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All 20 Epidermolysis Bullosa trials and their US sites
Enter your ZIP code above to sort them by how far their nearest open site is from you.
- A Study to Assess the Incidence of Skin Cancers in Patients With Epidermolysis Bullosa Receiving FilsuvezMost sites in California, Colorado and FloridaRecruitingChiesi Farmaceutici S.p.A.6US sites
6 states - A Study Comparing KB803 and Matched Placebo in Patients With Dystrophic Epidermolysis BullosaMost sites in California, Florida and MassachusettsRecruitingPhase 3Ages 6 Months+Krystal Biotech5US sites
5 states - A Long-Term Safety Follow-up Registry for Patients Who Received Treatment With Prademagene Zamikeracel for Recessive Dystrophic Epidermolysis Bullosa (RDEB) in the Post-Marketing SettingMost sites in California, Colorado and IllinoisRecruitingAbeona Therapeutics4US sites
4 states - Efficacy and Safety Study to Evaluate SD-101 in Epidermolysis BullosaMost sites in California, Pennsylvania and South CarolinaRecruitingPhase 3Ages 28 Days-12Paradigm Therapeutics4US sites
3 states - Long-Term Follow-up ProtocolMost sites in California and FloridaRecruitingAges 6 Months+Krystal Biotech3US sites
2 states - MSC EVs in Dystrophic Epidermolysis BullosaMost sites in Arizona, California and PennsylvaniaRecruitingPhase 1/2Ages 6 Months+Aegle Therapeutics3US sites
3 states - A Phase II, Placebo Controlled, Clinical Trial of Topical TolaSure Targeting Aggregated Mutant Keratin in Epidermolysis Bullosa SimplexMost sites in California and IllinoisRecruitingPhase 2Ages 2+BioMendics2US sites
2 states - A Natural History Study of Corneal Abrasions in Patients With Dystrophic Epidermolysis Bullosa (DEB)Only in PennsylvaniaRecruitingAges 6 Months+Krystal Biotech1US site
- A Phase 2 Study of TCP-25 Gel in Patients With Epidermolysis Bullosa, STEP-studyOnly in OhioRecruitingPhase 2Ages 4+Xinnate AB1US site
- Characteristics of Patients With Recessive Dystrophic Epidermolysis BullosaOnly in CaliforniaRecruitingStanford University1US site
- Gentamicin for Junctional Epidermolysis BullosaOnly in CaliforniaRecruitingPhase 1/2University of Southern California1US site
- Impact of Body Positioning on EndoFLIP Measurements: A Comparative Study of Supine and Left Lateral Decubitus PositionsOnly in MarylandRecruitingAges 5-21Johns Hopkins University1US site
- Targeting Collagen VII Antibodies With IV IgG in Dystrophic Epidermolysis BullosaOnly in CaliforniaRecruitingPhase 1/2Ages 6+M. Peter Marinkovich1US site
- A 20-Week Study Assessing the Efficacy of Apremilast in Patients with EB Simplex GeneralizedRecruitingPhase 2Ages 6-99Centre Hospitalier Universitaire de NiceNo US site yet
- A Study to Evaluate ENERGI-F703EB Cream in Epidermolysis BullosaRecruitingPhase 2Ages 18+Energenesis Biomedical Co.No US site yet
- A Study to Learn About the Safety and Efficacy of the Drug Oleogel-S10 in Japanese Patients With Epidermolysis BullosaRecruitingPhase 3Ages 21 Days+Chiesi Farmaceutici S.p.A.No US site yet
- Effect of Ev.FV on Wound Healing in Dystrophic Epidermolysis BullosaRecruitingPhase 1/2Ages 3-35Isfahan University of Medical SciencesNo US site yet
- FARD (RaDiCo Cohort) (RaDiCo-FARD)RecruitingInstitut National de la Santé Et de la Recherche Médicale, FranceNo US site yet
- GMEB-SASS: A Gene-Modified Skin Substitute for RDEB TreatmentRecruitingPhase 1/2Ages 7+CHU de Quebec-Universite LavalNo US site yet
- Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive CounsellingRecruitingMaastricht University Medical CenterNo US site yet
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Who runs the Epidermolysis Bullosa trials in the US, and what stage they are in
Of the 15 Epidermolysis Bullosa trials with a US site, 2 are in Phase 3, the last stage before a company can ask the FDA for approval. Earlier Phase 1 or 2 tests of safety and dosing make up 7 of them. The remaining 6 have no drug phase, such as studies that follow people over time or test a device or a way of giving care. Companies run 9 of them, and universities, hospitals, foundations and government groups run 6. The sponsors with the most are Krystal Biotech (3), M. Peter Marinkovich (2) and Stanford University (2). The most recently listed one first appeared on ClinicalTrials.gov on August 24, 2026.
