Starting Fabrazyme (agalsidase beta)Your first 90 days with fabry disease: the steps, the dates and who to call

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Fill in with your doctor's office

First dose date

Doctor who prescribed it

Doctor's office phone

Specialty pharmacy name

Specialty pharmacy phone

Get medical care right away, during an infusion or after it, for:

Swelling of the face, mouth or throat; wheezing or trouble breathing; trouble swallowing; hives, rash or itching; flushing; chest discomfort; low blood pressure.

Also tell your doctor's office about:

Chills, fever, feeling hot or cold, nausea, vomiting, headache, tingling or dizziness on an infusion day
Any known heart problem, before your infusion
A pregnancy or breastfeeding, to your provider and at 1-800-633-1610, option 1

CareConnectPSS (CareConnect Personalized Support Services)1-800-745-4447, option 3

Monday to Friday, 8 AM to 6 PM Eastern

The drugmaker's support program, for questions about getting the medicine and paying for it. Answer calls from the specialty pharmacy; a missed call can delay your delivery.

Scan for your full plan, with every date added to your phone calendartrialfriend.com/p/fabrazyme

How you take it

An infusion into a vein every 2 weeks, at a clinic, office or hospital at first. The dose is based on your weight.

Before your first dose

A lab test or a genetic test that confirms Fabry disease. Your insurance may ask for the report.
Your insurance approves the medicine. CareConnectPSS, the drugmaker's support program, can help check your coverage. Call 1-800-745-4447 and press 3.
Your first infusion is booked at a doctor's office, hospital or infusion center that is ready to treat a serious allergic reaction.
Tell the infusion team about any heart problems. Before each infusion, you may get allergy and fever medicines to lower the chance of a reaction.
Plan a ride to and from your first infusion. Early infusions run slowly and can take several hours.

The first 90 days

Before the first infusionSign up with the support program, insurance check
Once approvedApproval, then booking the first infusion
Day 1Day 1: first infusion, at the slowest speed
Day 15Infusion 2
Day 29Infusion 3
Day 43Infusion 4
Day 57Ask whether home infusion is an option for you
Day 71Infusion 6
Day 85Infusion 7

Trial Friend, trialfriend.com. From the Fabrazyme FDA label dated August 22, 2025 and the drugmaker's program, checked November 7, 2026. Not medical advice: Trial Friend is not a medical provider, and your doctor decides your dose and tests.