Starting Rystiggo (rozanolixizumab-noli)Your first 90 days with generalized myasthenia gravis: the steps, the dates and who to call

How you take it

Given in cycles: one infusion under the skin of your belly once a week for 6 weeks, then a break. A nurse or doctor gives every dose, and your neurologist decides when the next cycle starts.

Before your first dose

• Decide with your neurologist where you get each dose: an infusion center, the doctor's office, a hospital clinic, or at home with a nurse if your insurance covers it.
• Your doctor's office sends a form to ONWARD, the drugmaker's support program, with your antibody blood test and your symptom score. You sign it too.
• Your vaccines are checked. Live vaccines are not recommended while you are on Rystiggo.
• Tell the office about any fever, cough or burning when you pee before a dose. A dose waits until an infection clears.
• Your insurance approves the medicine. Offices may call from numbers you do not know, so answer your phone.

The first 90 days

1. Before the first doseSign up with the support program, insurance check
2. After enrollmentThe welcome call from ONWARD
3. Once approvedApproval, then the scheduling call
4. Day 1First infusion of cycle 1
5. Day 8Dose 2
6. Day 15Dose 3
7. Day 22Dose 4
8. Day 29Dose 5
9. Day 36Dose 6, the last of cycle 1
10. Day 43The trial's main check point
11. Day 50The break, and symptom tracking
12. Before cycle 2Vaccine check before the next cycle
13. Day 64 or laterEarliest studied start of the next cycle