Novo Nordisk

Novo Nordisk works on 18 rare diseases tracked on Trial Friend, including Achondroplasia, Alpha-1 Antitrypsin Deficiency, ATTR Amyloidosis (Transthyretin Amyloidosis) and 15 more, with 19 recruiting clinical trials and 8 FDA-approved rare disease drugs.

Novo Nordisk, formed in 1989 from the merger of Nordisk Insulinlaboratorium (founded 1923) and Novo Terapeutisk Laboratorium (founded 1925), invests significantly in rare disease drug development. The company's rare disease portfolio includes hemophilia treatments and growth disorder therapies.

Type
Diversified Pharma
Ticker
NVO
Headquarters
Bagsværd, Denmark
Founded
1989
19
Active Rare Disease Trials
8
Approved Rare Disease Drugs
18
Rare Diseases in Portfolio
37
Years Active
FDA decision ahead
The FDA is due to decide on Denecimig (Mim8) for Hemophilia A, with or without inhibitors in Q3 2026.
See all upcoming rare disease FDA decisions →

Focus areas at Novo Nordisk

Within its broader pharmaceutical portfolio, Novo Nordisk has active clinical trial programs and drug development efforts across 18 rare diseases, including Achondroplasia, Alpha-1 Antitrypsin Deficiency, ATTR Amyloidosis (Transthyretin Amyloidosis), Cholangiocarcinoma, Chronic Graft-versus-Host Disease, and 13 additional rare conditions. These programs may span orphan drug designation, novel therapeutic mechanisms, and precision medicine approaches targeting the underlying causes of each disease.

The clinical trials section below shows all active and recruiting studies sponsored by Novo Nordisk, sourced live from ClinicalTrials.gov. Each trial includes its current recruitment status, study phase (Phase 1 through Phase 4), conditions under investigation, and the number of active trial sites. The FDA-approved drugs section lists treatments that have received U.S. Food and Drug Administration approval, with brand names, generic names, approval dates, and matched rare disease indications from the openFDA database.

Novo Nordisk is headquartered in Bagsværd, Denmark, founded in 1989, publicly traded under the ticker symbol NVO. The company maintains a dedicated rare disease division alongside its broader therapeutic portfolio, working to bring innovative treatments to patients with conditions that have historically had limited or no treatment options.

Novo Nordisk Drug Pipeline

Novo Nordisk has 19 active clinical trials across 4 development stages, with 19 currently recruiting participants. Clinical trials advance through phases: Phase 1 tests safety in a small group, Phase 2 evaluates effectiveness and side effects, Phase 3 confirms benefit in a larger population, and Phase 4 monitors long-term safety after FDA approval.

Note: This pipeline includes all of Novo Nordisk's active interventional trials, not only those targeting rare diseases. We show the full pipeline because a company's broader research activity, therapeutic expertise, and development infrastructure directly shape its ability to advance rare disease programs. A strong overall pipeline often signals deeper clinical operations, faster enrollment capabilities, and greater commitment to bringing new treatments to patients.

Understand Novo Nordisk's pipeline
Type your own question with a little about your situation, and get an answer with sources.
Tap to start:
Or start with one of these
5
Early Phase / Phase 15 trials
Recruiting
Transthyretin Amyloid Cardiomyopathy
Recruiting
Recruiting
Lung Neoplasms+4 more
Recruiting
4
Phase 24 trials
Colorectal Cancer
Recruiting
Transthyretin Amyloid Cardiomyopathy (ATTR CM)
Recruiting
7
Phase 37 trials
Transthyretin Amyloid Cardiomyopathy (ATTR CM)
Recruiting
Recruiting
SGA+3 more
Recruiting
3
Other3 trials
Type 2 Diabetes+2 more
Recruiting
Recruiting
Recruiting

Novo Nordisk Clinical Trials (19)

Active and recruiting clinical trials sponsored by Novo Nordisk, sourced live from ClinicalTrials.gov. Each trial card shows the study phase, current recruitment status, conditions under investigation, study locations, eligibility criteria, and a direct link to the full ClinicalTrials.gov record. You can also download a one-page PDF summary to share with your doctor.

Note: Recruitment statuses on ClinicalTrials.gov may not immediately reflect recent FDA decisions, sponsor announcements, or enrollment changes. Always confirm a trial's current status directly with the study coordinator.

