Also on Trial Friend:Noonan Syndrome pageMatch Me
All 13 Noonan Syndrome trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Trial Investigating the Efficacy and Safety of Weekly Lonapegsomatropin Compared to Daily Somatropin in Children and Adolescents With Short Stature or Growth Failure Due to Growth Hormone Sufficient DisordersMost sites in Texas, California and ColoradoRecruitingPhase 3Ages 2-17Ascendis Pharma A/S27US sites
20 states - Clinical, Genetic, and Epidemiologic Study of Children and Adults With RASopathiesOnly in MarylandRecruitingAges 1 Month-99National Cancer Institute (NCI)2US sites
- Acceptance and Commitment Therapy for Caregivers of Children With a RASopathy: An Internal Pilot Feasibility Study and Follow-up Randomized Controlled TrialOnly in MarylandRecruitingAges 18+National Cancer Institute (NCI)1US site
- Familial Investigations of Childhood Cancer PredispositionOnly in TennesseeRecruitingSt. Jude Children's Research Hospital1US site
- RASopathy BiorepositoryOnly in OhioRecruitingChildren's Hospital Medical Center, Cincinnati1US site
- Constitution of a Biological Collection to Study the Pathophysiology in Noonan SyndromeRecruitingAges 18-99University Hospital, ToulouseNo US site yet
- Development of Non-Invasive Prenatal Diagnosis for Single Gene DisordersRecruitingAges 18+Assistance Publique - Hôpitaux de ParisNo US site yet
- GROWing Up With Rare GENEtic SyndromesRecruitingAges 18+dr. Laura C. G. de Graaff-HerderNo US site yet
- MEK Inhibitors for the Treatment of Hypertrophic Cardiomyopathy in Patients With RASopathiesRecruitingPhase 2Ages 1 Day-18Medical University of WarsawNo US site yet
- National Multicentre Study on Lipid Profile in Noonan Syndrome and Related Disorders: Trends by Age, Gender and GenotypeRecruitingAges 2-35IRCCS Azienda Ospedaliero-Universitaria di BolognaNo US site yet
- Neuroradiological Features of Noonan Syndrome and Genotype-Phenotype CorrelationsRecruitingIstituto Giannina GasliniNo US site yet
- Precision Diagnosis and Risk Stratification of Rare Cardiomyopathies Based on Novel Cardiac Magnetic Resonance TechniquesRecruitingChinese Academy of Medical Sciences, Fuwai HospitalNo US site yet
- Registro Nazionale Sindrome Noonan / National Registry of Noonan SyndromeRecruitingIstituto Giannina GasliniNo US site yet
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Who runs the Noonan Syndrome trials in the US, and what stage they are in
Of the 5 Noonan Syndrome trials with a US site, 1 is in Phase 3, the last stage before a company can ask the FDA for approval. The remaining 4 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 1 of them, and universities, hospitals, foundations and government groups run 4. National Cancer Institute (NCI) runs the most, with 2. The most recently listed one first appeared on ClinicalTrials.gov on October 28, 2025.
Noonan Syndrome trials in the US, state by state
Of the 5 Noonan Syndrome trials with a US site, 4 accept children under 18. Their open sites are in 21 states and Washington, DC, most often Ohio, Arizona and California. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 12 states
US hospitals running the most Noonan Syndrome trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Noonan Syndrome.
- Cincinnati Children's Hospital Medical CenterCincinnati, Ohio1 trial
- National Cancer Institute - Shady GroveRockville, Maryland1 trial
- National Cancer Institute (NCI)Bethesda, Maryland1 trial
- National Institutes of Health Clinical CenterBethesda, Maryland1 trial
- St. Jude Children's Research HospitalMemphis, Tennessee1 trial
Help getting to a Noonan Syndrome trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Noonan Syndrome trial near you
Are there Noonan Syndrome clinical trials near me?
As of November 13, 2026, 13 Noonan Syndrome clinical trials are recruiting now and 2 are not yet recruiting. In the US, 5 of them have at least 1 open site, across 21 states and Washington, DC. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Noonan Syndrome clinical trial sites?
Recruiting Noonan Syndrome trials list open sites in 21 states and Washington, DC. Maryland, Ohio and Arizona have the most, and the table on this page lists every state.
Are there Noonan Syndrome trials for children near me?
Of the 5 Noonan Syndrome trials with a US site, 4 accept children under 18. Their open sites are in 21 states and Washington, DC, most often Ohio, Arizona and California. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Noonan Syndrome clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Noonan Syndrome trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Noonan Syndrome trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Noonan Syndrome: Norditropin (somatropin), Sogroya (somapacitan-beco).
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.