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All 9 Lymphangioleiomyomatosis trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- TSC Biosample Repository and Natural History DatabaseMost sites in Texas, California and MassachusettsRecruitingNational Tuberous Sclerosis Association23US sites
16 states - Safety and Durability of Sirolimus for Treatment of LAMMost sites in California, Colorado and FloridaRecruitingAges 18+University of Cincinnati8US sites
8 states - Evaluating the Long-term Safety and Tolerability of Imatinib in Patients With Lymphangioleiomyomatosis (LAM)Most sites in New York and South CarolinaRecruitingPhase 1Ages 18-64Columbia University2US sites
2 states - Nebulized or Inhaled Albuterol for LymphangioleiomyomatosisOnly in MarylandRecruitingPhase 1/2Ages 18-100National Heart, Lung, and Blood Institute (NHLBI)1US site
- Study of the Disease Process of LymphangioleiomyomatosisOnly in MarylandRecruitingAges 16-100National Heart, Lung, and Blood Institute (NHLBI)1US site
- Tuberous Sclerosis Complex and Lymphangioleiomyomatosis Pregnancy Registry (TSC-LAM Registry)Only in OhioRecruitingDavid M. Ritter1US site
- National Lymphangioleiomyomatosis Registry, FranceRecruitingAges 18+Vincent COTTINNo US site yet
- Role of Extracellular Vesicles as Biomarkers of Pulmonary Involvement in Patients With Lymphangioleiomyomatosis and Tuberous Sclerosis ComplexRecruitingAges 18-80University of MilanNo US site yet
- The Genotype and Phenotype of LymphangioleiomyomatosisRecruitingAges 18+National Taiwan University HospitalNo US site yet
New trials, status changes and new sites, straight from ClinicalTrials.gov. Unsubscribe anytime.
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Who runs the Lymphangioleiomyomatosis trials in the US, and what stage they are in
None of the 6 Lymphangioleiomyomatosis trials with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 2 of them. The remaining 4 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Universities, hospitals, foundations and government groups run all of them, with no company leading one. National Heart, Lung, and Blood Institute (NHLBI) runs the most, with 2. The most recently listed one first appeared on ClinicalTrials.gov on March 21, 2025.
Lymphangioleiomyomatosis trials in the US, state by state
Of the 6 Lymphangioleiomyomatosis trials with a US site, 3 accept children under 18. Their open sites are in 16 states, most often Maryland, Ohio and Alabama. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 9 states
US hospitals running the most Lymphangioleiomyomatosis trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Lymphangioleiomyomatosis.
- Cincinnati Children's Hospital Medical CenterCincinnati, Ohio2 trials
- National Institutes of Health Clinical CenterBethesda, Maryland2 trials
- University of Rochester Medical CenterRochester, New York2 trials
- Boston Children's HospitalBoston, Massachusetts1 trial
- Brigham and Women's HospitalBoston, Massachusetts1 trial
- Chicago Comer Children's Hospital Neurogenetic Clinic, University of ChicagoChicago, Illinois1 trial
- Children's Mercy Research InstituteKansas City, Missouri1 trial
- Children's National Medical CenterFairfax, Virginia1 trial
- Cleveland Clinic FoundationCleveland, Ohio1 trial
- Columbia University Irving Medical CenterNew York, New York1 trial
Help getting to a Lymphangioleiomyomatosis trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Lymphangioleiomyomatosis trial near you
Are there Lymphangioleiomyomatosis clinical trials near me?
As of November 13, 2026, 9 Lymphangioleiomyomatosis clinical trials are recruiting. In the US, 6 of them have at least 1 open site, across 19 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Lymphangioleiomyomatosis clinical trial sites?
Recruiting Lymphangioleiomyomatosis trials list open sites in 19 states. Maryland, New York and California have the most, and the table on this page lists every state.
Are there Lymphangioleiomyomatosis trials for children near me?
Of the 6 Lymphangioleiomyomatosis trials with a US site, 3 accept children under 18. Their open sites are in 16 states, most often Maryland, Ohio and Alabama. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Lymphangioleiomyomatosis clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Lymphangioleiomyomatosis trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Lymphangioleiomyomatosis trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Lymphangioleiomyomatosis: Sirolimus.
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.