Ask about Novo Nordisk's trials
Type your own question with a little about your situation, and get an answer with sources.
Tap to start:
Or start with one of these
RECRUITINGPHASE3Recently updatedNCT07207811

CLEOPATTRA: A Research Study to Look at the Effects of Treatment With a Medicine Called Coramitug (NNC6019-0001) in People With Heart Failure Due to Transthyretin Amyloid (ATTR) Amyloidosis

Intervention: NNC6019-0001, Placebo (NNC6019-0001)

Transthyretin Amyloid Cardiomyopathy (ATTR CM)

This study will find out if a new medicine called NNC6019-0001 can help reduce the risk of heart-related death and illness in participants with a condition called transthyretin amyloid cardiomyopathy (ATTR-CM), which affects the heart. Participants will either receive NNC6019-0001 or a placebo (a treatment with no active medicine), and which one they get is decided by chance. Everyone in the study will continue receiving their usual heart treatments as recommended by their doctor.

Ages 18 Years+297 locations
View full study
RECRUITINGPHASE1Recently updatedNCT07220564

A Research Study Looking at How Different Doses of Study Medicine (Inno8) Work in the Body of People With Haemophilia A

Intervention: NNC0442-0344 A

This study will test how different doses of study medicine (Inno8) work in the bodies of people with haemophilia A. The purpose of the study is to see if Inno8 is safe to use for people with haemophilia A. The study medicine is a new medicine that cannot yet be prescribed by doctors. The study will last for about 11 weeks.

Ages 18 Years - 64 Years33 locations
View full study
RECRUITINGPHASE3Recently updatedNCT06609226

A Research Study Looking at Long-term Treatment With Etavopivat in People With Sickle Cell Disease or Thalassaemia

Intervention: Etavopivat A, Etavopivat B, Etavopivat C

Etavopivat is a new medicine under development for treating blood disorders like sickle cell disease and thalassaemia. Sickle cell disease and thalassaemia are inherited blood disorders that affect haemoglobin. Haemoglobin is the protein that carries oxygen through the body. This study is looking into how safe treatment with etavopivat is and how well it works over a long period of time. The study will last for up to 264 weeks, but it will end earlier if etavopivat is approved in the participant's country.

Ages 2 Years+107 locations
View full study
RECRUITINGPHASE3Recently updatedNCT06612268

A Study to Evaluate How Well Etavopivat Works in People With Sickle Cell Disease

Intervention: Etavopivat, Placebo

This study is conducted to confirm whether etavopivat works well at reducing the number of Vaso-occlusive crisis VOCs (sickle cell pain crises) caused by obstructions in blood vessels in adults and adolescents living with sickle cell disease. The study will also evaluate how well etavopivat can reduce the damage to different organs, improve your exercise tolerance and reduce fatigue in people with sickle cell disease.The participants will either get etavopivat or placebo. Which treatment the participants will get is decided by chance. Etavopivat is a new medicine and is currently being tested in other studies in addition to this one. The study will last for about 2 years.

Ages 12 Years+175 locations
View full study
ACTIVE NOT RECRUITINGPHASE3Recently updatedNCT04082429

Research Study to Look at How Well the Drug Concizumab Works in Your Body if You Have Haemophilia Without Inhibitors

Intervention: Concizumab

This study will test how well a new medicine called concizumab works in the body of people with haemophilia A or B without inhibitors. The purpose is to show that concizumab can prevent bleeds in the body and is safe to use. Participants who usually only take medicine to treat bleeds (on-demand) will be placed in one of two groups. In one group participants will get study medicine from the start of the study. In the other group participants will continue with their normal medicine and get study medicine after 6 months. Which treatment the participant gets is decided by chance. Participants who usually take medicine to prevent bleeds (prophylaxis treatment) or who are already being treated with concizumab (study medicine) will receive the study medicine from the start of the study. Participants will have to inject themselves with the study medicine 1 time every day under the skin. This can be done at home. The study doctor will hand out the medicine in the form of a pen-injector. The pen-injector will contain the study medicine. The study will last for up to 8 years. The length of time the participant will be in the study depends on when they agreed to take part and when the medicine is available for purchase in their country (or 31 December 2027 at the latest). The time between visits will be approximately 4 weeks for the first 6 to 12 months depending on the group participants are in, and approximately 8 weeks for the rest of the study. If the participant attends extra visits due to the prescription medicine not being available for purchase in their country, these will be 14 weeks apart. Participants will be asked to record information in an electronic diary during the study and may also be asked to wear an activity tracker.

Ages 12 Years+113 locations
View full study
RECRUITINGPHASE2Recently updatedNCT07235293

A Study to Test DSP107 in Combination With Atezolizumab in Comparison With Fruquintinib as a New Treatment for Colorectal Cancer.

Intervention: DSP107 + Atezolizumab, Fruquintinib

Colorectal Cancer

This clinical study is testing whether a new combination of medicines (DSP107 and atezolizumab) is more effective and safer than an existing treatment (fruquintinib) for people with advanced colorectal cancer that is microsatellite stable (MSS). Participants will be randomly assigned to receive one of the two treatments, and researchers will monitor how well the cancer responds, how safe the treatments are, and how the body processes them. The study hopes to show that the new combination can improve outcomes for patients with this type of colorectal cancer.

