Starting Pasatru (garetosmab-grts)Your first 90 days with fibrodysplasia ossificans progressiva (FOP): the steps, the dates and who to call

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Fill in with your doctor's office

First dose date

Doctor who prescribed it

Doctor's office phone

Specialty pharmacy name

Specialty pharmacy phone

The Medication Guide says to call your healthcare provider right away for:

Redness, skin that feels warm to the touch, swelling, pain or tenderness, fever or feeling generally unwell; a nosebleed that is severe or heavy, lasts more than 20 minutes, or does not stop with basic first aid such as pinching your nose with continuous firm pressure; a pregnancy or a possible pregnancy.

Also tell your doctor's office about:

A missed infusion appointment, as soon as possible, to reschedule it
Acne, increased hair growth, loss of eyebrow or eyelash hair, or mouth sores
All the medicines you take, including over-the-counter medicines, vitamins and herbal supplements
Breastfeeding, or a concern about male fertility

myRARE for Pasatru (Regeneron)1-877-372-7287

Monday to Friday, 9 AM to 9 PM Eastern

The drugmaker's support program, for questions about getting the medicine and paying for it. Answer calls from the specialty pharmacy; a missed call can delay your delivery.

Scan for your full plan, with every date added to your phone calendartrialfriend.com/p/pasatru

How you take it

An infusion into a vein once every 4 weeks, given by a healthcare provider over 60 minutes. The dose is worked out from your body weight.

Before your first dose

Pasatru is approved for adults with FOP. Its label says safety and effectiveness in children have not been established.
A pregnancy test, if you can become pregnant, and a plan for birth control that lasts until 6 months after the last dose.
A full list of your medicines, vitamins and herbal supplements for your healthcare provider.
A place for the infusions. Regeneron says that can be an infusion center or your home, and your healthcare provider helps decide.
Your insurance approves the medicine. Regeneron's myRARE program at 1-877-372-7287, option 1, helps with insurance coverage and financial support options.

The first 90 days

Weeks beforeEnroll in the support program, insurance check
2 weeks beforeChoosing where the infusions happen
Days beforePregnancy test before the first infusion, if it applies
Day 1Day 1: first infusion, 60 minutes
Day 15Two weeks in, skin and nose
Day 29, then every 28 daysOne infusion every 4 weeks from here

Trial Friend, trialfriend.com. From the Pasatru FDA label dated August 14, 2026 and the drugmaker's program, checked November 11, 2026. Not medical advice: Trial Friend is not a medical provider, and your doctor decides your dose and tests.