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All 15 Congenital Adrenal Hyperplasia trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- A Study to Evaluate Atumelnant in Adults With Congenital Adrenal HyperplasiaMost sites in Minnesota, Pennsylvania and CaliforniaRecruitingPhase 3Ages 18-74Crinetics Pharmaceuticals15US sites
13 states - A Study in Pediatric Participants With Congenital Adrenal Hyperplasia (Balance-CAH)Most sites in California, Illinois and MassachusettsRecruitingPhase 2/3Ages 1-17Crinetics Pharmaceuticals11US sites
10 states - Safety, Tolerability, Pharmacokinetics and Pharmacodynamics of Crinecerfont in Participants With Classic Congenital Adrenal Hyperplasia (CAH) Who Are Less Than 4 Years OldMost sites in California, Colorado and ConnecticutRecruitingPhase 2Ages 3 Months-47 MonthsNeurocrine Switzerland11US sites
11 states - A Trial of Lu AG13909 in Participants With Congenital Adrenal HyperplasiaOnly in MichiganRecruitingPhase 1/2Ages 18-70H. Lundbeck A/S1US site
- Natural History Study of Patients With Excess AndrogenOnly in MarylandRecruitingAges 1 Day-99Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)1US site
- Adrenal Diseases in the Population of Modena: A Clinical-Epidemiological Database of Patients Referred to the Adrenal Disorders Outpatient Clinic of the Clinical Unit of Endocrinology at the Modena University Hospital (AOU Modena)RecruitingAges 18+Azienda Ospedaliero-Universitaria di ModenaNo US site yet
- An Extension Study to Evaluate Safety and Efficacy of Atumelnant in Participants With Congenital Adrenal HyperplasiaRecruitingPhase 2Ages 16-74Crinetics PharmaceuticalsNo US site yet
- Congenital Adrenal Hyperplasia Once Daily Hydrocortisone TreatmentRecruitingPhase 4Ages 18+Federico II UniversityNo US site yet
- Electronic Registry of Male Patients With Congenital Adrenal Hyperplasia 21-hydroxylase DeficiencyRecruitingAges 18+IRCCS Azienda Ospedaliero-Universitaria di BolognaNo US site yet
- Fertility And Sexual Function In CAH: CALLIOPERecruitingAges 18-65University of Roma La SapienzaNo US site yet
- GROWing Up With Rare GENEtic SyndromesRecruitingAges 18+dr. Laura C. G. de Graaff-HerderNo US site yet
- Institutional Registry of Rare DiseasesRecruitingHospital Italiano de Buenos AiresNo US site yet
- Parenting and CAH - 21-hydroxylase DeficiencyRecruitingAges 18+Assistance Publique - Hôpitaux de ParisNo US site yet
- Pediatric Congenital Adrenal Hyperplasia Management: Regret and Long-term OutcomesRecruitingAges 18-65University Hospital, LilleNo US site yet
- Syndromes With Neonatal Salt Loss: Not Only Congenital Adrenal Hyperplasia Due to 21-hydroxylase Deficiency (21OH-ISC)RecruitingAges 1-35IRCCS Azienda Ospedaliero-Universitaria di BolognaNo US site yet
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Who runs the Congenital Adrenal Hyperplasia trials in the US, and what stage they are in
Of the 6 Congenital Adrenal Hyperplasia trials with a US site, 2 are in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 2 of them. The remaining 2 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 4 of them, and universities, hospitals, foundations and government groups run 2. Crinetics Pharmaceuticals runs the most, with 2. The most recently listed one first appeared on ClinicalTrials.gov on May 28, 2026.
Congenital Adrenal Hyperplasia trials in the US, state by state
Of the 6 Congenital Adrenal Hyperplasia trials with a US site, 4 accept children under 18. Their open sites are in 17 states, most often California, Illinois and Michigan. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 9 states
US hospitals running the most Congenital Adrenal Hyperplasia trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Congenital Adrenal Hyperplasia.
- Ann and Robert H. Lurie Children's Hospital of ChicagoChicago, Illinois1 trial
- Boston's Children's HospitalBoston, Massachusetts1 trial
- Children's Hospital Los AngelesLos Angeles, California1 trial
- Children's Hospital of PhiladelphiaPhiladelphia, Pennsylvania1 trial
- Cook Children's Health Care SystemFort Worth, Texas1 trial
- Icahn School of Medicine at Mount Sinai-Mount Sinai HospitalNew York, New York1 trial
- National Institutes of Health Clinical CenterBethesda, Maryland1 trial
- Rutgers Robert Wood Johnson Medical SchoolNew Brunswick, New Jersey1 trial
- UCSF Ron Conway Gateway Medical BuildingSan Francisco, California1 trial
- University Hospital-University of MichiganAnn Arbor, Michigan1 trial
Help getting to a Congenital Adrenal Hyperplasia trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Congenital Adrenal Hyperplasia trial near you
Are there Congenital Adrenal Hyperplasia clinical trials near me?
As of November 13, 2026, 15 Congenital Adrenal Hyperplasia clinical trials are recruiting now and 7 are not yet recruiting. In the US, 6 of them have at least 1 open site, across 19 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Congenital Adrenal Hyperplasia clinical trial sites?
Recruiting Congenital Adrenal Hyperplasia trials list open sites in 19 states. Michigan, California and Illinois have the most, and the table on this page lists every state.
Are there Congenital Adrenal Hyperplasia trials for children near me?
Of the 6 Congenital Adrenal Hyperplasia trials with a US site, 4 accept children under 18. Their open sites are in 17 states, most often California, Illinois and Michigan. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Congenital Adrenal Hyperplasia clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Congenital Adrenal Hyperplasia trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Congenital Adrenal Hyperplasia trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Congenital Adrenal Hyperplasia: Crenessity (crinecerfont), Corticosteroids (hydrocortisone, cortisone, prednisone, prednisolone, methylprednisolone, dexamethasone, betamethasone, triamcinolone), Fludrocortisone acetate.
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.