Ages 18 Years+18 locations
View full study
ACTIVE NOT RECRUITINGPHASE3Recently updatedNCT05723835

A Research Study Looking at How Safe Somapacitan is and How Well it Works in Children Who Need Help to Grow - REAL 9

Intervention: Somapacitan

The purpose of this study is to find out if somapacitan is safe and how well somapacitan works in children either born small for gestational age or with Turner syndrome, Noonan syndrome or idiopathic short stature. Somapacitan is a new growth hormone medicine for treatment of low level of growth hormone. The study will last for about 3 years. During the study, the participants will be treated with somapacitan once a week. Somapacitan can be injected anytime during the day. The study doctor or nurse will show how to inject somapacitan, so that the participant knows how to do it at home.

Ages 10 Years - 18 Years18 locations
View full study

Novo Nordisk FDA-Approved Drugs (8)

Medications developed or marketed by Novo Nordisk that have received U.S. Food and Drug Administration approval. Drug data is sourced from the openFDA database and includes brand names, generic names, approval dates, and matched rare disease indications. Where a drug treats a condition covered by Trial Friend, the disease name links directly to that disease page.

Drug NameBrand NameRare DiseasesApproval Date
CONCIZUMAB
Tissue Factor Pathway Inhibitor Antagonist [EPC]
Alhemo
subcutaneous
Dec 20, 2024
SOMATROPIN
Recombinant Human Growth Hormone [EPC]
Norditropin
subcutaneous
Jun 20, 2000
ORAL SEMAGLUTIDE
GLP-1 Receptor Agonist [EPC]
OZEMPIC
oral
Sep 20, 2019
NEDOSIRANRIVFLOZA
subcutaneous
Sep 29, 2023
SOMAPACITAN-BECOSOGROYA
subcutaneous
Aug 28, 2020

Novo Nordisk Trial Locations

Novo Nordisk clinical trials are running at 1,099 sites in 59 countries. Click any country to drill down by state, city, and individual research facility. Proximity to a trial site is one of the most important factors in deciding whether to participate.

United States
233▼
Japan
68▼
France
62▼
Italy
59▼
Spain
57▼
Australia
47▼
China
47▼
United Kingdom
41▼
Canada
35▼
Germany
35▼
Poland
34▼
Brazil
30▼

Rare Disease Focus Areas (18)

Diseases targeted by Novo Nordisk's clinical trial and drug development programs

AchondroplasiaConnective Tissue & Musculoskeletal

Achondroplasia is the most common form of short-limbed dwarfism, caused by a mutation in the FGFR3 gene that disrupts the conversion of cartilage to bone in the growth plates. This results in dispropo...

Prevalence: Approximately 1 in 25,000 live births; estimated 25,000 to 30,000 people in the United States
Alpha-1 Antitrypsin DeficiencyPulmonary & Respiratory

Alpha-1 antitrypsin deficiency is a genetic disorder affecting the lungs and liver, caused by insufficient production of the protective enzyme alpha-1 antitrypsin. Without adequate protection, neutrop...

Prevalence: 1 in 2,500 to 3,500 people; affects approximately 100,000 Americans
ATTR Amyloidosis (Transthyretin Amyloidosis)Metabolic & Lysosomal

ATTR amyloidosis is a rare progressive disease where abnormal transthyretin protein accumulates as amyloid deposits in the heart, nerves, and other organs. It can be inherited (hereditary ATTR) or dev...

Prevalence: Approximately 5,000 to 7,000 new cases diagnosed annually in the U.S.
CholangiocarcinomaRare Cancers

Cholangiocarcinoma is a rare and aggressive cancer that forms in the bile ducts, the thin tubes that carry digestive fluid (bile) from the liver to the small intestine. It can occur inside the liver (...

Prevalence: About 8,000 new cases per year in the U.S.; rising incidence worldwide
Chronic Graft-versus-Host DiseaseBlood & Immune

Chronic graft-versus-host disease is an immune-mediated complication after allogeneic stem cell or bone marrow transplant, in which donor immune cells attack the recipient's tissues. It can affect the...

Prevalence: Affects 30 to 70% of patients who receive allogeneic hematopoietic stem cell transplant; approximately 14,000 new cases annually in the U.S.
Cystic FibrosisPulmonary & Respiratory

Cystic fibrosis is an autosomal recessive genetic disorder affecting the CFTR protein, which normally regulates chloride transport. Defective CFTR causes thick, sticky secretions in the lungs and dige...

Prevalence: About 30,000 people in the U.S.; 1 in 2,500 to 3,500 births among Caucasians

Patient Resources

Organizations and resources related to Novo Nordisk's rare disease focus areas

Frequently Asked Questions About Novo Nordisk

Common questions about Novo Nordisk's rare disease programs, clinical trials, and treatments.