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All 9 Progressive Familial Intrahepatic Cholestasis trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- Long-Term SafEty and Clinical Outcomes of LivmArli in Patients in the United States (LEAP-US)Most sites in Pennsylvania, California and ColoradoRecruitingMirum Pharmaceuticals8US sites
7 states - A Database Study of Maralixibat (TAK-625) in Participants With Alagille Syndrome (ALGS) and Progressive Familial Intrahepatic Cholestasis (PFIC)RecruitingTakedaNo US site yet
- A Study of the Effectiveness, Safety and the Long-term Outcomes of Participants With Progressive Familial Intrahepatic Cholestasis (PFIC) Who Take Odevixibat (Bylvay) in ChinaRecruitingAges 6 Months+IpsenNo US site yet
- A Study of the Effectiveness, Safety and the Long-term Outcomes of Participants With Progressive Familial Intrahepatic Cholestasis (PFIC) Who Take Odevixibat (Bylvay) in South KoreaRecruitingIpsenNo US site yet
- DEFINING THE GENETIC DRIVERS OF ADULT-ONSET CHOLESTATIC LIVER DISEASERecruitingAges 18-65Fondazione IRCCS Ca' Granda, Ospedale Maggiore PoliclinicoNo US site yet
- Familial Intrahepatic Cholestasis-related Genes Associated with Disease Susceptibility in Hepato-biliary CancersRecruitingAges 12 Months+IRCCS Azienda Ospedaliero-Universitaria di BolognaNo US site yet
- Long-Term Low-Intervention SafEty and Clinical Outcomes Clinical Study of LivmArli® in Patients With Alagille Syndrome or Progressive Familial Intrahepatic Cholestasis in the European Union (LEAP-EU)RecruitingPhase 4Ages 2 Months+Mirum PharmaceuticalsNo US site yet
- Pediatric Evaluation and Registry for Liver Cholestasis in CanadaRecruitingUp to age 18Children's Hospital of Eastern OntarioNo US site yet
- Prospective Analysis of the Treatment of Progressive Familial Intrahepatic Cholestasis (TreatFIC)RecruitingUniversity Medical Center GroningenNo US site yet
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Who runs the Progressive Familial Intrahepatic Cholestasis trials in the US, and what stage they are in
None of the 1 Progressive Familial Intrahepatic Cholestasis trial with a US site is in Phase 3, the last stage before a company can ask the FDA for approval. The last one has no drug phase, such as a study that follows people over time or tests a device or a way of giving care. Companies run all of them, with none led by a university, hospital or government group. The most recently listed one first appeared on ClinicalTrials.gov on January 5, 2024.
Progressive Familial Intrahepatic Cholestasis trials in the US, state by state
The only Progressive Familial Intrahepatic Cholestasis trial with a US site accepts children under 18. Its open sites are in 7 states, most often California, Colorado and Georgia. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
US hospitals running the most Progressive Familial Intrahepatic Cholestasis trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Progressive Familial Intrahepatic Cholestasis.
- Children Hospital of PittsburghPittsburgh, Pennsylvania1 trial
- Children's Healthcare of Atlanta - Emory University School of MedicineAtlanta, Georgia1 trial
- Children's Hospital Los Angeles CHLALos Angeles, California1 trial
- Children's Hospital of PhiladelphiaPhiladelphia, Pennsylvania1 trial
- Children's Mercy Kansas City, Department of Gastroenterology, Section of HepatologyKansas City, Missouri1 trial
- Oregon Health and Science University, Division of Pediatric Gastroenterology, Department of PediatricsPortland, Oregon1 trial
- Section of Gastroenterology, Hepatology and Nutrition, Department of Pediatrics and the Digestive Health Institute, Children's Hospital of Colorado and University of ColoradoAurora, Colorado1 trial
- University of Utah, Division of Pediatric Gastroenterology, Hepatology and NutritionSalt Lake City, Utah1 trial
Help getting to a Progressive Familial Intrahepatic Cholestasis trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding a Progressive Familial Intrahepatic Cholestasis trial near you
Are there Progressive Familial Intrahepatic Cholestasis clinical trials near me?
As of November 13, 2026, 9 Progressive Familial Intrahepatic Cholestasis clinical trials are recruiting. In the US, 1 of them has at least 1 open site, across 7 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Progressive Familial Intrahepatic Cholestasis clinical trial sites?
Recruiting Progressive Familial Intrahepatic Cholestasis trials list open sites in California, Colorado, Georgia, Missouri, Oregon, Pennsylvania and Utah.
Are there Progressive Familial Intrahepatic Cholestasis trials for children near me?
The only Progressive Familial Intrahepatic Cholestasis trial with a US site accepts children under 18. Its open sites are in 7 states, most often California, Colorado and Georgia. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to a Progressive Familial Intrahepatic Cholestasis clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Progressive Familial Intrahepatic Cholestasis trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when a Progressive Familial Intrahepatic Cholestasis trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Progressive Familial Intrahepatic Cholestasis: Bylvay (odevixibat), Livmarli (maralixibat chloride).
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.