's current status directly with the study coordinator.

Ask about Alexion Pharmaceuticals's trials
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ACTIVE NOT RECRUITINGRecently updatedNCT03329365

Paroxysmal Nocturnal Hemoglobinuria in ESUS & ETUS

Paroxysmal Nocturnal HemoglobinuriaEmbolic Stroke of Undetermined SourceTransient Ischemic AttackCerebral Vein Thrombosis

Paroxysmal nocturnal hemoglobinuria (PNH) is a rare acquired clonal hematological disorder, which can cause arterial or venous thrombosis. The frequency of PNH in young patients (\< 50 years old) with embolic stroke (ESUS), transient ischemic attack (ETUS) or superior sagittal sinus cerebral venous thrombosis (SSS-CVTUS) of undetermined source, is currently unknown. This study proposes to recruit ESUS, ETUS, SSS-CVTUS patients to determine the frequency of PNH diagnosis confirmed by flow cytometry in these patient populations.

Ages 18 Years - 50 Years1 location
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RECRUITINGPHASE3Recently updatedNCT07557420

Efficacy, Safety, Pharmacokinetics, Pharmacodynamics, and Immunogenicity Study of Ravulizumab in Chinese Adults With Neuromyelitis Optica Spectrum Disorder (NMOSD)

Intervention: Ravulizumab

The primary objective of this study is to confirm the efficacy, safety, pharmacokinetics (PK), pharmacodynamics (PD), and immunogenicity of ravulizumab in the treatment of Chinese adults with anti-aquaporin-4 (AQP4) antibody (Ab) + neuromyelitis optica spectrum disorder (NMOSD).

Ages 18 Years - 130 Years10 locations
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RECRUITINGPHASE3Recently updatedNCT07596784

Efficacy and Safety of Ravulizumab in Chinese Adults Participants With Generalized Myasthenia Gravis (gMG)

Intervention: Ravulizumab

The primary purpose of this study is to evaluate the efficacy, safety, pharmacokinetics, pharmacodynamics, and immunogenicity of ravulizumab in Chinese adult participants with Acetylcholine receptor (AChR) + Generalized Myasthenia Gravis (gMG).

Ages 18 Years - 130 Years10 locations
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RECRUITINGPHASE1, PHASE2Recently updatedNCT07218887

ALXN2350 in Adult Participants With BAG3-Associated Dilated Cardiomyopathy

Intervention: ALXN2350

This Phase 1/2 study is an open-label, dose finding and dose expansion study investigating the safety, tolerability, and efficacy of a single IV infusion of ALXN2350 in adult participants with BAG3 associated DCM.

Ages 18 Years - 70 Years11 locations
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ACTIVE NOT RECRUITINGPHASE3Recently updatedNCT06183931

Study of ALXN2220 Versus Placebo in Adults With ATTR-CM

Intervention: ALXN2220, Placebo

Transthyretin Amyloid Cardiomyopathy

The primary objective of this study is to access the efficacy of ALXN2220 in the treatment of adult participants with ATTR-CM by evaluating the difference between the ALXN2220 and placebo groups as assessed by the total occurrences of all-cause mortality (ACM) and cardiovascular (CV) clinical events.

Ages 18 Years - 90 Years213 locations
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RECRUITINGPHASE3Recently updatedNCT07024563

Study of Ravulizumab in Pediatric Participants With Primary IgAN

Intervention: Ravulizumab

IgANIgAVNImmunoglobulin A NephropathyImmunoglobulin A Vasculitis Associated NephritisHenoch-schonlein Purpura Nephritis

The primary objectives of this study are to characterize ravulizumab pharmacokinetics (PK) and pharmacodynamics (PD), and to evaluate safety and efficacy following ravulizumab IV dosing in pediatric participants with IgAN or IgAVN.

Ages 2 Years - 18 Years15 locations
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RECRUITINGPHASE1, PHASE2Recently updatedNCT07081646

A Phase 1b/2 Study of CAR T Cell Therapy Targeting CD19 and BCMA in Participants With Relapsed or Refractory AL Amyloidosis.

