Also on Trial Friend:Prader-Willi Syndrome pageMatch Me
All 13 Prader-Willi Syndrome trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- A Study of Pitolisant in Patients With Prader-Willi SyndromeMost sites in California, Maryland and New YorkRecruitingPhase 3Ages 6+Harmony Biosciences Management19US sites
13 states - Tirzepatide in PWS, HO and GNSOMost sites in Minnesota, Tennessee and WashingtonRecruitingPhase 4Ages 18-26Grace Kim3US sites
3 states - Physical Activity and Community EmPOWERment ProjectMost sites in Arkansas and North CarolinaRecruitingAges 18+University of North Carolina, Chapel Hill2US sites
2 states - A Study of CSTI-500 in Patients With Prader-Willi SyndromeOnly in TennesseeRecruitingPhase 2Ages 13-50ConSynance Therapeutics1US site
- Cerebellar TMS and Satiety in Prader-Willi SyndromeOnly in MassachusettsRecruitingAges 18-64Brigham and Women's Hospital1US site
- Regulating Together for Prader-Willi Syndrome: A Group Behavioral Therapy for Emotion DysregulationOnly in MissouriRecruitingAges 13-17Children's Mercy Hospital Kansas City1US site
- Autistic Symptomatology and Sensory Profile in Children With Prader-Willi SyndromeRecruitingAges 3-16University Hospital, ToulouseNo US site yet
- Effects of Transcutaneous Vagus Nerve Stimulation on Emotion Regulation and Executive Functioning in Prader-Willi SyndromeRecruitingAges 18+University of BordeauxNo US site yet
- GROWing Up With Rare GENEtic SyndromesRecruitingAges 18+dr. Laura C. G. de Graaff-HerderNo US site yet
- IDMet (RaDiCo Cohort) (RaDiCo-IDMet)RecruitingInstitut National de la Santé Et de la Recherche Médicale, FranceNo US site yet
- Institutional Registry of Rare DiseasesRecruitingHospital Italiano de Buenos AiresNo US site yet
- Register of Patients With Prader-Willi SyndromeRecruitingUniversity Hospital, ToulouseNo US site yet
- The Intervention of Obesity in Children With Prader-Willi Syndrome Using Prebiotics and ProbioticsRecruitingAges 3-10Children's Hospital of Fudan UniversityNo US site yet
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Who runs the Prader-Willi Syndrome trials in the US, and what stage they are in
Of the 6 Prader-Willi Syndrome trials with a US site, 1 is in Phase 3, the last stage before a company can ask the FDA for approval. One more is an earlier Phase 1 or 2 test of safety and dosing. One is a Phase 4 study of an already approved treatment. The remaining 3 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 2 of them, and universities, hospitals, foundations and government groups run 4. The most recently listed one first appeared on ClinicalTrials.gov on May 26, 2026.
Prader-Willi Syndrome trials in the US, state by state
Of the 6 Prader-Willi Syndrome trials with a US site, 3 accept children under 18. Their open sites are in 15 states, most often California, Colorado and Delaware. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 8 states
US hospitals running the most Prader-Willi Syndrome trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Prader-Willi Syndrome.
- Vanderbilt University Medical CenterNashville, Tennessee2 trials
- Ann And Robert H Lurie Children's Hospital of ChicagoChicago, Illinois1 trial
- Center for Human GeneticsCleveland, Ohio1 trial
- Center of Excellence in Diabetes and EndocrinologySacramento, California1 trial
- Children's MercyKansas City, Missouri1 trial
- Children's MinnesotaSaint Paul, Minnesota1 trial
- Childrens Hospital of WisconsinMilwaukee, Wisconsin1 trial
- Colorado Children's HospitalAurora, Colorado1 trial
- Emory University School of MedicineAtlanta, Georgia1 trial
- Johns Hopkins HospitalBaltimore, Maryland1 trial
Help getting to a Prader-Willi Syndrome trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Prader-Willi Syndrome trial near you
Are there Prader-Willi Syndrome clinical trials near me?
As of November 13, 2026, 13 Prader-Willi Syndrome clinical trials are recruiting now and 2 are not yet recruiting. In the US, 6 of them have at least 1 open site, across 18 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Prader-Willi Syndrome clinical trial sites?
Recruiting Prader-Willi Syndrome trials list open sites in 18 states. Minnesota, North Carolina and Tennessee have the most, and the table on this page lists every state.
Are there Prader-Willi Syndrome trials for children near me?
Of the 6 Prader-Willi Syndrome trials with a US site, 3 accept children under 18. Their open sites are in 15 states, most often California, Colorado and Delaware. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Prader-Willi Syndrome clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Prader-Willi Syndrome trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Prader-Willi Syndrome trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Prader-Willi Syndrome: Vykat XR (diazoxide choline), Genotropin (somatropin).
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.