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All 20 Stargardt Disease trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- A Study to Learn How Stargardt-type Eye Conditions Progress in Children and AdultsMost sites in California, Florida and PennsylvaniaRecruitingAges 6+Astellas Pharma Global Development15US sites
12 states - An Observational Study in Subjects to Follow the Progression of Stargardt Disease Type 1 (STGD1) Caused by Bi-Allelic Autosomal Recessive Mutations in the ABCA4 GeneMost sites in Florida, New York and CaliforniaRecruitingAges 12-65Splice Bio14US sites
12 states - Study of ALK-001 on the Progression of Stargardt DiseaseMost sites in Pennsylvania, Texas and VirginiaRecruitingPhase 3Ages 8-45Alkeus Pharmaceuticals14US sites
9 states - A Study of AAVB-039 in Participants With Stargardt Disease (STGD1)Most sites in California, Texas and ArizonaRecruitingPhase 1/2Ages 8-55AAVantgarde Bio Srl8US sites
6 states - Prescreening Study to Identify Potential Stargardt Participants for ACDN-01 Clinical Trials (STARPATH)Most sites in Massachusetts, Texas and FloridaRecruitingAges 5+Ascidian Therapeutics7US sites
5 states - A Phase 1/2, First-in-Human Dose Escalation/Expansion Study to Evaluate the Safety, Tolerability and Preliminary Efficacy of a Subretinal Injection of SB-007 in Subjects With Stargardt Disease (STGD1)Most sites in Colorado, Florida and MassachusettsRecruitingPhase 1/2Ages 12-65Splice Bio5US sites
5 states - A Study About the Safety of a Single ASP2020 Eye Injection and if it Helps People With Vision Loss From Stargardt-type Eye ConditionsMost sites in Arizona, Mississippi and OhioRecruitingPhase 1Ages 6+Astellas Institute for Regenerative Medicine4US sites
4 states - Phase 1 Study of C.001 in Retinal DegenerationOnly in CaliforniaRecruitingPhase 1Ages 18+Cellio Therapeutics3US sites
- Phase 1/2 Open-Label Dose-Escalation Study to Evaluate Safety of a Single Intravitreal Injection of RTx-021 in Patients With Stargardt DiseaseMost sites in California, Pennsylvania and TexasRecruitingPhase 1/2Ages 16+Ray Therapeutics3US sites
3 states - A Prospective Observational Study to Assess the Reliability and Validity of the MLSDTOnly in TexasRecruitingAges 18+Nanoscope Therapeutics1US site
- Development and Evaluation of Functional Visual Field and Navigation Endpoints in Moderate to Profound Inherited Retinal Disease (DEFINE-IRD)Only in CaliforniaRecruitingAges 18+Ray Therapeutics1US site
- Inherited Retinal Degenerative Disease RegistryOnly in MarylandRecruitingFoundation Fighting Blindness1US site
- Observational Study to Assess Endpoint Operational Feasibility & Measurement Properties in Patients with Retinal DegenerationOnly in CaliforniaRecruitingAges 18+Ray Therapeutics1US site
- Rod and Cone Mediated Function in Retinal DiseaseOnly in MarylandRecruitingAges 5-100National Eye Institute (NEI)1US site
- The Effects of Disulfiram (Antabuse®) on Visual Acuity in Patients With Retinal DegenerationOnly in New YorkRecruitingPhase 1Ages 18+University of Rochester1US site
- A Phase 1, First-in-Human Study of CITY-RBP4 in Healthy Volunteers and STGD1 ParticipantsRecruitingPhase 1Ages 12-45City TherapeuticsNo US site yet
- A Study of DC6001 Tablet in Healthy Chinese Adult SubjectsRecruitingPhase 1Ages 18-55Heronova PharmaceuticalsNo US site yet
- An Clinical Study Evaluating the Safety, Tolerability, and efficAcy of HG005 in StaRgardT DiseaseRecruitingEarly Phase 1Ages 6-17HuidaGene Therapeutics Co.No US site yet
- Restoration of Central Vision With PRIMA in Patients With Photoreceptor DegenerationRecruitingAges 18+ScienceNo US site yet
- Safety and Preliminary Efficacy of VG801 in Patients With ABCA4 Mutation-associated Retinal Dystrophy (Stargardt Disease)RecruitingPhase 1/2Ages 6+VeonGen TherapeuticsNo US site yet
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Who runs the Stargardt Disease trials in the US, and what stage they are in
Of the 15 Stargardt Disease trials with a US site, 1 is in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 6 of them. The remaining 8 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 12 of them, and universities, hospitals, foundations and government groups run 3. The sponsors with the most are Ray Therapeutics (3) and Splice Bio (2). The most recently listed one first appeared on ClinicalTrials.gov on July 29, 2026.
Stargardt Disease trials in the US, state by state
Of the 15 Stargardt Disease trials with a US site, 10 accept children under 18. Their open sites are in 20 states, most often Texas, Florida and Arizona. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 10 states
US hospitals running the most Stargardt Disease trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Stargardt Disease.
- Retina Foundation of the SouthwestDallas, Texas5 trials
- Associated Retina ConsultantsPhoenix, Arizona4 trials
- Cincinnati Eye InstituteCincinnati, Ohio3 trials
- Vitreo Retinal AssociatesGainesville, Florida3 trials
- Bascom Palmer Eye InstituteMiami, Florida2 trials
- Deep Blue RetinaSouthaven, Mississippi2 trials
- Duke Eye CenterDurham, North Carolina2 trials
- Massachusetts Eye and Ear InfirmaryBoston, Massachusetts2 trials
- Oregon Health & Science UniversityPortland, Oregon2 trials
- UPMC Vision InstitutePittsburgh, Pennsylvania2 trials
Help getting to a Stargardt Disease trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Stargardt Disease trial near you
Are there Stargardt Disease clinical trials near me?
As of November 13, 2026, 20 Stargardt Disease clinical trials are recruiting now and 3 are not yet recruiting. In the US, 15 of them have at least 1 open site, across 20 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Stargardt Disease clinical trial sites?
Recruiting Stargardt Disease trials list open sites in 20 states. Texas, California and Florida have the most, and the table on this page lists every state.
Are there Stargardt Disease trials for children near me?
Of the 15 Stargardt Disease trials with a US site, 10 accept children under 18. Their open sites are in 20 states, most often Texas, Florida and Arizona. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Stargardt Disease clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Stargardt Disease trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Stargardt Disease trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.