Intervention: AZD0120

Open-label Phase 1b/2 study with primary objective of this study is to evaluate the safety, tolerability and efficacy of AZD0120 in participants with light chain (AL) amyloidosis.

Ages 18 Years+18 locations
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Alexion Pharmaceuticals FDA-Approved Drugs (4)

Medications developed or marketed by Alexion Pharmaceuticals that have received U.S. Food and Drug Administration approval. Drug data is sourced from the openFDA database and includes brand names, generic names, approval dates, and matched rare disease indications. Where a drug treats a condition covered by Trial Friend, the disease name links directly to that disease page.

Drug NameBrand NameRare DiseasesApproval Date
ECULIZUMAB
Complement Inhibitor [EPC]
SOLIRIS
intravenous
Mar 16, 2007
ASFOTASE ALFA
Tissue-nonspecific Alkaline Phosphatase [EPC]
STRENSIQ
subcutaneous
—Oct 23, 2015
RAVULIZUMAB
Complement Inhibitor [EPC]
Ultomiris
intravenous
Dec 21, 2018
DANICOPAN
Complement Factor D Inhibitor [EPC]
Voydeya
oral
Mar 29, 2024

Alexion Pharmaceuticals Trial Locations

Alexion Pharmaceuticals clinical trials are running at 1,369 sites in 37 countries. Click any country to drill down by state, city, and individual research facility. Proximity to a trial site is one of the most important factors in deciding whether to participate.

United States
282▼
China
131▼
France
112▼
Italy
102▼
Japan
97▼
Spain
78▼
South Korea
61▼
Germany
56▼
United Kingdom
48▼
Brazil
47▼
Canada
41▼
Australia
37▼

Rare Disease Focus Areas (30)

Diseases targeted by Alexion Pharmaceuticals's clinical trial and drug development programs

AcromegalyEndocrine & Hormonal

Acromegaly is a rare hormonal disorder caused by excessive growth hormone production, typically from a pituitary adenoma, resulting in abnormal growth of hands, feet, and facial features. It also caus...

Prevalence: Approximately 50-130 cases per million people; estimated 25,000-30,000 people in the United States with about 3,000 new cases diagnosed per year
Amyotrophic Lateral SclerosisNeurological & Neuromuscular

Amyotrophic lateral sclerosis is a progressive neurodegenerative disease destroying motor neurons in the brain and spinal cord. This causes progressive weakness and paralysis of voluntary muscles whil...

Prevalence: About 5,000 new cases per year in the U.S.; approximately 16,000 Americans living with ALS at any given time
ATTR Amyloidosis (Transthyretin Amyloidosis)Metabolic & Lysosomal

ATTR amyloidosis is a rare progressive disease where abnormal transthyretin protein accumulates as amyloid deposits in the heart, nerves, and other organs. It can be inherited (hereditary ATTR) or dev...

Prevalence: Approximately 5,000 to 7,000 new cases diagnosed annually in the U.S.
Atypical Hemolytic Uremic SyndromeKidney & Renal

Atypical Hemolytic Uremic Syndrome (aHUS) is a rare kidney disease caused by uncontrolled activation of the complement system, a part of the immune system that normally helps fight infection. This act...

Prevalence: Approximately 1-2 cases per million people per year; rare form of HUS accounting for 5-10% of all HUS cases
Bullous PemphigoidDermatologic

Bullous pemphigoid is an autoimmune blistering disorder caused by autoantibodies against basement membrane proteins, particularly BP180 and BP230. The condition leads to formation of large fluid-fille...

Prevalence: Approximately 2-23 per million people per year; incidence increases sharply with age
C3 GlomerulopathyKidney & Renal

C3 glomerulopathy is a group of rare kidney diseases caused by dysregulation of the alternative complement pathway, leading to uncontrolled C3 deposition in the glomeruli. The two subtypes, C3 glomeru...

Prevalence: 1 to 2 new cases per million per year; approximately 5,000 to 10,000 affected individuals in the U.S.

Patient Resources

Organizations and resources related to Alexion Pharmaceuticals's rare disease focus areas

Frequently Asked Questions About Alexion Pharmaceuticals

Common questions about Alexion Pharmaceuticals's rare disease programs, clinical trials, and treatments.