Also on Trial Friend:Hereditary Hemorrhagic Telangiectasia pageMatch Me
All 15 Hereditary Hemorrhagic Telangiectasia trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Comprehensive HHT Outcomes Registry of the United States (CHORUS)Most sites in California, Alabama and ColoradoRecruitingCure HHT16US sites
15 states - Harmony-HHT: ATV-1601 in Participants With Hereditary Hemorrhagic Telangiectasia (HHT)Most sites in Arizona, California and GeorgiaRecruitingPhase 1/2Ages 18+Atavistik Bio9US sites
9 states - A Trial to Assess the Efficacy and Safety of Engasertib in Participants With Moderate to Severe Hereditary Hemorrhagic Telangiectasia (HHT)Most sites in Florida, Illinois and IndianaRecruitingPhase 3Ages 18+Vaderis Therapeutics6US sites
6 states - Quality of Life in Pediatric Participants With HHTOnly in OhioRecruitingAges 2-25Ashley Nelson1US site
- Bevacizumab in the Treatment of HHTRecruitingPhase 2Ages 18-75Second Affiliated Hospital, Zhejiang University, School of MedicineNo US site yet
- Body Donation in HHTRecruitingAges 18+University Hospital, EssenNo US site yet
- Case Notes Review on Patients With Hereditary Haemorrhagic TelangiectasiaRecruitingImperial College LondonNo US site yet
- DIAG723 in Adults With Hereditary Hemorrhagic TelangiectasiaRecruitingPhase 1/2Ages 18+Diagonal TherapeuticsNo US site yet
- Efficacy of Nintedanib for Treatment of Epistaxis in Hereditary Hemorrhagic Telangiectasia (HHT) PatientsRecruitingPhase 2Ages 18+Dr. Romain LazorNo US site yet
- Immunological Effects of Iron Supplementation in HHT DiseaseRecruitingAges 18-99Hospices Civils de LyonNo US site yet
- Influence of Hypoxic Induced Factors in Patients With Hereditary Hemorrhagic TelangiectasiaRecruitingAges 18+University Hospital, EssenNo US site yet
- Institutional Registry of Rare DiseasesRecruitingHospital Italiano de Buenos AiresNo US site yet
- Molecular Studies on Hereditary Haemorrhagic Telangiectasia FamiliesRecruitingImperial College LondonNo US site yet
- Non-Invasive Detection of Pulmonary Right-to-Left Shunts Using the SONAS Ultrasound DeviceRecruitingAges 18+St. Antonius HospitalNo US site yet
- Prospective Study of Antiplatelet and Anticoagulation Therapy in Hereditary Haemorrhagic TelangiectasiaRecruitingAges 18+University Hospital, Clermont-FerrandNo US site yet
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Who runs the Hereditary Hemorrhagic Telangiectasia trials in the US, and what stage they are in
Of the 5 Hereditary Hemorrhagic Telangiectasia trials with a US site, 1 is in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 2 of them. The remaining 2 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 2 of them, and universities, hospitals, foundations and government groups run 3. The most recently listed one first appeared on ClinicalTrials.gov on August 4, 2026.
Hereditary Hemorrhagic Telangiectasia trials in the US, state by state
Of the 5 Hereditary Hemorrhagic Telangiectasia trials with a US site, 2 accept children under 18. Their open sites are in 15 states, most often Ohio, Alabama and California. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 9 states
US hospitals running the most Hereditary Hemorrhagic Telangiectasia trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Hereditary Hemorrhagic Telangiectasia.
- Mayo ClinicRochester, Minnesota3 trials
- Massachusetts General HospitalBoston, Massachusetts2 trials
- Washington University School of MedicineSt Louis, Missouri2 trials
- Arizona Pulmonary SpecialistsPhoenix, Arizona1 trial
- Augusta UniversityAugusta, Georgia1 trial
- Augusta University Medical CenterAugusta, Georgia1 trial
- Cincinnati Children's Hospital Medical CenterCincinnati, Ohio1 trial
- Columbia UniversityNew York, New York1 trial
- Columbia University Irving Medical CenterNew York, New York1 trial
- Innovative HematologyIndianapolis, Indiana1 trial
Help getting to a Hereditary Hemorrhagic Telangiectasia trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Hereditary Hemorrhagic Telangiectasia trial near you
Are there Hereditary Hemorrhagic Telangiectasia clinical trials near me?
As of November 13, 2026, 15 Hereditary Hemorrhagic Telangiectasia clinical trials are recruiting now and 4 are not yet recruiting. In the US, 5 of them have at least 1 open site, across 19 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Hereditary Hemorrhagic Telangiectasia clinical trial sites?
Recruiting Hereditary Hemorrhagic Telangiectasia trials list open sites in 19 states. Minnesota, Missouri and Utah have the most, and the table on this page lists every state.
Are there Hereditary Hemorrhagic Telangiectasia trials for children near me?
Of the 5 Hereditary Hemorrhagic Telangiectasia trials with a US site, 2 accept children under 18. Their open sites are in 15 states, most often Ohio, Alabama and California. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Hereditary Hemorrhagic Telangiectasia clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Hereditary Hemorrhagic Telangiectasia trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Hereditary Hemorrhagic Telangiectasia trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.
