Starting Elelyso (taliglucerase alfa)Your first 90 days with gaucher disease: the steps, the dates and who to call

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Fill in with your doctor's office

First dose date

Doctor who prescribed it

Doctor's office phone

Specialty pharmacy name

Specialty pharmacy phone

Get medical care right away, during an infusion or after it, for:

Hives; low blood pressure; flushing; wheezing; chest tightness; nausea or vomiting; dizziness.

Also tell your doctor's office about:

Itching, swelling under the skin, redness, rash, cough or throat irritation
Vomiting in a child, which may be a sign of an allergic reaction
Any reaction at a past infusion, before the next one
A change in weight, since the dose is set by weight
A pregnancy or breastfeeding, to your doctor

Pfizer Gaucher Personal Support (GPS)1-855-353-5976

The drugmaker's support program, for questions about getting the medicine and paying for it. Answer calls from the specialty pharmacy; a missed call can delay your delivery.

Scan for your full plan, with every date added to your phone calendartrialfriend.com/p/elelyso

How you take it

An infusion into a vein every other week that takes 60 to 120 minutes. Your doctor sets the dose by your weight.

Before your first dose

A confirmed diagnosis of type 1 Gaucher disease. Elelyso is for people 4 years and older.
Your doctor sets the dose for you or your child. Tell the doctor's office if your weight changes.
Your insurance approves the medicine. Pfizer Gaucher Personal Support, the drugmaker's support program, can help. Call 1-855-353-5976.
The first infusion is booked at a place that is ready to treat a serious allergic reaction.
Your doctor may give you allergy medicine before an infusion to lower the chance of a reaction.
You are watched closely during and after each infusion.

The first 90 days

Before the first infusionYour doctor's office calls the support program, insurance check
Once approvedApproval, then booking the first infusion
Day 1Day 1: first infusion, in a clinic or office
Day 15Infusion 2
Day 29Infusion 3
Day 43Infusion 4
Day 57The support program can check whether your insurance covers home infusion
Day 71Infusion 6
Day 85Infusion 7

Trial Friend, trialfriend.com. From the Elelyso FDA label dated December 29, 2025 and the drugmaker's program, checked November 11, 2026. Not medical advice: Trial Friend is not a medical provider, and your doctor decides your dose and tests.