Also on Trial Friend:22q11.2 Deletion Syndrome pageMatch Me
All 8 22q11.2 Deletion Syndrome trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- The ADVANCE (Assay Development and Validation for Pre-Natal and Obstetric Conditions) Study is the Largest U.S.-Based Prospective Study Demonstrating a Circulating Fetal Cell (CFC) Based Approach to Non-invasive Fetal Risk AssessmentMost sites in California, Texas and ArizonaRecruitingBillionToOne9US sites
7 states - Congenital Athymia Patient RegistryOnly in North CarolinaRecruitingAges 0-21Sumitomo Pharma Switzerland1US site
- Examining Genetic Factors That Affect the Severity of 22q11.2 Deletion SyndromeOnly in New YorkRecruitingAlbert Einstein College of Medicine1US site
- Hematopoietic Stem Cell Transplantation (HSCT) for Common Variable Immunodeficiency (CVID) and Other Autoimmune Manifestations of Primary Immune Regulatory Disorders (PIRD)Only in PennsylvaniaRecruitingPhase 2Ages 5-40Paul Szabolcs1US site
- Intensive Multimodal Neurorehabilitation Targeting Neuroplasticity in Pediatric Neurodevelopmental and Chromosomal DisordersOnly in TexasRecruitingAges 4-12Healing Hope International1US site
- Early Scoliotic Changes in Children at Increased Risk for Scoliosis DevelopmentRecruitingAges 8-11UMC UtrechtNo US site yet
- The Psychiatric and Cognitive Phenotypes in Velocardiofacial SyndromeRecruitingPhase 4The Chaim Sheba Medical CenterNo US site yet
- Understanding of Psychotic Disorders in Children With 22q11.2DSRecruitingAges 4-13Hôpital le VinatierNo US site yet
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Who runs the 22q11.2 Deletion Syndrome trials in the US, and what stage they are in
None of the 5 22q11.2 Deletion Syndrome trials with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. One more is an earlier Phase 1 or 2 test of safety and dosing. The remaining 4 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 2 of them, and universities, hospitals, foundations and government groups run 3. The most recently listed one first appeared on ClinicalTrials.gov on June 12, 2026.
22q11.2 Deletion Syndrome trials in the US, state by state
All 5 22q11.2 Deletion Syndrome trials with a US site accept children under 18. Their open sites are in 9 states, most often New York, Texas and Arizona. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
US hospitals running the most 22q11.2 Deletion Syndrome trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know 22q11.2 Deletion Syndrome.
- Ability and BeyondThe Woodlands, Texas1 trial
- Albert Einstein College of MedicineNew York, New York1 trial
- Brar PracticeRiverside, California1 trial
- Carnegie Imaging for WomenNew York, New York1 trial
- Duke University School of MedicineDurham, North Carolina1 trial
- Pediatrix Medical GroupHouston, Texas1 trial
- Pediatrix Medical Group of GeorgiaAtlanta, Georgia1 trial
- San Gabriel Valley Perinatal Medical GroupWest Covina, California1 trial
- Sarasota Memorial Health Care SystemSarasota, Florida1 trial
- UPMC Children's Hospital of PittsburghPittsburgh, Pennsylvania1 trial
Help getting to a 22q11.2 Deletion Syndrome trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a 22q11.2 Deletion Syndrome trial near you
Are there 22q11.2 Deletion Syndrome clinical trials near me?
As of November 13, 2026, 8 22q11.2 Deletion Syndrome clinical trials are recruiting. In the US, 5 of them have at least 1 open site, across 9 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have 22q11.2 Deletion Syndrome clinical trial sites?
Recruiting 22q11.2 Deletion Syndrome trials list open sites in Arizona, California, Florida, Georgia, Louisiana, New York, North Carolina, Pennsylvania and Texas.
Are there 22q11.2 Deletion Syndrome trials for children near me?
All 5 22q11.2 Deletion Syndrome trials with a US site accept children under 18. Their open sites are in 9 states, most often New York, Texas and Arizona. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a 22q11.2 Deletion Syndrome clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no 22q11.2 Deletion Syndrome trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a 22q11.2 Deletion Syndrome trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.