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Help paying for Acute Hepatic Porphyria treatment

We found 2 drugmaker programs for Acute Hepatic Porphyria medicines. Tell us your insurance below and we'll show what to try first.

Find what fits meDrugmaker programs

What to try first, depending on your insurance

Help for Acute Hepatic Porphyria depends mostly on how you're covered. Pick the one that sounds like you. We'll name the funds and programs that fit, and what won't work, so you don't waste a phone call.

I have insurance through work or a plan I bought

2 funds and programs name private insurance

I'm on Medicare

2 funds and programs name Medicare
  • Taking Givlaari? Alnylam Assist offers bridge or quick-start supply to people with Medicare.
  • Taking Panhematin? Recordati Rare Diseases Patient Solutions (RRD PS) offers insurance and case manager help to people with Medicare.
  • Drugmaker copay cards can't be used with Medicare. Federal rules bar them.
  • Medicare Part D caps what you pay for covered drugs at $2,100 a year in 2026.

Medicaid or CHIP covers me or my child

2 funds and programs name Medicaid
  • Taking Givlaari? Alnylam Assist offers bridge or quick-start supply to people with Medicaid.
  • Taking Panhematin? Recordati Rare Diseases Patient Solutions (RRD PS) offers insurance and case manager help to people with Medicaid.
  • Drugmaker copay cards can't be used with Medicaid or CHIP. Federal rules bar them.
  • Federal rules keep Medicaid copays for medicine low, so most help here is with getting a prescription approved. The drugmaker's support line can help your doctor with that paperwork.

I have TRICARE or get care through the VA

2 funds and programs name TRICARE or VA
  • Taking Givlaari? Alnylam Assist offers bridge or quick-start supply to people with TRICARE or VA coverage.
  • Taking Panhematin? Recordati Rare Diseases Patient Solutions (RRD PS) offers insurance and case manager help to people with TRICARE or VA coverage.
  • Drugmaker copay cards can't be used with TRICARE or the VA. Federal rules bar them.

I don't have insurance right now

2 funds and programs name people without insurance
  • Taking Givlaari? Alnylam Assist may give it to you free if you qualify, usually based on income.
  • Taking Panhematin? Recordati Rare Diseases Patient Solutions (RRD PS) may give it to you free if you qualify, usually based on income.
  • Charity funds pay copays and premiums, so nearly all of them need you to have some insurance.
  • Drugmaker support lines, such as Alnylam Assist at 1-833-256-2748, can check whether you qualify for coverage you don't have yet.

Help from the companies that make Acute Hepatic Porphyria medicines

Copay cards lower what people with private insurance pay. Federal rules bar them for Medicare, Medicaid and TRICARE. Free medicine programs are for people without enough coverage and usually have income limits. We read each program on the drugmaker's own site.

GivlaariGivosiran

Support program: Alnylam Assist
Copay helpBridge or quick-start supplyFree medicine programInsurance and case manager help
What each one covers and who qualifies
  • Copay help

    Alnylam Assist Copay Program covers certain out-of-pocket costs for eligible patients with commercial insurance. A case manager enrolls you automatically after your doctor submits a Start Form. Not for Medicare, Medicaid or other government-sponsored insurance; administration costs are not covered where the law prohibits it. The page does not state a dollar cap.

    For: Private insurance · source
  • Bridge or quick-start supply

    Programs that may help if there is a delay or change in insurance coverage; a case manager decides which program fits after the Start Form is submitted.

    For: Private insurance, Medicare, Medicaid, TRICARE or VA · source
  • Free medicine program

    Alnylam Assist Patient Assistance Program provides access to treatment at no cost for eligible patients, primarily those who are uninsured. A case manager assesses eligibility after the Start Form is submitted.

    For: No insurance, underinsured · source
  • Insurance and case manager help

    After the doctor submits a Start Form, an Alnylam Case Manager contacts the patient within 2 business days with a summary of insurance benefits and starts support. Alnylam also points uninsured and underinsured patients to an independent foundation finder (AHP.support.reassist.us); the foundations are not run by Alnylam.