Epidermolysis Bullosa trials in the US, state by state
All 15 Epidermolysis Bullosa trials with a US site accept children under 18. Their open sites are in 11 states, most often California, Pennsylvania and Florida. A trial counts once in each state where it has an open site, and some trials accept both children and adults.
Show the other 1 state
US hospitals running the most Epidermolysis Bullosa trials
Centers that run trials for a rare condition often see more people with it than most clinics do, so this list can also help you find doctors who know Epidermolysis Bullosa.
- Stanford UniversityRedwood City, California3 trials
- Children's Hospital of PhiladelphiaPhiladelphia, Pennsylvania2 trials
- Cincinnati Children's Hospital Medical CenterCincinnati, Ohio2 trials
- Lucile Packard Children's HospitalPalo Alto, California2 trials
- Mission Dermatology CenterRancho Santa Margarita, California2 trials
- Ann & Robert H. Lurie Children's Hospital of Chicago - Department of DermatologyChicago, Illinois1 trial
- Charlotte R. Bloomberg Children's CenterBaltimore, Maryland1 trial
- Children's Hospital ColoradoAurora, Colorado1 trial
- Childrens Hospital of PhiladelphiaPhiladelphia, Pennsylvania1 trial
- Cincinnati Children'sCincinnati, Ohio1 trial
Help getting to an Epidermolysis Bullosa trial far from home
Ask the study team whether the trial pays back travel, parking and hotel costs, because many sponsors do. The FDA's guidance on paying research volunteers says paying back these costs does not count as pressuring someone to join.
These nonprofits also help patients reach care, and each one sets its own rules.
- Mercy Medical Angels
- Pays for gas cards, ground rides and airline tickets anywhere in the US, and it lists clinical trials as a reason to travel. Household income at or below 300% of the federal poverty guidelines, and usually a trip of 50 miles or more each way.
- Air Charity Network
- Volunteer pilots in all 50 states fly patients for free in small private planes, and members also fly people taking part in clinical trials. You must be able to walk and sit upright for the flight, show financial need and have a backup plan if weather cancels it.
- Ronald McDonald House
- Gives families a room near the hospital while a child gets care, through 394 House programs around the world. Families of a sick child, with rules set by each local chapter.
- Healthcare Hospitality Network
- Keeps a map of hospitality houses near hospitals, and most member houses charge little or nothing to patients and families. Each house sets its own rules, so check with the house near your study site.
Program details were checked on each program's website on October 24, 2026.
Questions about finding an Epidermolysis Bullosa trial near you
Are there Epidermolysis Bullosa clinical trials near me?
As of November 13, 2026, 20 Epidermolysis Bullosa clinical trials are recruiting now and 7 are not yet recruiting. In the US, 15 of them have at least 1 open site, across 11 states. Enter your ZIP code on this page to rank every one of them by the distance to its closest open site, with the sites shown on a map.
Which states have Epidermolysis Bullosa clinical trial sites?
Recruiting Epidermolysis Bullosa trials list open sites in Arizona, California, Colorado, Florida, Illinois, Maryland, Massachusetts, Ohio, Pennsylvania, South Carolina and Texas.
Are there Epidermolysis Bullosa trials for children near me?
All 15 Epidermolysis Bullosa trials with a US site accept children under 18. Their open sites are in 11 states, most often California, Pennsylvania and Florida. Each trial sets its own age limits, so check the ages listed on a trial before you contact it.
Who pays for travel to an Epidermolysis Bullosa clinical trial?
Many trial sponsors pay back travel, parking and hotel costs, so ask the study team before you rule out a far-away site. The FDA's guidance says paying back these costs does not count as pressuring someone to join. Charities such as Mercy Medical Angels and Air Charity Network can also help with rides and flights.
What if there is no Epidermolysis Bullosa trial near me?
Some trials send staff to your home or use a local lab, so fewer visits happen at the study site. You can also sign up on this page to get an email when an Epidermolysis Bullosa trial opens a new site or changes status.
How is the distance to a trial site measured?
Distances are straight-line miles from the center of your ZIP code to each study site's listed location, not driving distance. Your browser looks up the ZIP code's coordinates with a free map service, Zippopotam.us, and the ZIP code is never sent to or stored by Trial Friend.
FDA-approved for Epidermolysis Bullosa: Filsuvez (birch triterpenes), Vyjuvek (beremagene geperpavec-svdt), Zevaskyn (prademagene zamikeracel).
Clinical trials near you for related conditions
Source: ClinicalTrials.gov, trials with status Recruiting or Not yet recruiting. Refreshed every 6 hours; counts as of November 13, 2026. Sites that ClinicalTrials.gov lists as closed or withdrawn are left out. Children means the trial's age group includes people under 18.