Passage Bio

Passage Bio works on 2 rare diseases tracked on Trial Friend, including Cerebral Adrenoleukodystrophy, Waldenström Macroglobulinemia, with 2 recruiting clinical trials.

Passage Bio is a gene therapy company focused on AAV-delivered therapeutics for rare central nervous system diseases. The company's lead active program is PBFT02 for frontotemporal dementia with GRN mutations. In August 2024, Passage Bio out-licensed its pediatric programs PBGM01 (GM1 gangliosidosis) and PBKR03 (Krabbe disease) to GEMMA Biotherapeutics.

Type
Rare Disease Specialist
Headquarters
Philadelphia, United States
Founded
2019
2
Active Rare Disease Trials
2
Rare Diseases in Portfolio
7
Years Active

Focus areas at Passage Bio

As a rare disease specialist, Passage Bio has active clinical trial programs and drug development efforts across 2 rare diseases, including Cerebral Adrenoleukodystrophy, Waldenström Macroglobulinemia. These programs may span orphan drug designation, novel therapeutic mechanisms, and precision medicine approaches targeting the underlying causes of each disease.

The clinical trials section below shows all active and recruiting studies sponsored by Passage Bio, sourced live from ClinicalTrials.gov. Each trial includes its current recruitment status, study phase (Phase 1 through Phase 4), conditions under investigation, and the number of active trial sites. The FDA-approved drugs section lists treatments that have received U.S. Food and Drug Administration approval, with brand names, generic names, approval dates, and matched rare disease indications from the openFDA database.

Passage Bio is headquartered in Philadelphia, United States, founded in 2019. The company dedicates its research and development resources exclusively to rare and orphan diseases, working to bring innovative treatments to patients with conditions that have historically had limited or no treatment options.

Passage Bio Drug Pipeline

Passage Bio has 2 active clinical trials across 2 development stages, with 2 currently recruiting participants. Clinical trials advance through phases: Phase 1 tests safety in a small group, Phase 2 evaluates effectiveness and side effects, Phase 3 confirms benefit in a larger population, and Phase 4 monitors long-term safety after FDA approval.

Note: This pipeline includes all of Passage Bio's active interventional trials, not only those targeting rare diseases. We show the full pipeline because a company's broader research activity, therapeutic expertise, and development infrastructure directly shape its ability to advance rare disease programs. A strong overall pipeline often signals deeper clinical operations, faster enrollment capabilities, and greater commitment to bringing new treatments to patients.

Understand Passage Bio's pipeline
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1
Phase 21 trial
Frontotemporal Dementia+4 more
Recruiting
1
Other1 trial
Leukodystrophy+4 more
Recruiting

Passage Bio Clinical Trials (2)

Active and recruiting clinical trials sponsored by Passage Bio, sourced live from ClinicalTrials.gov. Each trial card shows the study phase, current recruitment status, conditions under investigation, study locations, eligibility criteria, and a direct link to the full ClinicalTrials.gov record. You can also download a one-page PDF summary to share with your doctor.

Note: Recruitment statuses on ClinicalTrials.gov may not immediately reflect recent FDA decisions, sponsor announcements, or enrollment changes. Always confirm a trial's current status directly with the study coordinator.

Ask about Passage Bio's trials
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ACTIVE NOT RECRUITINGPHASE1, PHASE2Updated a few months agoNCT04747431

A Study of PBFT02 in Participants With FTD and Mutations in the Granulin Precursor (GRN) or C9ORF72 Genes

Intervention: PBFT02

Frontotemporal DementiaFTDFTD-GRNDementia FrontotemporalC9orf72

PBFT02 is a gene therapy for frontotemporal dementia intended to deliver a functional copy of the GRN gene to the brain. This study will assess the safety, tolerability and efficacy of this treatment in patients with frontotemporal dementia and mutations in the granulin precursor (GRN) or chromosome 9 open reading frame 72 (C9ORF72) genes

Ages 35 Years - 75 Years10 locations
View full study
RECRUITINGNo updates in a whileNCT03047369

The Myelin Disorders Biorepository Project

LeukodystrophyWhite Matter DiseaseLeukoencephalopathies4H SyndromeAdrenoleukodystrophy

The Myelin Disorders Biorepository Project (MDBP) seeks to collect and analyze clinical data and biological samples from leukodystrophy patients worldwide to support ongoing and future research projects. The MDBP is one of the world's largest leukodystrophy biorepositories, having enrolled nearly 2,000 affected individuals since it was launched over a decade ago. Researchers working in the biorepository hope to use these materials to uncover new genetic etiologies for various leukodystrophies, develop biomarkers for use in future clinical trials, and better understand the natural history of these disorders. The knowledge gained from these efforts may help improve the diagnostic tools and treatment options available to patients in the future.

Ages not specified23 locations
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FDA-Approved Drugs

No FDA-approved drugs found for this company at this time.

Passage Bio Trial Locations

Passage Bio clinical trials are running at 33 sites in 5 countries. Click any country to drill down by state, city, and individual research facility. Proximity to a trial site is one of the most important factors in deciding whether to participate.

United States
27▼
Brazil
2▼
Canada
2▼
Australia
1▼
Portugal
1▼

Rare Disease Focus Areas (2)

Diseases targeted by Passage Bio's clinical trial and drug development programs

Patient Resources

Organizations and resources related to Passage Bio's rare disease focus areas

Frequently Asked Questions About Passage Bio

Common questions about Passage Bio's rare disease programs, clinical trials, and treatments.