    For: Private insurance, Medicare, Medicaid, TRICARE or VA, No insurance, underinsured · source

Everything runs through the Start Form your doctor submits. Alnylam says patients must meet eligibility criteria and that it can change or end any program. No dollar maximum for the copay program is published on the page. Givlaari is given by a healthcare professional, so check whether the administration fee is covered separately.

Read on the drugmaker's site October 18, 2026. Programs change, so confirm before you rely on it.

PanhematinHemin for injection

Support program: Recordati Rare Diseases Patient Solutions (RRD PS)
Copay helpFree medicine programInsurance and case manager help
What each one covers and who qualifies
  • Copay help

    RRD PS Copay Assistance Program may help eligible patients with out-of-pocket costs, copayments or coinsurance for Panhematin if they meet program requirements. Not valid for prescriptions covered by Medicare, Medicaid, VA, DoD, TRICARE or similar federal or state programs. Approval is not guaranteed and the page states no dollar cap.

    For: Private insurance · source
  • Free medicine program

    RRD PS Patient Assistance Program provides financial support for eligible patients who have limited access to treatment because of insurance issues or financial challenges. The page does not say whether the drug is supplied free or at what income limit.

    For: No insurance, underinsured · source
  • Insurance and case manager help

    RRD PS Case Managers run benefit investigations, help with prior authorization and appeals and point eligible patients to financial help; Therapeutic Education Managers provide AIP education and help build a personalized AIP Attack Treatment Plan. Enroll with the RRD PS opt-in form or call 1-866-209-7604 (fax 1-866-209-7599), Monday to Friday 8 AM to 8 PM ET.

    For: Private insurance, Medicare, Medicaid, TRICARE or VA, No insurance, underinsured · source

Panhematin is given in a hospital or infusion center, so most costs come through the facility and insurance rather than a pharmacy claim; ask the case manager how the copay program applies to a hospital admission. Recordati's Panhematin Locator (panhematin.com/find-panhematin) lists facilities that stock the drug, and Cencora is the exclusive distributor with overnight shipping.

Read on the drugmaker's site October 18, 2026. Programs change, so confirm before you rely on it.

Before you pick up the phone

Most of these programs start with one call, and having these ready makes it shorter. Tick them off as you go. Nothing here is saved or sent anywhere.

Call the drugmaker's support line first. Its case managers check your benefits and often fill out forms with your doctor. If a charity fund is closed, sign up on the foundation's page to hear when it reopens. Most programs need renewing every year, and many copay cards reset in January.

Questions people ask about paying for Acute Hepatic Porphyria treatment

Is there financial help for Acute Hepatic Porphyria treatment?

Yes. Trial Friend lists 2 drugmaker programs for Acute Hepatic Porphyria medicines. We checked every one at the source on or before October 18, 2026. Which ones fit depends on your insurance. Copay cards are for people with private insurance, charity funds usually need some insurance, and free medicine programs are for people without enough coverage.

Can I use a copay card for Acute Hepatic Porphyria medicine if I have Medicare?

No. Federal rules bar drugmaker copay cards for drugs paid by Medicare, Medicaid or TRICARE. For Acute Hepatic Porphyria, 0 charity funds on this page accept Medicare, and 0 drugmaker free medicine programs name Medicare patients among those who may qualify. In 2026, Medicare Part D also caps yearly out-of-pocket costs for covered drugs at $2,100.

What help is there for Acute Hepatic Porphyria treatment without insurance?

Of the drugmaker programs for Acute Hepatic Porphyria medicines, 2 offer free medicine to people without insurance who qualify, usually with income limits. Most charity funds pay copays and premiums, so they need some insurance. The drugmaker's support line can also check whether you qualify for coverage you don't have yet.

Where to go next

How we check: drugmaker programs come only from each drugmaker's own pages. Fund status is copied from each foundation's list () on the date shown. Programs change, so confirm with the program before you rely on it. Trial Friend shares information, not financial, legal or medical advice, and each program decides who qualifies. See something wrong? Email jason@trialfriend.com.