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All 42 Retinitis Pigmentosa trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Universal Rare Gene Study: A Registry and Natural History Study of Retinal Dystrophies Associated With Rare Disease-Causing Genetic VariantsMost sites in California, Florida and PennsylvaniaRecruitingAges 4+Jaeb Center for Health Research19US sites
14 states - Study to Evaluate the Efficacy of a Single Intravitreal Injection of RTx-015 in Participants With Retinitis Pigmentosa (PERCEPT)Most sites in California, Arizona and FloridaRecruitingPhase 2/3Ages 18+Ray Therapeutics14US sites
12 states - A Study to Investigate the Safety of OpCT-001 in Adults Who Have Primary Photoreceptor Disease (CLARICO)Most sites in California, Florida and PennsylvaniaRecruitingPhase 1/2Ages 18+BlueRock Therapeutics5US sites
5 states - A Phase 1/2 Study in Healthy Volunteers and Participants With Autosomal Dominant Retinitis Pigmentosa (RHO-adRP)Most sites in Oregon and TexasRecruitingPhase 1/2Ages 18+Octant2US sites
2 states - A Study to Investigate the Safety of DSP-3077 After a Unilateral Eye Injection in Male and Female Participants 18 Years of Age or Older With Retinitis PigmentosaMost sites in Massachusetts and MinnesotaRecruitingPhase 1/2Ages 18+Sumitomo Pharma America2US sites
2 states - Adaptive Optics Imaging of Outer Retinal DiseasesOnly in MarylandRecruitingAges 21+Food and Drug Administration (FDA)2US sites
- A 24-Month Trial of NPI-001 for the Preservation of Photoreceptors in Retinitis Pigmentosa Associated With Usher SyndromeOnly in TexasRecruitingPhase 3Ages 18+Nacuity Pharmaceuticals1US site
- A Natural History Study Seeks to Understand the Clinical, Genomic, Pharmacological, Laboratory, and Dietary Determinates of Pyrimidine and Purine Metabolism DisordersOnly in MarylandRecruitingAges 1 Month-100National Human Genome Research Institute (NHGRI)1US site
- BS01 in Patients With Retinitis PigmentosaOnly in New JerseyRecruitingPhase 1/2Ages 18+Bionic Sight1US site
- Cell Collection to Study Eye DiseasesOnly in MarylandRecruitingAges 1 Day-120National Eye Institute (NEI)1US site
- Development and Evaluation of Functional Visual Field and Navigation Endpoints in Moderate to Profound Inherited Retinal Disease (DEFINE-IRD)Only in CaliforniaRecruitingAges 18+Ray Therapeutics1US site
- Experimental and Clinical Studies of Retinal StimulationOnly in MichiganRecruitingAges 25-89University of Michigan1US site
- High Resolution Retinal ImagingOnly in PennsylvaniaRecruitingAges 7+University of Pennsylvania1US site
- Inherited Retinal Degenerative Disease RegistryOnly in MarylandRecruitingFoundation Fighting Blindness1US site
- Observational Study to Assess Endpoint Operational Feasibility & Measurement Properties in Patients with Retinal DegenerationOnly in CaliforniaRecruitingAges 18+Ray Therapeutics1US site
- Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at SanfordOnly in South DakotaRecruitingSanford Health1US site
- Retinal Imaging in Patients With Inherited Retinal DegenerationsOnly in CaliforniaRecruitingAges 13+University of California, San Francisco1US site
- Rod and Cone Mediated Function in Retinal DiseaseOnly in MarylandRecruitingAges 5-100National Eye Institute (NEI)1US site
- Safety of Cultured Allogeneic Adult Umbilical Cord or Placental Derived Mesenchymal Stem Cell Exosomes for NAIONOnly in FloridaRecruitingPhase 1The Foundation for Orthopaedics and Regenerative Medicine1US site
- Study of BEST1 Vitelliform Macular DystrophyOnly in New YorkRecruitingColumbia University1US site
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Who runs the Retinitis Pigmentosa trials in the US, and what stage they are in
Of the 21 Retinitis Pigmentosa trials with a US site, 2 are in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 6 of them. The remaining 13 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 8 of them, and universities, hospitals, foundations and government groups run 13. The sponsors with the most are Ray Therapeutics (3) and National Eye Institute (NEI) (2). The most recently listed one first appeared on ClinicalTrials.gov on October 28, 2026.
Retinitis Pigmentosa trials in the US, state by state
Of the 21 Retinitis Pigmentosa trials with a US site, 10 accept children under 18. Their open sites are in 16 states, most often Maryland, California and Florida. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 11 states
US hospitals running the most Retinitis Pigmentosa trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Retinitis Pigmentosa.
- Retina Foundation of the SouthwestDallas, Texas4 trials
- National Institutes of Health Clinical CenterBethesda, Maryland3 trials
- University of Miami, Bascom Palmer Eye InstituteMiami, Florida2 trials
- Vision Research and Assessment InstituteIrvine, California2 trials
- Baylor College of Medicine, Alkek Eye CenterHouston, Texas1 trial
- Casey Eye InstitutePortland, Oregon1 trial
- Columbia University Irving Medical CenterNew York, New York1 trial
- Department of Ophthalmology Retinal Degenerations Clinic, UCSFSan Francisco, California1 trial
- Duke University, Duke Eye CenterDurham, North Carolina1 trial
- Emory University, Emory Eye CenterAtlanta, Georgia1 trial
Help getting to a Retinitis Pigmentosa trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Retinitis Pigmentosa trial near you
Are there Retinitis Pigmentosa clinical trials near me?
As of November 13, 2026, 42 Retinitis Pigmentosa clinical trials are recruiting now and 15 are not yet recruiting. In the US, 21 of them have at least 1 open site, across 21 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Retinitis Pigmentosa clinical trial sites?
Recruiting Retinitis Pigmentosa trials list open sites in 21 states. California, Maryland and Texas have the most, and the table on this page lists every state.
Are there Retinitis Pigmentosa trials for children near me?
Of the 21 Retinitis Pigmentosa trials with a US site, 10 accept children under 18. Their open sites are in 16 states, most often Maryland, California and Florida. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Retinitis Pigmentosa clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Retinitis Pigmentosa trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Retinitis Pigmentosa trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Retinitis Pigmentosa: Luxturna (voretigene neparvovec-rzyl).
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.